NATIONAL INFORMATION RESOURCE ON ETHICS & HUMAN GENETICS

肯尼迪伦理研究所建议建立一个国家 关于伦理和人类遗传学的信息资源，将增强 研究所对ELSI问题的报道，补充了其目前的文件 收集并制作最新的书目信息和文件 可供广泛的用户使用。 为实现这些目标而采取的具体步骤包括 (1)创建书目数据库，名为未发布 与伦理学和人类遗传学研究有关的材料； 肯尼迪研究所的数据库在微型计算机上，并提供访问 任何希望通过传统个人搜索它的人的基因 计算机/调制解调器连接或通过互联网；(3)建立和增强 全国性的可公开获取的ELSI材料集合，这些材料是 单独编目，现场和远程均可随时使用 用户；(4)分发和更新关于遗传专题的三个范围说明 已经发表或正在筹备的人类基因组计划，基因 检测和基因筛查，以及人类基因治疗，并增加了第四个 关于优生学的范围说明；以及(5)出版和每年的参考工作和 题为《伦理与人类遗传学》的副刊书目。

The Kennedy Institute of Ethics proposes to establish a National Information Resource on Ethics & Human Genetics that will enhance the Institute's coverage of ELSI issues, augment its current document collection, and make up-to-date bibliographic information and documents available to a wide circle of users. Specific steps to be taken in implementing these goals include the following: (1) create a bibliographic database called unpublished materials pertinent to research in ethics and human genetics; 92) mount the database at the Kennedy Institute on a microcomputer and offer access to GENE to anyone wishing to search it via a traditional personal computer/modem connection or via the Internet; (3) establish and augment a national collection of publicly-available ELSI materials that are individually catalogued and readily available to both on-site and remote users; (4) distribute and update the three Scope Notes on genetic topics already published or in preparation on the human genome project, genetic testing and genetic screening, and human gene therapy and add a fourth Scope Note on eugenics; and (5) publish and annual reference work and supplements entitled Ethics and Human Genetics Bibliography.