DMD患者の家族のSOCを育む家族支援ガイドラインの開発

制定家庭支持指南以促进 DMD 患者家庭的 SOC

• 批准号: 18K17571
• 负责人: 山口 智治
• 金额: $ 2.41万
• 依托单位: Fukuoka Children’s Hospital (2019-2022)University of Kochi (2018)
• 依托单位国家: 日本
• 项目类别: Grant-in-Aid for Early-Career Scientists
• 财政年份: 2018
• 资助国家: 日本
• 起止时间: 2018-04-01 至 2024-03-31
• 项目状态: 已结题
• 来源: https://kaken.nii.ac.jp/en/grant/KAKENHI-PROJECT-18K17571/
• 关键词: sense of coherense; 家族; Duchenne型筋ジストロフィー; 健康; salutohgenesis; sense of coherence; salutogenesis

本研究は，Duchenne型筋ジストロフィー患者の家族がSOCを育み，家族が健康の維持・増進を目指すための家族支援ガイドラインの開発を目的としている．平成28年度より本研究者が実施した「成人期のDuchenne型筋ジストロフィー（DMD）療養者を内包する家族が直面する課題と効果的な看護支援方法の考案」の発展的研究であり，その内容と先行研究より，DMD患者の家族がDMDの進行に伴う症状や治療などの対応と同時に，家族構造や機能の変化に伴う家族発達に関連する課題に取り組む中で，SOCを育んでいることが予測された．そのため，Step1からStep5の5段階を経て家族支援ガイドラインの開発に取り組む予定であった．しかし，covid-19の感染拡大に伴い，DMD家族へのインタビュー調査とDMD家族に関わる専門職とのFGIが困難なため，研究計画の修正を要した．研究方法の見直しを行い，文献検討や質問紙調査によって家族支援ガイドラインの原案作成に取り組んでいく．

In this study, Duchenne tendons were divided into two groups, one of which was family SOC. The purpose of family health maintenance is to improve the health of the family. In order to improve the health of the family, the family supports the family to support the opening of the project. In the 28th year of Pingcheng, this researcher conducted a study of "Duchenne-shaped tendons in adulthood" (DMD) participants included in the family to face the problems and the results of the project. "the research project of the exhibition, the content of which is to be studied first. In patients with DMD, family DMD patients were treated with symptoms and symptoms at the same time. The family machine was able to treat the patients who had attained the symptoms of the disease. The family members of the family were able to obtain the symptoms of the patients. The SOC patients were not affected by the symptoms. The family members of the Step1 family supported the health care of the patients with symptoms and symptoms, while the family members of the Step5 family supported the diagnosis of the symptoms. The covid-19 was infected by the companion of the family, the family of the DMD, the family of the DMD, the family of the family, the family, the family and the family.