First Nations community-led approaches to Australian healthcare genomics

原住民社区主导的澳大利亚医疗保健基因组学方法

• 批准号: DE220101048
• 负责人: Dr Sharon Huebner
• 金额: $ 26.75万
• 依托单位: The Australian National University
• 依托单位国家: 澳大利亚
• 项目类别: Discovery Early Career Researcher Award
• 财政年份: 2022
• 资助国家: 澳大利亚
• 起止时间: 2022-02-01 至 2023-12-13
• 项目状态: 已结题
• 来源: https://dataportal.arc.gov.au/RGS/Web/Grants/DE220101048
• 关键词: First; Nations; community; led; approaches

This project aims to develop community-led approaches that address key barriers to First Nations inclusion in Australian healthcare genomics. It will focus on working with communities to evaluate, co-design, and implement culturally appropriate engagement strategies and ethical research practices, including relationship-based consent; cultural integration of genomics; and ethical strategies for long-term management and use of biological samples and data for clinical and research purposes. Expected outcomes of this project are policy recommendations, contributions to national ethics and protocols guidelines, and the evaluation of educational materials and digital learning tools aimed at improving genomics literacy and research practices.

该项目旨在开发社区主导的方法，以解决澳大利亚医疗保健基因组学中第一民族纳入的关键障碍。它将侧重于与社区合作，评估、共同设计和实施符合文化的参与战略和伦理研究做法，包括基于关系的同意；基因组学的文化整合；以及用于临床和研究目的的生物样本和数据的长期管理和使用的伦理战略。该项目的预期成果是政策建议，对国家伦理和议定书准则的贡献，以及旨在提高基因组学素养和研究实践的教育材料和数字学习工具的评估。