Brain Waves: Accessing creative cultural activity for people living with brain injury through and beyond the Covid-19 pandemic.

脑电波：在 Covid-19 大流行期间及之后为脑损伤患者提供创意文化活动。

• 批准号: AH/V014870/1
• 负责人: Carmine M. Pariante
• 金额: $ 42.51万
• 依托单位: King's College London
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2020
• 资助国家: 英国
• 起止时间: 2020 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=AH%2FV014870%2F1
• 关键词: Brain; Waves; Accessing; creative; cultural

Brain Waves will investigate the impact of the radical shift in the delivery of creative cultural activities for people living with brain injury during Covid-19 pandemic/lockdown and also the ongoing, and likely long-lived, changes in social interactions. We aim to move towards online/digital delivery, and to incorporate social distancing. In particular it will focus on the needs of two cohorts of people:1. Patients recently discharged from hospital who, especially in the current context when community teams are less able to visit homes, fall between the cracks in terms of support.2. People who access arts interventions as an essential part of their healthcare and recovery pathway and for whom self-expression through the arts is a key aspect of their reimagined identity and wellbeing.It builds on the ground breaking work of Rosetta Life and partners through the Stroke Odysseys project, which itself is beginning the journey towards a delivery structure blending digital/online resources and face-to-face social distancing sessions and expands the benefits to other brain injuries including Parkinson's Disease, Dementia, Multiple Sclerosis and Motor Neuron Disease.The work will have peoples' voices at the heart of the enquiry: people living with brain injury, healthcare professionals and artists involved in their care, and volunteer Ambassadors (that is, people living with brain injury who have already engaged in Rosetta Life's work and who want to offer peer support for people beginning their journey of rebuilding their lives post brain injury). The project team brings together academics from a range of disciplines at King's College London, community investigators with expertise in performance, arts, healthcare and community engagement, and community partners (see below).We will ask the following research questions: What is the impact of digital and socially distanced engagement in creative cultural activities on the wellbeing of people living with brain injury? And how do these impacts compare with current live face-to-face engagement? What are the benefits/opportunities here for the people who can access this online but wouldn't otherwise be able to, and how can they be reached?How do we build community participation remotely, online and/or with social distancing in place? And how might this influence cultural programming? Do we need to rethink 'community' in general given the major shift to 'online'? Are there downsides i.e. can online sessions actually end up reinforcing loneliness the second they end and the participants alone again?Is it feasible to upscale this participatory work via online resources? And if not, what is needed to support online delivery in socially distanced cultural programming? And how might these resources support the role of the socially engaged artist?We will deliver:An arts intervention that supports access to and engagement in creative cultural activities for at least 20 people living with brain injury - some of the most vulnerable and isolated people in our communitiesA collaborative, key stakeholders partnership in the area of Kings Health Partners supporting the wellbeing of people living with brain injuryA set of online education training resources and a framework for artists, healthcare practitioners and the wider voluntary sector in order to test the potential for upscaling through socially distanced and online forums.A research report publishing findings and the implications for arts, healthcare and community engagement practiceA conference event which draws together the key people and learning, made available across the UK via live streaming and recording.

Brain Waves将调查在新冠肺炎大流行/封锁期间为脑损伤患者提供创意文化活动的根本转变的影响，以及社会互动中持续的，可能是长期的变化。我们的目标是走向在线/数字交付，并纳入社交距离。特别是，它将侧重于两类人的需求：1。最近出院的病人，特别是在目前社区工作队不太能家访的情况下，在支持方面处于夹缝之中。将艺术干预作为其医疗保健和康复途径的重要组成部分的人，以及通过艺术表达自我是他们重新想象身份和健康的关键方面的人。它建立在Rosetta Life和合作伙伴通过Stroke Odysseys项目的开创性工作基础上，它本身正在开始向融合数字/在线资源和面对面的交付结构迈进，面对社交距离会议，并扩大了其他脑损伤的好处，包括帕金森氏病，痴呆症，多发性硬化症和运动神经元疾病。这项工作将把人们的声音放在调查的核心：脑损伤患者、医疗保健专业人员和参与其护理的艺术家以及志愿大使（即那些已经参与Rosetta Life工作的脑损伤患者，以及那些希望为那些开始脑损伤后重建生活之旅的人提供同伴支持的人）。该项目团队汇集了来自伦敦国王学院多个学科的学者，在表演、艺术、医疗保健和社区参与方面具有专业知识的社区调查人员，以及社区合作伙伴（见下文）。我们将提出以下研究问题：数字化和社交距离参与创意文化活动对脑损伤患者的健康有何影响？这些影响与当前的现场面对面互动相比如何？对于那些可以在线访问但无法通过其他方式访问的人来说，这里有什么好处/机会，以及如何联系到他们？我们如何远程、在线和/或通过社交距离建立社区参与？这将如何影响文化节目？我们是否需要重新思考“社区”的主要转变，以“在线”？是否有不利的一面，即在线会议实际上会在结束的第二天加强孤独感，让参与者再次独处？通过在线资源扩大这种参与性工作是否可行？如果没有，需要什么来支持社交距离文化节目的在线交付？这些资源如何支持社会参与艺术家的角色？我们将提供：一项艺术干预措施，支持至少20名脑损伤患者--我们社区中一些最脆弱和最孤立的人--获得和参与创造性的文化活动在Kings Health Partners领域建立合作的主要利益相关者伙伴关系，支持脑损伤患者的福祉一套在线教育培训资源和一个框架，供艺术家、医疗保健从业者和更广泛的志愿者使用，以测试通过社交距离和在线论坛扩大规模的潜力。医疗保健和社区参与实践一个会议活动，汇集了关键人物和学习，通过直播和录制在英国各地提供。

项目成果

A Protocol to Understand the Implementation and Experiences of an Online Community-Based Performance Arts Programme Through and Beyond the COVID-19 Pandemic, Brain Waves.

• DOI: 10.3389/fresc.2022.793901
• 发表时间: 2022
• 期刊: FRONTIERS IN REHABILITATION SCIENCES
• 作者: Estevao, Carolina;Taylor, Elizabeth;Jarrett, Lucinda;Fort, Joseph;Murphy, Kevin;Woods, Anthony;Crane, Nikki;Fancourt, Daisy;Pariante, Carmine M.;Jones, Fiona
• 通讯作者: Jones, Fiona

Online singing interventions for postnatal depression in times of social isolation: a feasibility study protocol for the SHAPER-PNDO single-arm trial.

• DOI: 10.1186/s40814-022-01112-1
• 发表时间: 2022-07-18
• 期刊: PILOT AND FEASIBILITY STUDIES
• 影响因子: 1.7
• 作者: Bind, Rebecca H.;Estevao, Carolina;Fancourt, Daisy;Hazelgrove, Katie;Sawyer, Kristi;Rebecchini, Lavinia;Miller, Celeste;Dazzan, Paola;Sevdalis, Nick;Woods, Anthony;Crane, Nikki;Manoharan, Manonmani;Burton, Alexandra;Dye, Hannah;Osborn, Tim;Greenwood, Lorna;Bakolis, Ioannis;Lopez, Maria Baldellou;Davis, Rachel;Perkins, Rosie;Pariante, Carmine M.
• 通讯作者: Pariante, Carmine M.

Brain Waves: Accessing creative cultural activity for people living with brain injury through and beyond the COVID-19 pandemic. A protocol paper.

脑电波：在 COVID-19 大流行期间及之后为脑损伤患者提供创意文化活动。

• 发表时间: 2022
• 期刊: Frontiers in Rehabilitation Sciences, section Disability, Rehabilitation, and Inclusion
• 作者: Estevao C.

Evaluation of a community-based performance arts programme for people who have experienced stroke in the UK: protocol for the SHAPER-Stroke Odysseys study.

• DOI: 10.1136/bmjopen-2021-057805
• 发表时间: 2022-03-11
• 期刊: BMJ open
• 影响因子: 2.9
• 作者: Estevao C;Baldellou Lopez M;Davis RE;Jarret L;Soukup T;Bakolis I;Healey A;Harrington J;Woods A;Crane N;Jones F;Pariante C;Fancourt D;Sevdalis N
• 通讯作者: Sevdalis N