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PARTNERS - Patient Assisted Research Transforming National Effectiveness in Rare Diseases. Creating Pathways Toward Improved Care Delivery, Outcomes and Reduced Burden.

PARTNERS - Patient Assisted Research Transforming National Effectiveness in Rare Diseases. Creating Pathways Toward Improved Care Delivery, Outcomes and Reduced Burden.
合作伙伴 - 患者辅助研究改变罕见疾病的国家有效性。
批准号：
323906
负责人：
Korngut Lawrence W
金额：
$3.62万
依托单位：
University of Calgary
依托单位国家：
加拿大
项目类别：
Operating Grants
财政年份：
2015
资助国家：
加拿大
项目状态：
已结题
起止时间：
2015-01-01 至 2016-01-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=323906&lang=en
关键词：
Cardiac Care Cognitive Complications Genomics Interdisciplinary Care Knowledge Translation Nutritional Interventions Rare Disease Rehabilitation Respiratory Care Translational Research

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中文摘要
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英文摘要
A rare disease is a condition that affects less than 1 in 2,000 people. Worldwide it has been estimated that about 6 - 8% of the population is affected by a rare disease. This means between 2. 1 and 2.8 million Canadians are affected. To date, over 6,00
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The Canadian Neuromuscular Network (CAN-NMD)
  • 批准号：
    308399
  • 项目类别：
    Operating Grants
  • 资助金额：
    $41.93万
  • 财政年份：
    2013
  • 负责人：
    Korngut Lawrence W
  • 依托单位：
    University of Calgary
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