GENETICS COUNSELING--ETHICS, VALUES, PROFESSIONALISM

遗传咨询——道德、价值观、专业精神

• 批准号: 3435492
• 负责人: ARTHUR Leonard CAPLAN
• 金额: $ 3.51万
• 依托单位: UNIVERSITY OF MINNESOTA
• 依托单位国家: 美国
• 财政年份: 1990
• 资助国家: 美国
• 起止时间: 1990-09-28 至 1992-03-27
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/3435492
• 关键词: ethics; genetic counseling; genome; meeting /conference /symposium; travel; workshop

(Adapted for the applicant's abstract) The applicant seeks funding for a project involving a meeting to be held in Minneapolis on April 19-20, 1991. The topic of the meeting is "Genetics Counseling: Ethics, Values and Professional Responsibilities." The meeting will be an invitation only "working conference" involving 12 experts from outside Minnesota and 5 persons from Minnesota who will present papers and engage in discussions with an interdisciplinary and interprofessional group of approximately 20 scholars and professionals. All but one of the non-Minnesota speakers and all of those from MInnesota have already agreed to prepare written papers and make presentations at the conference. Those making presentations have been selected on the basis of their expertise in studying the practice of genetics counseling or on the basis of their work in providing services. The local participants have been selected on the basis of their previous work in the area of clinical genetics or as a result of their expressed interest in conducting scholarly inquiry in the domain of genetics as part of future projects to be undertaken by the Center for Biomedical Ethnics. The overall objectives of the meeting are: (1) To identify the critically assess current normative stances in the field of genetic counseling; (2) To examine the nature and adequacy of the norms of "value neutrality" and "nondirectiveness" for the current and future practice of genetic counseling; (3) To help identify those issues in the practice of genetics counseling most likely to be affected by the Human Genome Project; (4) To present the best thinking about the current ethical issues in the field of genetics counseling to a "core" group of individuals at the University of Minnesota so that they will be in a better position to undertake a more systematic inquiry into these issues under the aegis of a long-term systematic study of the area; and (5) To produce a book of scholarly papers based on the conference which will help advance academic and public understanding of the ethical and value issues facing providers and patients in the area of genetic counseling.

（适用于申请人的摘要）申请人寻求资金 涉及将于4月19日至20日在明尼阿波利斯举行的会议的项目 1991年。会议的话题是“遗传学咨询：道德，价值观 和专业责任。”会议将是邀请 仅涉及来自明尼苏达州以外的12位专家的“工作会议”和 明尼苏达州的5个人将发表论文并进行讨论 大约20个跨学科和跨专业小组 学者和专业人士。 除非一位非明尼苏达州的演讲者和 明尼苏达州的所有这些都已经同意准备书面论文 并在会议上进行演讲。 那些进行演示的人是根据他们的 研究遗传学咨询的实践或基础上的专业知识 他们提供服务的工作。 当地参与者已经 根据他们以前在临床领域的工作 遗传学或由于他们对进行的表达兴趣的结果 作为未来项目的一部分，遗传学领域的学术询问 由生物医学种族中心承担。 会议的总体目标是： （1）确定关键评估当前的规范立场 遗传咨询领域； （2）检查 当前的“价值中立性”和“非方向性”的规范 遗传咨询的未来实践； （3）帮助识别这些问题 在遗传学咨询的实践中，最有可能受到 人类基因组项目； （4）提出有关电流的最佳思考 遗传学咨询领域的道德问题，向一个“核心”群体组成 明尼苏达大学的个人，以便他们进入 更好地对这些问题进行更系统的调查 在该地区的长期系统研究的宙斯盾下； （5）到 根据会议制作一本学术论文，这将有助于 提高学术和公众对道德和价值问题的理解 面对遗传咨询领域的提供者和患者。