Style and Substance: Characterizing Dementia Caregiving Styles and Associated Biopsychosocial and Health Services Utilization Outcomes

风格和实质：描述痴呆症护理风格和相关的生物心理社会和健康服务利用结果

• 批准号: 10180489
• 负责人: Amanda Noel Leggett
• 金额: $ 2.13万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-08-01 至 2022-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10180489
• 关键词: 2019-nCoV; Accounting; Activities of Daily Living; Address; Administrative Supplement; Alzheimer' s Disease; American; Behavioral; Behavioral Symptoms; COVID-19; COVID-19 pandemic; Caregiver support; Caregivers; Caring; Clinics and Hospitals; Cognitive; Dementia; Dementia caregivers; Development; Development Plans; Disease; Distant; Distress; Elderly; Emotional; Exhibits; Family; Family Caregiver; Foundations; Fracture; Fright; Funding; Future; Goals; Government; Health; Health Services; Health system; Heart; Impaired cognition; Impairment; Individual; Intervention; Interview; Learning; Maps; Measures; Medical; Mental Health; Methods; Modality; Modeling; Online Systems; Outcome; Parents; Participant; Patterns of Care; Perception; Personal Satisfaction; Persons; Policies; Practice Management; Public Health; Quality of Care; Recommendation; Regulation; Research; Research Personnel; Sampling; Services; Shelter facility; Social Distance; Social support; Stress; Structure; Support System; Surveys; System; Taxonomy; Telephone; Time; Training; Videoconferencing; Viral; Vulnerable Populations; Work; base; biopsychosocial; care outcomes; career development; caregiver interventions; caregiving; coping; cost; dementia care; dementia caregiving; disease transmission; experience; health care availability; health care service utilization; health service use; high risk; improved; insight; mortality; novel coronavirus; pandemic disease; prevent; psychological symptom; recruit; service utilization; social; stressor; theories; virtual

ABSTRACT The physical and emotional toll faced by the approximately 15 million Americans serving as family caregivers for persons living with dementia (PWDs) is well-established, and the challenges posed by care provision during COVID-19 related distancing and shelter-in-place orders likely intensify experienced burdens. The NIA-funded parent K01, “Style and Substance: Characterizing Dementia Caregiving Styles and Associate Biopsychosocial and Health Services Utilization Outcomes” (K01AG056557, PI: Amanda Leggett), characterizes distinctions in how various caregiving styles react to internal care challenges (i.e. behavioral and psychological symptoms of dementia, activities of daily living, etc.). This administrative supplement builds off that parent K01 by examining how various defined caregiving styles cope and manage differently in the face of a global pandemic (COVID- 19) and associated shelter-in-place orders. To better understand care styles at higher risk for negative care outcomes and facets of care styles that may be targeted and modified in future caregiving interventions, this supplement aims to 1) Identify the association between external COVID-19 care challenges (pandemic-related stress, social distancing, and shelter-in-place regulations) on caregiver distress and well-being; 2) Characterize how identified cognitive-behavioral care styles uniquely perceive and behaviorally manage care in the face of COVID-19 care challenges; 2a) Explore caregiving styles as a moderator between COVID-19 related external care challenges and outcomes (care-related distress, well-being, informal and formal support seeking, and healthcare utilization), and 3) Delineate caregiver’s perceptions of barriers and facilitators to care during COVID-19 and what services and supports they would have found beneficial to pinpoint targets for social distancing relevant caregiving interventions. To accomplish these aims we will conduct in-depth mixed- methods interviews with 100 primary family caregivers for PWDs (as many as possible from our original sample with refill recruitment to maintain a total sample of 100 participants). All participant contact will be conducted virtually by phone, web-based survey, and videoconferencing methods. This work extends the career development of the PI by expanding the caregiving styles model to incorporate cognitive-behavioral care management across typical care and pandemic care contexts and offering additional training related to a major public health concern which has critical implications for PWDs and their caregivers. Moving forward, insight from this research can inform us on how caregiving styles respond to internal and external stressors allowing for the development of more efficient and effective caregiver-focused interventions tailored to the individual’s caregiving style.

摘要 作为家庭照顾者的大约1500万美国人所面临的身体和情感代价 老年痴呆症患者（PWDs）的治疗已经得到了很好的确立， 与COVID-19相关的距离和就地庇护订单可能会加剧已经历的负担。NIA资助 父母K01，"风格和物质：痴呆症护理风格和相关生物心理社会特征 和卫生服务利用结果"（K01 AG 056557，PI：阿曼达莱格特），描述了以下方面的区别： 不同的治疗方式如何应对内部护理挑战（即， 痴呆、日常生活活动等）。该管理补充通过检查 面对全球流行病（COVID-19），各种定义的应对方式如何应对和管理不同， 19)以及相关的就地避难命令。更好地了解负性护理风险较高的护理方式 结果和方面的护理风格，可能有针对性和修改，在未来的干预措施，这 补充旨在1）确定外部COVID-19护理挑战（流行病相关）之间的关联 压力、社交距离和就地庇护规定）对看护者痛苦和幸福的影响; 2）描述 如何识别认知行为护理风格独特地感知和行为管理护理面对 COVID-19护理挑战; 2a）探索作为COVID-19相关外部 护理挑战和结果（与护理有关的痛苦，福祉，非正式和正式的支持寻求， 医疗保健利用），和3）描绘照顾者的看法的障碍和促进照顾期间 COVID-19以及他们认为哪些服务和支持有利于确定社会目标 远离相关的干预措施。为了实现这些目标，我们将进行深入的混合- 方法对100名残疾人的主要家庭照顾者进行访谈（尽可能多地从我们最初的 再补充招募样本，以保持100名参与者的总样本）。所有参与者的联系方式将 通过电话、网络调查和视频会议方法进行虚拟调查。这项工作扩展了 职业发展的PI通过扩展的学习风格模型，以纳入认知行为 在典型的护理和流行病护理环境中进行护理管理，并提供与 这是一个重大的公共卫生问题，对残疾人及其照顾者具有重要影响。向前看， 从这项研究中得到的启示可以告诉我们，应对方式是如何应对内部和外部压力的 允许制定更有效率和更有效的、针对性强的干预措施， 个人的风格。