RareKids-CAN: Pediatric Rare Disease Clinical Trials and Treatment Network
RareKids-CAN: Pediatric Rare Disease Clinical Trials and Treatment Network
批准号:
495575
负责人:
Lacaze-Masmonteil Thierry
金额:
$1456.99万
依托单位国家:
加拿大
项目类别:
Operating Grants
财政年份:
2023
资助国家:
加拿大
项目状态:
未结题
起止时间:
2023-10-01 至 2028-10-01
中文摘要
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英文摘要
Rare diseases (RDs) affect almost 5% of the population. One in 15 children is born with a RD. Patients with these conditions occupy a quarter of pediatric hospital beds. The journey of diagnosis of RDs and access to treatment, when available, can be long
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