CONNECTPlus YP (Young Person): Digital self management service for pre-diagnosis care

CONNECTPlus YP（年轻人）：用于预诊断护理的数字自我管理服务

• 批准号: 10045223
• 金额: $ 6.27万
• 依托单位: HEALTH AND CARE INNOVATIONS LIMITED
• 依托单位国家: 英国
• 项目类别: Grant for R&D
• 财政年份: 2022
• 资助国家: 英国
• 起止时间: 2022 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=10045223
• 关键词: CONNECTPlus; YP; Young; Person; Digital

* Our proposal is for a new digital service, CONNECTPlus YP (Young Person), working in partnership with Torbay and South Devon NHS Foundation Trust and Children and Family Health Devon, that will sit within Health and Care Innovations existing CONNECTPlus multiple conditions app.The aim is to provide a single source of information and support for young people waiting for assessment and who are experiencing a range of symptoms suggestive of conditions including Long COVID, Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS), chronic pain, persistent physical symptoms (sometimes also known as medically unexplained or functional conditions), alongside support for those also presenting with anxiety and depression, learning disabilities and neurodiversity.The scale and length of waiting lists for assessment is growing, and the challenges prolonged delays present to these young people, as well as current clinical pressures, need addressing.CONNECTPlus YP is anticipated to provide earlier intervention, guidance and support to build better coping mechanisms, reducing progression to severe functional impairment and facilitate an earlier return to normal life, including school. Data collected through the app will provide evidence to improve multi disciplinary teams (MDTs) triage and assessment.CONNECTPlus YP is innovative because it: * Offers support information and resources to an underserved group of young people, whose complex difficulties often cause marked functional impairment of educational and social function for a long time prior to intervention. * Provides information and support for multiple conditions (in a single place) to improve knowledge, confidence and self-management * Includes behavioural trackers and diaries enabling real time data gathering "in the home" to provide a combined support and symptom-gathering solution for young people * Facilitates more effective assessment at the point of triage for those young people accessing the app prior to clinical assessment * Uses symptom data to inform ongoing support after assessment * Uses a Clinician Dashboard for MDTs to view data for remote monitoring * Provides signposting to local information, community and peer support groups (alongside national resources) enabling more immediate and appropriate support channels * Delivers information in multimedia format that is sensitive to ethnic and deprived areas needs * Provides an educational toolkit to upskill the health and social care workforce, and auxiliary services (e.g. in education settings) and arm them with the knowledge, skills and evidence-based resources to support these young people

* 我们的建议是一个新的数字服务，连接+YP（年轻人），与托尔拜和南德文郡国民保健服务基金会信托基金和儿童和家庭健康德文郡合作，该应用程序将位于Health and Care Innovations现有的CONNECTPlus多种疾病应用程序中。其目的是为等待评估的年轻人以及正在经历一系列暗示疾病的症状的年轻人提供单一的信息来源和支持包括长期COVID，肌痛性脑脊髓炎或慢性疲劳综合征（ME/CFS），慢性疼痛，持续的身体症状（有时也被称为医学上无法解释的或功能性疾病），同时为那些也表现出焦虑和抑郁，学习障碍和神经多样性的人提供支持。等待评估的名单的规模和长度都在增加，这些年轻人面临的挑战是长期拖延，以及目前的临床压力，需要解决。预计CONNECTPlus YP将提供早期干预，指导和支持，以建立更好的应对机制，减少严重功能障碍的进展，并促进早日恢复正常生活，包括上学。通过该应用程序收集的数据将提供证据，以改善多学科团队（MDT）的分诊和评估。CONNECTPlus YP具有创新性，因为它：* 为服务不足的年轻人群体提供支持信息和资源，他们的复杂困难往往会导致教育和社会功能的显着功能障碍干预之前很长一段时间的功能。* 为多种情况提供信息和支持（在一个地方），以提高知识，* 包括行为跟踪器和日记，可“在家中”收集真实的数据，为年轻人提供综合支持和数据收集解决方案 * 在临床评估之前，为访问应用程序的年轻人提供更有效的分诊评估 * 使用症状数据在评估后通知持续支持 * 使用MDT的临床医生仪表板查看远程监控数据 * 提供本地信息的路标，社区和同伴支持小组 * 以多媒体形式提供对族裔和贫困地区需求敏感的信息 * 提供一个教育工具包，以提高卫生和社会护理工作人员和辅助服务（例如在教育环境中）的技能，并用知识、技能和基于证据的资源武装他们，以支持这些年轻人