Action Research to create a place for children with life threatening illness:An exploration of Children's Hospice in Japan

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This study was Action Research for exploration the possibility of Children's Hospice in Japan. The purpose of this research was to clarify the experiences of children with life threatening illness and their parents, and their palliative care needs. Palliative care needs of them are needs for their development. Especially, QOL in infancy and after graduate high school were decreasing. We have concerned with three cases of children in terminal stage and found not only medical care but also the necessity of children's and family developmental support. Next, we made some citizen forum and meetings as enlighten programs for pediatric palliative care (children's hospice), and some programs to support the children's and the family's QOL. Finally, we made a network for children's hospice through cooperating with not only heath care providers but also ordinary people and people in multiple ranges. Through the process of action research, a direction for children's hospice in Japan were showed.