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First Nations community-led approaches to Australian healthcare genomics

First Nations community-led approaches to Australian healthcare genomics
原住民社区主导的澳大利亚医疗保健基因组学方法
批准号:
DE220101048
负责人:
Dr Sharon Huebner
金额:
$26.75万
依托单位国家:
澳大利亚
项目类别:
Discovery Early Career Researcher Award
财政年份:
2022
资助国家:
澳大利亚
项目状态:
已结题
起止时间:
2022-02-01 至 2023-12-13

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中文摘要
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英文摘要
This project aims to develop community-led approaches that address key barriers to First Nations inclusion in Australian healthcare genomics. It will focus on working with communities to evaluate, co-design, and implement culturally appropriate engagement strategies and ethical research practices, including relationship-based consent; cultural integration of genomics; and ethical strategies for long-term management and use of biological samples and data for clinical and research purposes. Expected outcomes of this project are policy recommendations, contributions to national ethics and protocols guidelines, and the evaluation of educational materials and digital learning tools aimed at improving genomics literacy and research practices.
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