Outreach, Recruitment, and Engagement

矿石岩芯-项目概要/摘要 通过协调所有ADRC的外联，招聘和参与，Shiley-Marcos的ORE核心 阿尔茨海默病研究中心（ADRC）致力于广泛的使命，包括招募 ADRC纵向队列和附属研究的受试者，以及支持机制 通过外联和参与方案，针对社区的许多部门。外联 项目主要集中在1）老年人，家庭成员和照顾者，2）普通公众，3）社区 合作伙伴，4）中心工作人员和志愿者，5）医疗保健专业人员，以及6）研究社区。 参与计划，主要针对老年人，他们的家人和照顾者，包括提供 关于阿尔茨海默病和相关疾病（ADRD）的信息，并提高对可用 支助资源。支持计划是为那些正在经历以下挑战的个人设计的： 痴呆症患者，包括照顾者，以提高生活质量为目标。ORE核心还 满足那些能够减轻负担的个人（利益相关者）的需求，例如 大家庭成员和医疗保健提供者。三个ORE核心之间存在显著重叠 努力征聘和留住研究参与者并提供支助和学习机会的任务 受试者、家庭和护理人员以及扩展社区的居民。后者包括 圣地亚哥县社区的大量拉丁裔人口提供了许多机会， 增加我们群体的多样性。招聘受益于我们最成功的两项努力，1）免费 记忆筛查提供给不同人群的老年人在社区和2）大型ADRC 由ORE、临床和拉丁裔核心组成的登记研究，以识别和跟踪患有 同意联系转诊至ADRD研究。是否纳入登记研究的决定基于现有的 以及UCSD和附属机构的拟议研究（例如，弗吉尼亚州圣地亚哥的当地大学， 其他阿尔茨海默病中心，国家倡议）。我们制定战略（例如，电流通讯） 为了留住研究志愿者持续参与的重要目标。为了最大化 成功地接触，参与和招募社会各界，我们评估的成果， 确定每个ORE核心计划的价值。我们利用这些发现来改进这些程序， 重要的是，与感兴趣的阿尔茨海默病中心，研究 专业人员和医疗保健人员。

ORE CORE - PROJECT SUMMARY/ABSTRACT By coordinating all ADRC outreach, recruitment, and engagement, the ORE Core of the Shiley-Marcos Alzheimer's Disease Research Center (ADRC) addresses a broad mission that includes recruitment of subjects for the ADRC longitudinal cohort and for affiliated research studies, and support mechanisms targeting numerous sectors of the community through programs of outreach and engagement. Outreach programs focus primarily on 1) older adults, family members, and caregivers, 2) the lay public, 3) community partners, 4) Center staff and volunteers, 5) healthcare professionals, and 6) the research community. Engagement programs, primarily targeting older adults, their families and caregivers, include providing information about Alzheimer's disease and related disorders (ADRD) and increasing awareness of available support resources. Support programs are designed for individuals who are experiencing the challenges of living with dementia, including caregivers, with a goal of enhancing quality of life. The ORE Core also addresses the needs of those individuals (stakeholders) who are in a position to lessen the burden, such as extended family members and healthcare providers. There is significant overlap among the three ORE Core mandates in efforts to recruit and retain research participants and provide support and learning opportunities for subjects, family, and caregivers, as well as residents of the extended community. The latter includes a large Latino population in neighborhoods in San Diego County that provides numerous opportunities to increase diversity in our cohort. Recruitment benefits from two of our most successful efforts, 1) free memory screening offered to diverse populations of older adults in the community and 2) the large ADRC Registry populated by the ORE, Clinical, and Latino Cores to identify and track older adults who have agreed to be contacted for referral to ADRD studies. Decisions for registry inclusion are based on existing and proposed research studies at UCSD and affiliated institutions (e.g., co-local universities, San Diego VA, other Alzheimer's Disease Centers, national initiatives). We develop strategies (e.g., Currents newsletter) for the important goal of retaining research volunteers for ongoing participation. In order to maximize success in reaching, engaging, and recruiting all sectors of the community, we assess Outcomes that identify the value of each ORE Core initiative. We use the findings to improve these programs and, importantly, share their descriptions and outcomes with interested Alzheimer's Disease Centers, research professionals, and healthcare personnel.