MEASURES OF FAMILY CAREGIVER STRAIN AND SATISFACTION

这项拟议研究的总体目标是开发封闭式自我报告测量，以衡量在各种医疗保健环境中老年亲属做出维持生命治疗决定后，照顾者的角色、压力和满意度。这项拟议研究的长期目标是开发衡量照顾者角色、压力和满意度的指标，这将有助于评估改善临终关怀的方法的充分性。拟议研究的具体目的是：1)细化生命维持治疗决定后照顾者角色紧张和满意度的概念，并获得维持生命治疗决定后照顾者角色紧张和满意度的概念，并获得项目措辞的建议；2)获得照顾者角色紧张和维持生命治疗决定后满意度测量的内容效度的证据；以及3)预测维持生命治疗决定后照顾者角色紧张和满意度的新测量。初步框架以角色理论为基础。对家庭作出维持生命治疗决策的经验的描述性研究表明，卫生保健提供者可以通过向家庭提供信息和支持来简化决策过程及其后果。然而，没有任何现有的决策过程及其后果是通过向家庭提供信息和支助来实现的。然而，没有现有的工具来衡量照料者在为老年亲属的生命维持治疗作出决定时所经历的角色压力和满意度，也没有进行任何研究来评估向这些照顾者提供信息和支持的战略。因此，本研究将着手解决这些重要的研究和实践空白。

The overall goal of the proposed research is to develop close-ended self- report measures of caregiver role strain and satisfaction following life- sustaining treatments decisions for elderly relatives in a variety of health care settings. The long term goal of this proposed research is to develop measures of caregiver role strain and satisfaction will be useful in evaluating the adequacy of approaches to improve end-of-life care. Specific aims of the proposed research are: 1) to refine the conceptualization of caregiver role strain and satisfaction following life- sustaining treatments decision and obtained the conceptualization of caregiver role strain and satisfaction following life-sustaining treatments decisions and obtain suggestions for item wording; 2) to obtain evidence for content validity of the measures of caregiver role strain and satisfaction following life-sustaining treatment decisions; and 3) to pretest the new measures of caregiver role strain and satisfaction following life-sustaining treatments decisions. The preliminary framework is based on role theory. Descriptive studies of families' experiences of making life-sustaining treatment decisions suggest that health care providers can ease the decision-making process and its consequences by providing information and support to families. However, no existing decision-making process and its consequences by providing information and support to families. However, no existing instrument was found that measures the role strain and satisfaction experienced by caregivers making decisions about life-sustaining treatments for elderly relatives and no studies have been conducted evaluating strategies to provide information and support to these caregivers. Therefore, this study will begin to address these important gaps in research and practice.