Developing a Doorway to Accessible Supportive Care Resources for Parents of Seriously Ill Children: An Innovative Pediatric Palliative Care ePortal

为重病儿童的父母开发一个获取支持性护理资源的途径：创新的儿科姑息治疗电子门户

• 批准号: 411999
• 负责人: Bally Jill M
• 金额: $ 0.73万
• 依托单位: University of Saskatchewan
• 依托单位国家: 加拿大
• 项目类别: Miscellaneous Programs
• 财政年份: 2019
• 资助国家: 加拿大
• 起止时间: 2019-09-01 至 2020-09-01
• 项目状态: 已结题
• 来源: https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=411999&lang=en
• 关键词: Digital Health; Family-Focused Care; Hope Science; Life Limiting Illness; Life Threatening Illness; Pediatric Health Care; Pediatric Palliative Care; Portal

Serious childhood illness disrupts family life and wellbeing. In Canada, over 1400 children with complex treatment needs receive specialized pediatric palliative care every year. However, many other children and families do not have access to such special

严重的童年疾病扰乱了家庭生活和福祉。在加拿大，每年有超过1400名有复杂治疗需求的儿童接受专门的儿科姑息治疗。然而，许多其他儿童和家庭没有机会获得这种特殊的