Growing into adulthood with Duchenne Muscular Dystrophy - comparing patient experiences and systems to optimize care

杜氏肌营养不良症患者进入成年期 - 比较患者的经历和系统以优化护理

• 批准号: 450000
• 负责人: Kraus De Camargo Olaf A
• 金额: $ 21.86万
• 依托单位: McMaster University
• 依托单位国家: 加拿大
• 项目类别: Operating Grants
• 财政年份: 2021
• 资助国家: 加拿大
• 起止时间: 2021-06-01 至 2024-06-01
• 项目状态: 已结题
• 来源: https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=450000&lang=en
• 关键词: Duchenne Muscular Dystrophy; Experience Of Transitional Healthcare; Health Services Research; Integrated Knowledge Translation; Mixed Method Design

Transition from the pediatric to adult healthcare system is a challenging time for patients with chronic diseases. Despite the development of national and international guidelines, patients, caregivers, and services providers often encounter barriers (org

从儿科到成人医疗保健系统的过渡对慢性病患者来说是一个具有挑战性的时期。尽管制定了国家和国际指南，但患者、护理人员和服务提供者经常遇到障碍（组织