Model Development of Palliative Management to Apply to Patients with Neurological Diseases and Families Living at Home : Three Year Follow-up

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We investigated the relationship among the perspective of subjective sleep quality and symptoms, depression and HRQOL by level of disability in neurological patients living at home. We then established an early palliative management model for neurological patients and family caregivers. Analysis was performed on data from 241 respondents to an initial survey conducted in 2009 by post on neurological patients discharged from our university hospital and from 166 respondents to a second survey conducted on the same subjects one year later. Provision of a care program designed to alleviate psychological symptoms including sleep disorder and depression is important during early palliative care for neurological patients living at home.