GENETICS COUNSELING--ETHICS, VALUES, PROFESSIONALISM

遗传咨询——道德、价值观、专业精神

• 批准号: 3435492
• 负责人: ARTHUR Leonard CAPLAN
• 金额: $ 3.51万
• 依托单位: UNIVERSITY OF MINNESOTA
• 依托单位国家: 美国
• 财政年份: 1990
• 资助国家: 美国
• 起止时间: 1990-09-28 至 1992-03-27
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/3435492
• 关键词: ethics; genetic counseling; genome; meeting /conference /symposium; travel; workshop

(Adapted for the applicant's abstract) The applicant seeks funding for a project involving a meeting to be held in Minneapolis on April 19-20, 1991. The topic of the meeting is "Genetics Counseling: Ethics, Values and Professional Responsibilities." The meeting will be an invitation only "working conference" involving 12 experts from outside Minnesota and 5 persons from Minnesota who will present papers and engage in discussions with an interdisciplinary and interprofessional group of approximately 20 scholars and professionals. All but one of the non-Minnesota speakers and all of those from MInnesota have already agreed to prepare written papers and make presentations at the conference. Those making presentations have been selected on the basis of their expertise in studying the practice of genetics counseling or on the basis of their work in providing services. The local participants have been selected on the basis of their previous work in the area of clinical genetics or as a result of their expressed interest in conducting scholarly inquiry in the domain of genetics as part of future projects to be undertaken by the Center for Biomedical Ethnics. The overall objectives of the meeting are: (1) To identify the critically assess current normative stances in the field of genetic counseling; (2) To examine the nature and adequacy of the norms of "value neutrality" and "nondirectiveness" for the current and future practice of genetic counseling; (3) To help identify those issues in the practice of genetics counseling most likely to be affected by the Human Genome Project; (4) To present the best thinking about the current ethical issues in the field of genetics counseling to a "core" group of individuals at the University of Minnesota so that they will be in a better position to undertake a more systematic inquiry into these issues under the aegis of a long-term systematic study of the area; and (5) To produce a book of scholarly papers based on the conference which will help advance academic and public understanding of the ethical and value issues facing providers and patients in the area of genetic counseling.

（适用于申请人的摘要）申请人寻求资金， 该项目涉及4月19日至20日在明尼阿波利斯举行的一次会议， 1991. 会议的主题是“遗传咨询：伦理，价值观 和专业责任。“这次会议将是一次邀请， 唯一的“工作会议”，包括来自明尼苏达州以外的12名专家， 来自明尼苏达州的5人将提交论文并参与讨论 与一个跨学科和跨专业的小组约20 学者和专业人士。 除了一个非明尼苏达州的发言者， 所有来自明尼苏达州的人都已经同意准备书面文件， 并在会议上做演讲。 发言者是根据其 研究遗传咨询实践的专业知识或在此基础上 他们在提供服务方面的工作。 当地的参与者已经 根据他们以前在临床领域的工作选择 遗传学或由于他们表示有兴趣进行 作为未来项目的一部分， 由生物医学伦理学中心承担。 会议的总体目标是： (1)为了确定和批判性地评估目前的规范立场， （2）检查遗传咨询的性质和充分性; “价值中立”和“非指导性”的规范， 未来的遗传咨询实践;（3）帮助识别这些问题 在遗传咨询的实践中，最有可能受到 人类基因组计划;（4）提出当前最好的思考 在遗传咨询领域的伦理问题，以“核心”组的 在明尼苏达大学的个人，使他们将在一个 更有能力对这些问题进行更系统的调查 对该区进行长期而有系统的研究;及（5） 根据会议编写一本学术论文集，这将有所帮助 促进学术界和公众对道德和价值问题的理解 面对遗传咨询领域的提供者和患者。