ENHANCING MEDICAL COMPLIANCE IN CYSTIC FIBROSIS PATIENTS

我们的目标是开发和测试一种 旨在促进健康和减少 囊性纤维化（CF）患者的发病率。 遵守一 制定良好的医疗管理计划可以减缓 疾病的进展，减少并发症，延长 提高CF患者的生活质量。 这 示范和教育研究项目旨在 应用关键事件技术量化 医疗管理中的依从性问题发生率 设计一个试点病人教育计划， 青少年和年轻人，旨在加强 参与者遵守规定的医疗方案， 疾病;发展手段，以确定通过心理 筛查技术有医疗风险的个人 CF患者人群的不依从性;并评估 医学教育项目的有效性 CF患者的遵医行为（包括 被视为“合规”的和被视为“不合规”的 干预）。 在第一年，关键的 事件方法将应用于整个门诊 波士顿儿童医院CF诊所的人群。 在第二年，100名青少年和年轻成人患者 将接触到制定的干预计划， 一年前改进的。 患者将被随访6个月。 几个月后，使用可观察的医疗依从性测量， 加上自我报告父母报告和医疗费用数据

Our aim is to develop and test the effectiveness of an educational intervention designed to promote health and reduce morbidity in Cystic Fibrosis (CF) patients. Adherence to a well-formulated program of medical management can slow the progress of the disease, reduce complications, prolong the lives, and enhance the quality of life for CF patients. This demonstration and education research project is intended to Apply the critical incident technique to quantify the nature and incidence of compliance problems in the medical management of CF; to devise a pilot patient education program for adolescents and young adults with aimed at enhancing the compliance of participants with prescribed medical regimens for the disease; to develop the means to identify via psychological screening techniques individuals at risk for medical non-compliance in the population of CF patients; and to assess the effectiveness of the education program on medical compliance behaviors of CF patients (including both those deemed "compliant" and those deemed "non-compliant" prior to the intervention). During the first year, the critical incident methodology will be applied to the entire outpatient population of the CF clinic at Boston Children's Hospital. During the second year, 100 adolescent and young adult patients will be exposed to the intervention program developed and refined a year earlier. Patients will then be followed up six months later using observable measures of medical compliance, plus self-report, parental report and medical cost data.