A fundamental study on the Illness Trajectory of Patients with Parkinson's Disease and Families

本研究对帕金森病患者及其家属进行了纵向访谈，并定性分析了他们的疾病经历叙述。因此，我们发现在疾病轨迹的早期阶段，患者和家属很难得到正确的诊断和接受疾病。生活史的工作在患者努力克服困难时尤为重要。我们还发现，患者和家属有时会在如何科普症状的想法上发生冲突。疾病轨迹研究需要长期的努力，还需要不断的研究。

In this study, we had longitudinal interview on Parkinson’s disease patient and family, and qualitatively analyzed their narratives of illness experience. As a result, we found there were difficulties for patient and family in having proper diagnosis and accepting the disease in the early stage of illness trajectory. The work of life-history was especially important when the patient strived to overcome the difficulties. We also found that patient and family sometimes came into collision on thoughts about way to cope with symptoms. Illness trajectory research requires long-term efforts and there still needs continuous study.