ENHANCING MEDICAL COMPLIANCE IN CYSTIC FIBROSIS PATIENTS

提高囊性纤维化患者的医疗依从性

• 批准号: 3348839
• 负责人: GERALD P KOOCHER
• 金额: $ 4.79万
• 依托单位: BOSTON CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 1986
• 资助国家: 美国
• 起止时间: 1986-09-01 至 1989-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/3348839
• 关键词: adolescence (12-20); behavioral medicine; cystic fibrosis; education evaluation /planning; health education; human subject; pediatrics; psychological tests; self care; therapy compliance; young adult human (21-34)

Our aim is to develop and test the effectiveness of an educational intervention designed to promote health and reduce morbidity in Cystic Fibrosis (CF) patients. Adherence to a well-formulated program of medical management can slow the progress of the disease, reduce complications, prolong the lives, and enhance the quality of life for CF patients. This demonstration and education research project is intended to Apply the critical incident technique to quantify the nature and incidence of compliance problems in the medical management of CF; to devise a pilot patient education program for adolescents and young adults with aimed at enhancing the compliance of participants with prescribed medical regimens for the disease; to develop the means to identify via psychological screening techniques individuals at risk for medical non-compliance in the population of CF patients; and to assess the effectiveness of the education program on medical compliance behaviors of CF patients (including both those deemed "compliant" and those deemed "non-compliant" prior to the intervention). During the first year, the critical incident methodology will be applied to the entire outpatient population of the CF clinic at Boston Children's Hospital. During the second year, 100 adolescent and young adult patients will be exposed to the intervention program developed and refined a year earlier. Patients will then be followed up six months later using observable measures of medical compliance, plus self-report, parental report and medical cost data.

我们的目标是开发和测试的有效性

项目成果

Perceptions of medical compliance in children and adolescents with cystic fibrosis.

对囊性纤维化儿童和青少年医疗依从性的看法。

• 发表时间: 1991
• 期刊: Journal of developmental and behavioral pediatrics : JDBP
• 作者: Gudas,LJ;Koocher,GP;Wypij,D
• 通讯作者: Wypij,D

Typologies of Nonadherence in Cystic Fibrosis

囊性纤维化不依从的类型

• 发表时间: 1990
• 期刊: Journal of Developmental and Behavioral Pediatrics
• 影响因子: 2.4
• 作者: G. Koocher;Melanie L. McGrath;L. J. Gudas
• 通讯作者: L. J. Gudas