GENETICS COUNSELING--ETHICS, VALUES, PROFESSIONALISM

(根据申请人的摘要改编)申请人寻求资助 项目涉及4月19-20日在明尼阿波利斯举行的一次会议， 1991年。会议的主题是“遗传咨询：伦理、价值观” 和职业责任。这次会议将是一次邀请 只有来自明尼苏达州以外的12名专家和 来自明尼苏达州的5人，他们将提交论文并参与讨论 拥有一个由大约20人组成的跨学科和跨专业小组 学者和专业人士。除了一名非明尼苏达州人外，所有人 所有来自明尼苏达州的人都已经同意准备书面报告 并在会议上发表演讲。 那些做演讲的人是根据他们的 研究遗传学咨询实践的专业知识或基础 他们在提供服务方面的工作。当地的参与者已经被 根据他们之前在临床领域的工作挑选出来的 或由于他们表示有兴趣进行 作为未来项目的一部分，在遗传学领域进行学术探索 由生物医学伦理学中心承担。 会议的总体目标是： (1)确定对现行规范立场进行批判性评估 遗传咨询领域；(2)检查遗传咨询的性质和充分性 当前和未来的“价值中立”和“非指向性”规范 未来的遗传咨询实践；(3)帮助识别这些问题 在遗传咨询的实践中最有可能受到 人类基因组计划；(4)呈现对当前最好的思考 遗传学咨询领域中的伦理问题 明尼苏达大学的个人，所以他们将在一个 更好地对这些问题进行更系统的调查 在对该地区进行长期系统研究的支持下；及 根据会议撰写一本学术论文书，这将有助于 促进学术和公众对道德和价值问题的理解 在遗传咨询领域面向提供者和患者。

(Adapted for the applicant's abstract) The applicant seeks funding for a project involving a meeting to be held in Minneapolis on April 19-20, 1991. The topic of the meeting is "Genetics Counseling: Ethics, Values and Professional Responsibilities." The meeting will be an invitation only "working conference" involving 12 experts from outside Minnesota and 5 persons from Minnesota who will present papers and engage in discussions with an interdisciplinary and interprofessional group of approximately 20 scholars and professionals. All but one of the non-Minnesota speakers and all of those from MInnesota have already agreed to prepare written papers and make presentations at the conference. Those making presentations have been selected on the basis of their expertise in studying the practice of genetics counseling or on the basis of their work in providing services. The local participants have been selected on the basis of their previous work in the area of clinical genetics or as a result of their expressed interest in conducting scholarly inquiry in the domain of genetics as part of future projects to be undertaken by the Center for Biomedical Ethnics. The overall objectives of the meeting are: (1) To identify the critically assess current normative stances in the field of genetic counseling; (2) To examine the nature and adequacy of the norms of "value neutrality" and "nondirectiveness" for the current and future practice of genetic counseling; (3) To help identify those issues in the practice of genetics counseling most likely to be affected by the Human Genome Project; (4) To present the best thinking about the current ethical issues in the field of genetics counseling to a "core" group of individuals at the University of Minnesota so that they will be in a better position to undertake a more systematic inquiry into these issues under the aegis of a long-term systematic study of the area; and (5) To produce a book of scholarly papers based on the conference which will help advance academic and public understanding of the ethical and value issues facing providers and patients in the area of genetic counseling.