Research on home-based care of family caring for child with home mechanical ventilation

家庭机械通气患儿的护理负担较大。因此，暂息护理对他们来说非常重要。但因家庭突发事件和疾病等紧急使用的则是目前使用最多的暂息护理。此外，使用临时设施对孩子来说是一种困难的情况。然后，执行探访护士定期长期留在儿童家中的居家暂托。并提出了护理的效用。此外，探访护士在执行这种以家庭为基础的临时护理中是不可或缺的。然而，他们往往对孩子的家庭护理访问感到不安。为此，制定了访视护士儿童居家护理教育方案。

The care burden on the family caring for the child with home-mechanical ventilation is large. Therefore, the respite care is important for them. However, urgent use by family's event and the sickness, etc. was most in the use of a current respite care. In addition, the use of the respite facilities was a difficult situation in the child. Then, the home-based respite care that the visit nurse regularly stayed in child's home for a long time was executed. And, the utility of the care was suggested. In addition, the visit nurse is indispensable to execute this home-based respite care. However, they often have uneasiness for child's home nursing visit. Therefore, the educational program of child's home care for the visit nurse was developed.