LSS Postdoctoral Fellowship: Autism, Social Science and Law

LSS 博士后奖学金：自闭症、社会科学和法律

• 批准号: 1228503
• 负责人: Leslie Francis
• 金额: $ 20万
• 依托单位: University of Utah
• 依托单位国家: 美国
• 项目类别: Standard Grant
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-09-15 至 2015-08-31
• 项目状态: 已结题
• 来源: https://www.nsf.gov/awardsearch/showAward?AWD_ID=1228503&HistoricalAwards=false
• 关键词: LSS; Postdoctoral; Fellowship; Autism; Social

Autism presents major public health concerns. Almost one in every hundred children born today has an autism spectrum disorder (ASD). Most research has been directed to causation and treatment of ASDs in childhood, although much remains. However, little is known about these children as adults: how they adapt; their social, legal, and medical needs; their challenges and successes. As they become adults, persons with ASD may face many different concerns, including employment discrimination, independent living, educational needs, health insurance, medical treatment and capacity to consent, risks of exploitation in business dealings, guardianship and conservatorship, and more. The affective disabilities characteristic of ASD also may affect work performance, relationships, community living, social and recreational opportunities, abilities to access governmental services, encounters with law enforcement, and other legal needs. The University of Utah's postdoctoral fellow in Law and Social Science will develop an understanding of the experiences of adults with ASD and their legal needs. Unique data resources are available at the University of Utah, including families involved in long-term genetics research in the Utah Autism Research Program and the extensive family and other data in the Utah Population Database. Individuals in these families will also be able to provide valuable insight into attitudes about the growing number of genetic tests becoming available for ASD. From these data, the fellow will identify issues facing adults with ASD, research the experiences and needs of adults with ASDs, and explore unmet legal needs of these adults and their families. Mentoring the fellow are law faculty at the S.J. Quinney College of Law, social scientists, physicians, and lawyers representing persons with disabilities at the Utah Disability Law Center. A planned outcome of the project is the identification and recommendation of legal proposals that may be critical across the life cycle of people with ASD.

自闭症是一个重大的公共卫生问题。今天出生的每一百个孩子中就有一个患有自闭症谱系障碍（ASD）。 大多数研究都是针对儿童ASD的病因和治疗，尽管还有很多研究。 然而，人们对这些儿童成年后的情况知之甚少：他们如何适应;他们的社会、法律的和医疗需求;他们的挑战和成功。 当他们成年后，ASD患者可能会面临许多不同的问题，包括就业歧视，独立生活，教育需求，健康保险，医疗和同意能力，商业交易中的剥削风险，监护和监护等。 ASD的情感障碍特征也可能影响工作表现、人际关系、社区生活、社交和娱乐机会、获得政府服务的能力、与执法部门的接触以及其他法律的需求。 犹他州的法律和社会科学博士后研究员的大学将开发与ASD成年人的经验和他们的法律的需求的理解。 独特的数据资源可在犹他州的大学，包括家庭参与长期遗传学研究的犹他州自闭症研究计划和广泛的家庭和其他数据在犹他州人口数据库。 这些家庭中的个人也将能够提供有价值的见解，了解人们对越来越多的ASD基因检测的态度。 从这些数据中，研究员将确定ASD成年人面临的问题，研究ASD成年人的经验和需求，并探索这些成年人及其家庭未满足的法律的需求。 指导该研究员的是S. J.昆尼法学院的法学院教师、社会科学家、医生和代表犹他州残疾人法律中心残疾人的律师。 该项目的一个计划成果是确定和建议可能对ASD患者整个生命周期至关重要的法律的建议。