ENHANCING MEDICAL COMPLIANCE IN CYSTIC FIBROSIS PATIENTS

我们的目标是开发和测试 旨在促进健康和减少 囊性纤维化患者的发病率。坚持 制定好的医疗管理方案可以延缓 延缓病情进展，减少并发症，延长病情 生活，并提高CF患者的生活质量。这 示范和教育研究项目旨在 应用关键事件技术对事故性质进行量化 医疗管理中依从性问题的发生率 设计了一项试点病人教育计划，以 青少年和青壮年旨在加强 参与者遵守下列处方医疗方案的情况 疾病；发展通过心理识别的手段 筛查技术有医疗风险的个人 慢性阻塞性肺疾病患者人群中的不依从性；并评估 医学教育项目的有效性 慢性萎缩性胃炎患者的遵医行为(包括 被认为是“符合”的，以及在之前被视为“不符合”的 干预)。在第一年，关键的 事件方法论将应用于整个门诊 波士顿儿童医院CF诊所的人口。 第二年，100名青少年和青壮年患者 将接触到制定和实施的干预计划 早在一年前就提炼了。然后将对患者进行六次随访 几个月后，使用可观察到的医疗依从性衡量标准， 加上自我报告、父母报告和医疗费用数据。

Our aim is to develop and test the effectiveness of an educational intervention designed to promote health and reduce morbidity in Cystic Fibrosis (CF) patients. Adherence to a well-formulated program of medical management can slow the progress of the disease, reduce complications, prolong the lives, and enhance the quality of life for CF patients. This demonstration and education research project is intended to Apply the critical incident technique to quantify the nature and incidence of compliance problems in the medical management of CF; to devise a pilot patient education program for adolescents and young adults with aimed at enhancing the compliance of participants with prescribed medical regimens for the disease; to develop the means to identify via psychological screening techniques individuals at risk for medical non-compliance in the population of CF patients; and to assess the effectiveness of the education program on medical compliance behaviors of CF patients (including both those deemed "compliant" and those deemed "non-compliant" prior to the intervention). During the first year, the critical incident methodology will be applied to the entire outpatient population of the CF clinic at Boston Children's Hospital. During the second year, 100 adolescent and young adult patients will be exposed to the intervention program developed and refined a year earlier. Patients will then be followed up six months later using observable measures of medical compliance, plus self-report, parental report and medical cost data.