A Program for Helping Patients with Parkinson's Disease to Maintain a Positive Self-concept

帮助帕金森病患者保持积极自我概念的计划

• 批准号: 17592270
• 负责人: SASAKI YOSHIKO
• 金额: $ 1.95万
• 依托单位: Health Sciences University of Hokkaido
• 依托单位国家: 日本
• 项目类别: Grant-in-Aid for Scientific Research (C)
• 财政年份: 2005
• 资助国家: 日本
• 起止时间: 2005 至 2007
• 项目状态: 已结题
• 来源: https://kaken.nii.ac.jp/grant/KAKENHI-PROJECT-17592270/
• 关键词: Parkinson's disease; Intractable Illness; Self-Concept; Support program; QOL

I. Objective: Evaluation of a Program for Helping Patients with Parkinson's Disease to Maintain a Positive Self-concept.II. Methods: 1) Participants, (1) Intervention group: 26 patients with PD who volunteered to participate in the program. (2) Control group: 26 patients with PD who didn't volunteered. 2) Program: The content of the program was determined on the basis, of the factors that this study found to affect the self-concept of the patients. The activities are titled "Leaning about Parkinson's disease, " "Living with everyday symptoms, " "What do I do when this happens?, " and "Social gathering." 3)Questionnaires: Self-Esteem Scale, Subjective QOL of patients with intractable diseases, Parkinson's Disease Questionnaire-39 (PDQ-39), and Mishel Uncertainty in Illness Scale-Community Form (MUIS-C) 4) Study timing: The intervention group was pre-tested and a post-test. The control group was pre-tested and then post-tested one month later. 5) Schedule: One course of four workshops is … More held every one or two weeks. Each workshop is followed by a social gathering. Three courses will be provided. Eight or nine people will be accepted per course. The workshop lecturers are specialists in their fields. The social gathering, in which a nurse will serve as a facilitator, is held for the purpose of encouraging the participants to forge a support network through conversation.III. Results: 1) A significant difference (x^2=4.404, p=0.036) was found between the intervention group and the control group in terms of the Hoehn & Yahr stage, but no such differences were found in other base attributes between the two groups. 2) For the total score for "self-respect" of the control group, a significant difference (t=4.697, p=0.000) was found between the pre-test and the post-test. The total score in the post-test was lower than that in the pre-test. 3) In terms of x^2 values for each item of the rating scales of the post-test, a significant difference between the two groups was found on 5 questions in self-respect scales, 5 questions in PDQ 39, and 6 questions in MUIS-C. There were a significantly great number of positive answers in "self-esteem" and "MUIS-C." 4) In the McNemar's tests given in the pre-test and the post-test, a significant difference was found in one question ("I feel positively about myself.") in "self-esteem." This suggests that greater numbers of patients were thinking more positively about themselves after participating in the program. 5) Multiple regression analysis using the scales as dependent variables and the base attributes as independent variables showed no significant differencesIV. Conclusion : Participation in the program helped some patients to maintain their positive self-concept and encouraged others to regard themselves more positively. The program used in this study was meaningful to Patients with Parkinson's Diseases. This study verified the necessity of continued use and improvement of the program. Less

I.目的：评估帮助帕金森病患者保持积极自我概念的计划。方法：1）研究对象：（1）干预组：26例自愿参加本项目的PD患者。(2)对照组：26例PD患者，不自愿参加。2)方案：方案的内容是根据本研究发现的影响患者自我概念的因素确定的。这些活动的标题是“学习帕金森病“，“与日常症状一起生活“，“发生这种情况时我该怎么办？”和“社交聚会。“3）文件：自尊量表、难治性疾病患者的主观生活质量、帕金森病问卷-39（PDQ-39）和Mishel疾病不确定感量表-社区量表（MUIS-C）4）研究时间：干预组进行前测和后测。对照组进行前测，一个月后进行后测。5)时间表：四个工作坊的一个课程是 ...更多信息 每一两周举行一次。每个研讨会之后都有一个社交聚会。将提供三门课程。每门课程将接受8或9人。研讨会的讲师都是各自领域的专家。由一名护士担任协调人的社交聚会的目的是鼓励参与者通过交谈建立一个支持网络。结果如下：1）干预组与对照组在Hoehn & Yahr分期方面存在显著差异（x^2=4.404，p=0.036），但两组之间在其他基本属性上没有发现这种差异。2)对照组的自尊总分在前测和后测之间差异有显著性（t=4.697，p=0.000）。后测总分低于前测。3)就后测的评定量表的每个项目的x^2值而言，两组之间在自尊量表的5个问题、PDQ 39的5个问题和MUIS-C的6个问题上存在显著差异。在“自尊”和“MUIS-C”方面，积极回答的数量明显较多。4）在前测和后测的McNemar测验中，有一个问题（“我对自己感觉积极”）存在显著差异。在“自尊“中。“这表明，更多的患者在参加该计划后对自己的看法更加积极。5)以量表为因变量，以基本属性为自变量的多元回归分析表明，两组之间无显著性差异。结论：参与该计划有助于一些患者保持积极的自我概念，并鼓励其他人更积极地看待自己。本研究所采用的程序对帕金森病患者有一定的指导意义。本研究验证了继续使用和改进该程序的必要性。少

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