Outreach, Recruitment, and Engagement

矿石核心--项目摘要/摘要 通过协调ADRC的所有外联、招募和参与，Shiley-Marcos的ORE核心 阿尔茨海默病研究中心(ADRC)致力于一项广泛的使命，包括招募 ADRC纵向队列和附属研究的主题，以及支持机制 通过外展和参与计划，瞄准社区的许多部门。外展服务 方案主要集中在1)老年人、家庭成员和照顾者，2)普通公众，3)社区 合作伙伴，4)中心工作人员和志愿者，5)医疗保健专业人员，以及6)研究社区。 主要面向老年人、他们的家人和照顾者的参与方案包括提供 关于阿尔茨海默病和相关疾病(ADRD)的信息，并提高对可用药物的认识 支持资源。支持计划是为正在经历以下挑战的个人设计的 痴呆症患者，包括照顾者，目标是提高生活质量。矿石核心也 满足那些有能力减轻负担的个人(利益相关者)的需求，例如 大家庭成员和医疗保健提供者。三个矿核之间存在着显著的重叠 在努力招聘和留住研究参与者以及提供支持和学习机会方面的任务 适用于受试者、家庭和照顾者，以及扩展社区的居民。后者包括一个 圣地亚哥县社区的大量拉丁裔人口提供了无数机会 增加我们队列中的多样性。招聘得益于我们最成功的两项努力，1)免费 为社区中不同群体的老年人提供记忆筛查和2)大型ADRC 由ORE、临床和拉丁裔核心填充的注册表，以识别和跟踪具有 同意被联系以转诊到ADRD研究。将注册表列入的决定基于现有的 以及在加州大学圣迭戈分校及其附属机构(例如，联合本地大学、弗吉尼亚州圣地亚哥、 其他阿尔茨海默病中心、国家倡议)。我们制定策略(例如，时事通讯) 以实现留住研究志愿者持续参与这一重要目标。为了最大限度地 在成功接触、参与和招募社区的所有部门时，我们评估以下结果 确定每个ORE核心计划的价值。我们利用这些发现来改进这些项目， 重要的是，与感兴趣的阿尔茨海默病中心、研究人员分享他们的描述和结果 专业人士和医护人员。

ORE CORE - PROJECT SUMMARY/ABSTRACT By coordinating all ADRC outreach, recruitment, and engagement, the ORE Core of the Shiley-Marcos Alzheimer's Disease Research Center (ADRC) addresses a broad mission that includes recruitment of subjects for the ADRC longitudinal cohort and for affiliated research studies, and support mechanisms targeting numerous sectors of the community through programs of outreach and engagement. Outreach programs focus primarily on 1) older adults, family members, and caregivers, 2) the lay public, 3) community partners, 4) Center staff and volunteers, 5) healthcare professionals, and 6) the research community. Engagement programs, primarily targeting older adults, their families and caregivers, include providing information about Alzheimer's disease and related disorders (ADRD) and increasing awareness of available support resources. Support programs are designed for individuals who are experiencing the challenges of living with dementia, including caregivers, with a goal of enhancing quality of life. The ORE Core also addresses the needs of those individuals (stakeholders) who are in a position to lessen the burden, such as extended family members and healthcare providers. There is significant overlap among the three ORE Core mandates in efforts to recruit and retain research participants and provide support and learning opportunities for subjects, family, and caregivers, as well as residents of the extended community. The latter includes a large Latino population in neighborhoods in San Diego County that provides numerous opportunities to increase diversity in our cohort. Recruitment benefits from two of our most successful efforts, 1) free memory screening offered to diverse populations of older adults in the community and 2) the large ADRC Registry populated by the ORE, Clinical, and Latino Cores to identify and track older adults who have agreed to be contacted for referral to ADRD studies. Decisions for registry inclusion are based on existing and proposed research studies at UCSD and affiliated institutions (e.g., co-local universities, San Diego VA, other Alzheimer's Disease Centers, national initiatives). We develop strategies (e.g., Currents newsletter) for the important goal of retaining research volunteers for ongoing participation. In order to maximize success in reaching, engaging, and recruiting all sectors of the community, we assess Outcomes that identify the value of each ORE Core initiative. We use the findings to improve these programs and, importantly, share their descriptions and outcomes with interested Alzheimer's Disease Centers, research professionals, and healthcare personnel.