Protection and effective use of personal medical information: in the wake of electronic health insurance card and receipt data base

在患者医疗信息数字化方面，有必要通过适当的立法来保护患者控制自己信息的权利。为了促进将病人的医疗信息用于研究目的，有必要制定基于宪法相称原则和组织程序的个别法律规则。因此，必须建立一个具有保存和保护现有数据使命的自治组织。该组织被允许为从政府设施和私营企业检索到的个人信息的使用提供指令。此外，该组织还将发挥处理公民索赔和救济受难者的作用。从这个角度来看，2013年12月建立的促进癌症注册的法律基础是一个需要详细修订的未决挑战。

Regarding digitization of patient medical information, adequate legislation is necessary to protect patients' right to control their own information. In order to promote the use of patients' medical information with research purposes, rules of the individual law based on the constitutional principle of proportionality and organizational procedures are necessary. Therefore, establishing an autonomous organization that will have the mission to preserve and protect existing data is a must. This organization is allowed to provide directives for the use of personal information retrieved from governmental facilities and private enterprises. In addition this organization will have the role of processing citizens' claims and dealing with the relief of sufferers.From this point of view, the legal basis for the promotion of cancer registration established in December of 2013 is a pending challenge in need of detailed revision.