CONNECTPlus YP (Young Person): Digital self management service for pre-diagnosis care

*我们的提议是建立一项新的数字服务，CONNECTPlus YP(Young Person)，与Torbay和South Devon NHS Foundation Trust以及儿童和家庭健康Devon合作，将位于Health and Care Innovation Existing ConNECTPlus Multiple Condition App的范围内。目的是为等待评估的年轻人提供单一的信息和支持，这些年轻人正在经历一系列暗示条件的症状，包括慢性COVID、肉芽肿脑脊髓炎或慢性疲劳综合征(ME/CFS)、慢性疼痛、持续的身体症状(有时也称为医学上无法解释的或功能性条件)，以及对那些同时表现出焦虑和抑郁的人的支持，学习障碍和神经多样性。等待评估的名单的规模和长度都在增加，需要解决这些年轻人面临的长期拖延的挑战以及目前的临床压力。CONNECTPlus YP预计将提供更早的干预、指导和支持，以建立更好的应对机制，减少进展为严重的功能障碍，并促进更早恢复正常生活，包括上学。通过该应用程序收集的数据将为改进多学科团队(MDTS)分诊和评估提供证据。CONNECTPlus YP具有创新性，因为它：*为服务不足的年轻人群体提供支持信息和资源，他们的复杂困难往往会在干预前很长一段时间内导致明显的教育和社会功能障碍。*提供多种情况的信息和支持(在一个地方)，以提高知识、信心和自我管理*包括行为跟踪器和日记，支持在家中实时收集数据，为年轻人提供综合支持和症状收集解决方案*为那些在临床评估之前访问应用程序的年轻人在分诊点促进更有效的评估*在评估后使用症状数据为持续支持提供信息*使用临床医生仪表板查看用于远程监控的数据*提供本地信息的标志张贴，社区和同龄人支持小组(与国家资源一起)提供更直接和更适当的支持渠道*以多媒体形式提供对族裔和贫困地区需求敏感的信息*提供教育工具包，以提高保健和社会保健工作人员的技能，并提供辅助服务(例如在教育环境中)，并为他们提供知识、技能和循证资源，以支持这些年轻人

* Our proposal is for a new digital service, CONNECTPlus YP (Young Person), working in partnership with Torbay and South Devon NHS Foundation Trust and Children and Family Health Devon, that will sit within Health and Care Innovations existing CONNECTPlus multiple conditions app.The aim is to provide a single source of information and support for young people waiting for assessment and who are experiencing a range of symptoms suggestive of conditions including Long COVID, Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS), chronic pain, persistent physical symptoms (sometimes also known as medically unexplained or functional conditions), alongside support for those also presenting with anxiety and depression, learning disabilities and neurodiversity.The scale and length of waiting lists for assessment is growing, and the challenges prolonged delays present to these young people, as well as current clinical pressures, need addressing.CONNECTPlus YP is anticipated to provide earlier intervention, guidance and support to build better coping mechanisms, reducing progression to severe functional impairment and facilitate an earlier return to normal life, including school. Data collected through the app will provide evidence to improve multi disciplinary teams (MDTs) triage and assessment.CONNECTPlus YP is innovative because it: * Offers support information and resources to an underserved group of young people, whose complex difficulties often cause marked functional impairment of educational and social function for a long time prior to intervention. * Provides information and support for multiple conditions (in a single place) to improve knowledge, confidence and self-management * Includes behavioural trackers and diaries enabling real time data gathering "in the home" to provide a combined support and symptom-gathering solution for young people * Facilitates more effective assessment at the point of triage for those young people accessing the app prior to clinical assessment * Uses symptom data to inform ongoing support after assessment * Uses a Clinician Dashboard for MDTs to view data for remote monitoring * Provides signposting to local information, community and peer support groups (alongside national resources) enabling more immediate and appropriate support channels * Delivers information in multimedia format that is sensitive to ethnic and deprived areas needs * Provides an educational toolkit to upskill the health and social care workforce, and auxiliary services (e.g. in education settings) and arm them with the knowledge, skills and evidence-based resources to support these young people