NVEADRC Outreach, Recruitment, and Engagement Core (OREC)

NVEADRC 外展、招聘和参与核心 (OREC)

• 批准号: 10450012
• 负责人: DYLAN WINT
• 金额: $ 18.66万
• 依托单位: CLEVELAND CLINIC FOUNDATION
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-08-01 至 2024-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10450012
• 关键词: Address; Adherence; Alzheimer' s Disease; Alzheimer' s disease related dementia; Awareness; Caring; Clinic; Clinical; Clinical Research; Communication; Communities; Community Actions; Community Outreach; Complex; Computers; Country; Dementia; Detection; Diagnosis; Disease; Disease Progression; Education; Educational Background; Ensure; Event; Family; Fostering; General Population; Goals; Guidelines; Health Services; Individual; Infrastructure; Instruction; Internet; Knowledge; Leadership; Locales; Medical; Mentors; Methods; Neurodegenerative Disorders; Nevada; Outcome; Participant; Patient Care; Patients; Persons; Physicians; Population Density; Practice Guidelines; Provider; Quality of life; Religion and Spirituality; Research; Research Personnel; Resources; Rural; Rural Community; Rural Population; Scientist; Services; Social isolation; Source; Supervision; Technology; Training; Tribes; United States; Universities; Weather; advocacy organizations; brain health; care providers; cohort; dementia care; dementia risk; design; evidence base; experience; handheld mobile device; health care disparity; improved; innovation; interest; lectures; nervous system disorder; neurocognitive disorder; news; novel; older patient; outreach; programs; recruit; rural area; rural patients; skills; social; social stigma; success; urban area; web site

NVEADRC OUTREACH, RECRUITMENT ENGAGEMENT CORE SUMMARY Our Nevada Exploratory Alzheimer’s Disease Research Center (NVEADRC) aims at reducing dementia care disparities in rural communities and developing an innovative research program to investigate the possible differences in disease trajectory of rural patients suffering Alzheimer’s disease (AD) and Alzheimer’s disease related dementia (ADRD). Prior research has identified two major issues with regards to dementia care in rural populations. First is a lack of skills by rural medical professionals to diagnose and manage dementia due to both a lack of proper medical training, and a lack of adherence to practice guidelines for the diagnosis and management of AD/ADRD. Because the first providers to diagnose and care for dementia in rural areas are primary care providers (PCP), there is an urgent necessity to provide improved and continuous education in AD/ADRD to answer PCPs’ older patients needs with regards to the detection and/or management of dementia. The second issue is a general lack of knowledge about dementia and other neurodegenerative disorders (NDD) in rural populations. In addition, because of the low population density, lack of infrastructures, weather conditions, and scarcity of community activities, there is a higher level of social isolation in rural communities, which is known to be a risk factor for dementia in older individuals. To address this complex social topic of dementia care in rural populations and to make our ambitious project successful in the long-term, we have decided to foster a robust Outreach, Recruitment Engagement Core (OREC) from the genesis of the NVEADRC. OREC will comprise investigators from both the Cleveland Clinic Lou Ruvo Center for Brain Health, Las Vegas (LRCBH) and University of Nevada, Las Vegas (UNLV). There are three main goals pursued by the OREC. In Aim 1, OREC will use its technology and network of medical collaborators to educate rural medical professionals on dementia. In Aim 2, OREC intends to increase NDD awareness in rural communities by leveraging statewide initiatives, community action groups, community/tribe/religious leadership, and associations (e.g. Alzheimer’s Association) to improve the knowledge of the general population on dementia. This will be accomplished via a combination of seminars, lectures, websites, and notebooks written in layman terms targeting rural populations. OREC will also use these communication vessels to invite individuals to participate in our rural research cohort. In Aim 3, OREC will utilize its didactic experience to supervise the mentoring of junior scientists who have an interest in investigating rural dementia and healthcare disparities. These junior investigators will attend at least one rural community outreach event offered by OREC to become aware of the interests, concerns, and needs of rural populations in term of dementia care. We anticipate that our outreach efforts targeting rural communities will reduce stigma and enable dementia patients to fully engage within their communities, while also connecting families living with dementia to information, support, and services as early as possible, thus, improving quality of life.

NVEADRC外展，招募参与核心 总结 我们的内华达州探索性阿尔茨海默病研究中心（NVEADRC）旨在减少痴呆症护理 农村社区的差距，并制定一项创新的研究计划，以调查可能的 农村阿尔茨海默病（AD）和阿尔茨海默病患者的疾病轨迹差异 相关性痴呆（ADRD）先前的研究已经确定了农村痴呆症护理的两个主要问题 人口。首先是农村医疗专业人员缺乏诊断和管理痴呆症的技能， 缺乏适当的医疗培训，缺乏对诊断和管理实践指南的遵守 AD/ADRD。因为在农村地区诊断和护理痴呆症的第一个提供者是初级保健 提供者（PCP），迫切需要提供AD/ADRD的改进和持续教育，以回答 PCP的老年患者在检测和/或管理痴呆症方面的需求。第二个问题是 农村人口普遍缺乏对痴呆症和其他神经退行性疾病的了解。在 此外，由于人口密度低，基础设施缺乏，天气条件差， 社群活动，农村社区的社会隔离程度较高，这是一种风险 老年痴呆症的危险因素为了解决农村人口痴呆症护理这一复杂的社会话题， 为了使我们雄心勃勃的项目取得长期成功，我们决定培养一个强大的外联， 招聘参与核心（OREC）从NVEADRC的起源。OREC将由调查人员组成 来自克利夫兰诊所卢鲁沃脑健康中心，拉斯维加斯（LRCBH）和内华达州大学， 拉斯维加斯（UNLV）。OREC有三个主要目标。在目标1中，OREC将利用其技术， 医疗合作者网络，对农村医疗专业人员进行痴呆症教育。在目标2中，OREC打算 通过利用全州范围的倡议、社区行动小组， 社区/部落/宗教领袖和协会（如阿尔茨海默氏症协会），以提高对 一般人群的痴呆症。这将通过研讨会，讲座，网站， 以及针对农村人口的通俗文字笔记。OREC还将使用这些通信 邀请个人参加我们的农村研究队列。在目标3中，OREC将利用其教学方法， 经验，监督指导年轻科学家谁有兴趣调查农村痴呆症， 医疗差距。这些初级研究人员将参加至少一个农村社区外展活动， OREC意识到农村人口在痴呆症护理方面的利益、关切和需求。我们 预计我们针对农村社区的外展工作将减少耻辱感，并使痴呆症患者能够 充分参与他们的社区，同时也将痴呆症患者家庭与信息，支持， 尽早提供服务，从而提高生活质量。