A Program for Helping Patients with Parkinson's Disease to Maintain a Positive Self-concept

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I. Objective: Evaluation of a Program for Helping Patients with Parkinson's Disease to Maintain a Positive Self-concept.II. Methods: 1) Participants, (1) Intervention group: 26 patients with PD who volunteered to participate in the program. (2) Control group: 26 patients with PD who didn't volunteered. 2) Program: The content of the program was determined on the basis, of the factors that this study found to affect the self-concept of the patients. The activities are titled "Leaning about Parkinson's disease, " "Living with everyday symptoms, " "What do I do when this happens?, " and "Social gathering." 3)Questionnaires: Self-Esteem Scale, Subjective QOL of patients with intractable diseases, Parkinson's Disease Questionnaire-39 (PDQ-39), and Mishel Uncertainty in Illness Scale-Community Form (MUIS-C) 4) Study timing: The intervention group was pre-tested and a post-test. The control group was pre-tested and then post-tested one month later. 5) Schedule: One course of four workshops is … More held every one or two weeks. Each workshop is followed by a social gathering. Three courses will be provided. Eight or nine people will be accepted per course. The workshop lecturers are specialists in their fields. The social gathering, in which a nurse will serve as a facilitator, is held for the purpose of encouraging the participants to forge a support network through conversation.III. Results: 1) A significant difference (x^2=4.404, p=0.036) was found between the intervention group and the control group in terms of the Hoehn & Yahr stage, but no such differences were found in other base attributes between the two groups. 2) For the total score for "self-respect" of the control group, a significant difference (t=4.697, p=0.000) was found between the pre-test and the post-test. The total score in the post-test was lower than that in the pre-test. 3) In terms of x^2 values for each item of the rating scales of the post-test, a significant difference between the two groups was found on 5 questions in self-respect scales, 5 questions in PDQ 39, and 6 questions in MUIS-C. There were a significantly great number of positive answers in "self-esteem" and "MUIS-C." 4) In the McNemar's tests given in the pre-test and the post-test, a significant difference was found in one question ("I feel positively about myself.") in "self-esteem." This suggests that greater numbers of patients were thinking more positively about themselves after participating in the program. 5) Multiple regression analysis using the scales as dependent variables and the base attributes as independent variables showed no significant differencesIV. Conclusion : Participation in the program helped some patients to maintain their positive self-concept and encouraged others to regard themselves more positively. The program used in this study was meaningful to Patients with Parkinson's Diseases. This study verified the necessity of continued use and improvement of the program. Less