MEASURES OF FAMILY CAREGIVER STRAIN AND SATISFACTION

提出的研究的总体目标是开发封闭的自我报告措施，照顾者的角色压力和满意度后的生活维持治疗决策的老年亲属在各种卫生保健设置。这项研究的长期目标是发展照顾者角色压力和满意度的措施，将有助于评估方法的充分性，以改善临终关怀。本研究的具体目的是：1)完善维持生命治疗决策后照顾者角色紧张和满意度的概念，获得维持生命治疗决策后照顾者角色紧张和满意度的概念，并获得项目措辞建议；2)为维持生命治疗决策后照顾者角色紧张和满意度测量的内容效度提供证据；3)对维持生命治疗决策后照顾者角色压力和满意度的新测量进行预测。本文的初步框架基于角色理论。对家庭作出维持生命治疗决定的经验进行的描述性研究表明，卫生保健提供者可以通过向家庭提供信息和支持来减轻决策过程及其后果。但是，没有现有的决策过程及其后果，通过向家庭提供信息和支持。然而，目前还没有工具可以测量照顾者在为老年亲属提供维持生命治疗决策时所经历的角色压力和满意度，也没有研究对这些照顾者提供信息和支持的策略进行评估。因此，本研究将着手解决这些研究和实践中的重要空白。

The overall goal of the proposed research is to develop close-ended self- report measures of caregiver role strain and satisfaction following life- sustaining treatments decisions for elderly relatives in a variety of health care settings. The long term goal of this proposed research is to develop measures of caregiver role strain and satisfaction will be useful in evaluating the adequacy of approaches to improve end-of-life care. Specific aims of the proposed research are: 1) to refine the conceptualization of caregiver role strain and satisfaction following life- sustaining treatments decision and obtained the conceptualization of caregiver role strain and satisfaction following life-sustaining treatments decisions and obtain suggestions for item wording; 2) to obtain evidence for content validity of the measures of caregiver role strain and satisfaction following life-sustaining treatment decisions; and 3) to pretest the new measures of caregiver role strain and satisfaction following life-sustaining treatments decisions. The preliminary framework is based on role theory. Descriptive studies of families' experiences of making life-sustaining treatment decisions suggest that health care providers can ease the decision-making process and its consequences by providing information and support to families. However, no existing decision-making process and its consequences by providing information and support to families. However, no existing instrument was found that measures the role strain and satisfaction experienced by caregivers making decisions about life-sustaining treatments for elderly relatives and no studies have been conducted evaluating strategies to provide information and support to these caregivers. Therefore, this study will begin to address these important gaps in research and practice.