DIGITAL COMMUNICATIONS SUPPORT FOR RESEARCH PARTICIPANT/PATIENT ENGAGEMENT PROJECTS.

作为癌症登月计划的一部分，蓝丝带小组（BRP）建议建立一个具有广泛影响力和包容性的全国患者参与网络，以支持直接参与者的参与。 这一需求得到了“增强数据共享”和“患者直接参与网络”BRP工作组的认可。该网络的总体目标是吸引多样化的患者人群， 愿意分享他们的临床数据拟议网络的一个关键要求是向所有患者敞开大门，包括社会经济手段有限的患者，农村人口和其他医疗弱势群体 否则他们可能永远无法从研究中获益。 拟议的工作将有助于将各种参与者的参与努力与通信和公共联络办公室（OCPL）协调的NCI的通信和内容战略相结合， 确保所有参与者参与研究利用cancer.gov提供的现有数字存在和平台。此外，它将支持现有的参与工作，以及任何未来的NCI资助的研究， 与患者和潜在的研究参与者在线互动，使人们和癌症患者能够更好地了解参与癌症研究和试验的经历， 知情决定寻求参与癌症研究的机会。

As part of the Cancer Moonshot program, a Blue-Ribbon Panel (BRP) recommended the creation of a national patient participation network, with broad reach and inclusivity, to support direct participant engagement. This need is recognized under both the “Enhanced Data Sharing” and the “Network for Direct Patient Engagement” BRP Working Groups. The overall goal of this network is to engage a diverse patient population who would consent to share their clinical data. A key requirement of the proposed network is to open doors to all patients, including those with limited socioeconomic means, rural populations, and other medically disadvantaged groups who otherwise might never have access to benefits from research studies. The proposed work will help integrate various participant engagement efforts with NCI’s communication and content strategy as coordinated by the Office of Communications and Public Liaison (OCPL), ensuring that all participant engagement studies leverage the existing digital presence and platform provided by cancer.gov. Further, it will support the existing engagement efforts, as well as any future NCI-funded study that engages online with patients and potential research participants to enable people and cancer patients to better understand the experience of becoming and staying engaged as a participant in cancer research studies and trials and make informed decisions about pursuing opportunities to participate in cancer research.