Latinas CaPACES: Connecting and Promoting Active Cancer Engagement Successfully using a Culturally-Tailored Digital Tool to Reduce Delays in Breast Cancer Diagnostic Follow-up Testing and Treatment

拉丁裔 CaPACES：使用文化定制的数字工具成功地连接和促进积极的癌症参与，以减少乳腺癌诊断后续测试和治疗的延误

• 批准号: 10475355
• 负责人: Maria DeJesus
• 金额: $ 38.72万
• 依托单位: CLEAR SESSION, INC.
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-14 至 2024-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10475355
• 关键词: Address; American; Anxiety; Appointment; Breast Cancer Patient; Cancer Diagnostics; Communication; Communication Barriers; Communities; Custom; Development; Diagnosis; Diagnostic; Diagnostic Procedure; Education; Face; Family member; Focus Groups; Fright; Future; Health; Health Personnel; Health Services Accessibility; Insurance; Knowledge; Language; Latina; Latina Population; Linguistics; Low income; Malignant Neoplasms; Mammography; Maryland; Outcome; Patients; Pharmaceutical Preparations; Phase; Prognosis; Provider; Reporting; Resources; Risk; Screening Result; Screening for cancer; Services; System; Testing; Time; Universities; Virginia; Visual; Washington; Woman; animation; base; breast cancer diagnosis; cancer diagnosis; cancer therapy; clinical encounter; cognitive interview; community based participatory research; cost; cultural competence; design; digital; feasibility testing; follow-up; improved; innovation; iterative design; literacy; literate; malignant breast neoplasm; mathematical ability; patient engagement; patient-clinician communication; peer; pilot test; primary outcome; prototype; racial and ethnic disparities; satisfaction; screening; secondary outcome; time use; tool; usability; visual information

Project Summary Evidence reveals racial/ethnic disparities in the quality of patient-provider communication among breast cancer patients. Health providers are lacking in the ability to communicate in a clear and culturally competent manner with Latina breast cancer patients. Among low-income Latinas who delayed follow-up after receiving abnormal cancer screening results, salient barriers to follow-up included lack of understanding of the information provided to them about their mammogram findings and/or the recommended diagnostic procedures, and fear about a possible cancer diagnosis. Delayed treatment has a significant impact on prognosis and survival of subsequent breast cancer. We will design a linguistically- and culturally-tailored digital tool that enhances the discussion between low-income and low-literate Latina patients by breaking down the information in clear and comprehensible ways to help the patients better understand what is being discussed and by removing communication barriers around literacy, numeracy, and education. Patients will also remember what is discussed as all the visual activity that occurs on the screen can be saved as an animation and shared with family members. The digital tool will also address the structural barriers encountered by low-income and low-literate Latina patients by providing an interactive module that connects patients to needed resources. Culturally- and linguistically-tailored communication between patient navigators and patients has the potential to have significant positive impact: increased level of breast cancer knowledge, a greater level of understanding and retention of what was discussed during the encounter, and a higher level of communication satisfaction with the peer navigator.

项目摘要 证据显示，患者与提供者沟通质量存在种族/民族差异 在乳腺癌患者中。卫生服务提供者缺乏沟通能力， 明确和文化能力的方式与拉丁裔乳腺癌患者。低收入 在接受异常癌症筛查结果后延迟随访的拉丁裔， 采取后续行动的障碍包括缺乏对向他们提供的关于下列问题的信息的理解： 他们的乳房X光检查结果和/或推荐的诊断程序，以及对 可能的癌症诊断。延误治疗对预后和生存有显著影响 随后的乳腺癌。 我们将设计一个语言和文化量身定制的数字工具， 低收入和低文化程度的拉丁裔患者之间的讨论，通过分解 以清晰和可理解的方式提供信息，以帮助患者更好地了解 通过消除围绕识字、算术和 教育患者还将记住所讨论的所有视觉活动， 屏幕可以保存为动画并与家庭成员共享。数字工具将 还解决了低收入和低识字率的拉丁美洲人遇到的结构性障碍， 通过提供一个互动模块，将患者与所需资源联系起来。 患者导航员和患者之间的文化和语言定制沟通 具有重大积极影响的潜力：提高乳腺癌知识水平， 更好地理解和保留会议期间讨论的内容， 与同行导航员的沟通满意度更高。