Non-kin caregivers of terminally ill people: Contributions, experiences, and needs (NOCA)

除了或代替家庭成员，邻居和朋友也为处于临终状态的个人提供广泛的照顾。然而，文献包含的经验，负担和非亲属照顾者的好处的证据很少。除此之外，非亲属照顾者（如熟人，朋友，邻居）在政治话语或信息事件中没有得到显着解决。拟议的项目旨在调查非亲属照顾者在多大程度上帮助照顾临终的个人。这些非亲属照顾者的经历是什么？非亲属婚姻带来了哪些负担和好处？非亲属照顾者的支持需求和愿望是什么？在第一步中，我们将通过问卷调查的方式询问非亲属照顾者关于他们的负担，福利，心理健康和需求。我们还将使用调查问卷来探讨他们提供的护理的程度和类型以及社会人口数据。第二步，我们将对不同年龄、性别、出身、教育水平和就业状况的个人进行深入访谈。非亲属照顾者将提供有关他们的护理活动，动机和需求的信息。我们将利用这些发现来建立一个框架，概述生命结束时非亲属关系的具体情况。预计该框架将指导非亲属照顾者的支持措施的发展，并揭示新的和有价值的研究方向。

Neighbours and friends provide extensive care for individuals in end-of-life situations, in addition to or instead of family members. However, the literature contains little evidence of the experiences, burdens, and benefits of non-kin caregivers. Added to this, non-kin caregivers (e.g. acquaintances, friends, neighbours) are not significantly addressed within political discourse or informational events. The proposed project aims at investigating the extent to which non-kin caregivers contribute to the care of individuals at the end of life. What are the experiences of these non-kin caregivers? What burdens and benefits arise from non-kin caregiving? What are the support needs and wishes of non-kin caregivers? In a first step, we will ask non-kin caregivers about their burdens, benefits, psychological well-being, and needs, by means of a questionnaire. We will also use the questionnaire to explore the extent and type of care they provide and socio-demographic data. In a second step, we will conduct in-depth interviews with a diverse group of individuals in terms of age, gender, origin, educational level, and employment status. Non-kin caregivers will provide information about their caring activities, motivations, and needs. We will use the findings to develop a framework that outlines the specifics of the non-kin caregiving situation at the end of life. The framework is expected to guide the development of support measures for non-kin caregivers and reveal new and valuable research directions.