Developing an adapted parent-youth teamwork intervention to improve medication adherence among adolescents with asthma: a feasibility study

制定适应性的家长-青少年团队合作干预措施，以提高哮喘青少年的药物依从性：一项可行性研究

• 批准号: MR/S019227/1
• 负责人: Pamela Rackow
• 金额: $ 14.68万
• 依托单位: University of Stirling
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2019
• 资助国家: 英国
• 起止时间: 2019 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=MR%2FS019227%2F1
• 关键词: Developing; adapted; parent; youth; teamwork

Asthma affects one in 11 children and adolescents in the UK and can have a major impact on adolescents' quality of life and their health care use. Daily use of an asthma preventer inhaler is the most effective way to reduce symptoms and allow children and adolescents to lead a normal life. Research studies have shown that adolescents in particular struggle with taking their inhaler medication regularly. Therefore, parental support for taking medication regularly is important. However, in this age group peer support becomes more and more critical. Thus, support from parents and peers can be used to help adolescents to take their medication regularly. There is currently no programme in the NHS to help parents and adolescents to take asthma medication regularly. We have identified a very promising parent-youth teamwork programme, developed and tested in the United States, that provide such support. This programme includes: (a) discussing learning materials and worksheets about reasons for taking asthma medication regularly, and about how important family communication is for taking medication; (b) using role play and problem-solving techniques to define the problem, find alternatives and solutions; (c) discussing the family's challenges associated with taking asthma medication regularly; and (d) formulating goals and realistic plans how to take asthma medication regularly. In this programme, electronic monitors (so-called smart inhalers) to be attached to the actual inhaler, were used to record if the preventer inhaler was used as prescribed. For the programme, parents and adolescents used these data to formulate their goals and actions plans. We propose to adapt this programme to the UK NHS context, and strengthen it by applying the latest research findings as well as input from adolescents, parents, and care providers. Importantly, we will develop and evaluate an additional novel component on peer support. To make this program sustainable within the UK NHS context, an asthma nurse will be delivering this programme. Therefore, we will develop a manual to efficiently train asthma nurses. After that, we will test the feasibility of this new programme with up to 10 adolescents and their parents to evaluate how it would be delivered in the UK NHS; and what adolescents, parents and care providers think about this new programme. The results of our study will pave the way to a larger scale intervention that may encourage adolescents to take their asthma medications regularly, help manage their asthma effectively, and improve their quality of life.

在英国，每11名儿童和青少年中就有1人患有哮喘，并可能对青少年的生活质量和医疗保健使用产生重大影响。每天使用哮喘预防吸入器是减轻症状并使儿童和青少年过上正常生活的最有效方法。研究表明，青少年尤其难以定期服用吸入器药物。因此，父母支持定期服药是很重要的。然而，在这个年龄段，同伴支持变得越来越重要。因此，父母和同伴的支持可以用来帮助青少年定期服药。目前，英国国家医疗服务体系中没有帮助父母和青少年定期服用哮喘药物的方案。我们已经确定了一个非常有前途的家长-青年团队合作方案，该方案在美国开发和测试，提供这种支持。该计划包括：(a)讨论定期服用哮喘药物的原因的学习材料和工作表，以及家庭沟通对服药的重要性；(b)使用角色扮演和解决问题的技巧来界定问题，寻找替代方案和解决方案；(c)讨论与定期服用哮喘药物有关的家庭挑战；(d)制定目标和现实的计划，如何定期服用哮喘药物。在这个程序中，电子监测器（所谓的智能吸入器）被连接到实际的吸入器上，用来记录防喷器吸入器是否按规定使用。在该方案中，家长和青少年利用这些数据制定目标和行动计划。我们建议使这个项目适应英国国民健康保险制度的背景，并通过应用最新的研究成果以及来自青少年、父母和护理提供者的投入来加强它。重要的是，我们将开发和评估同伴支持的另一个新组成部分。为了使这个项目在英国国民健康保险制度的背景下可持续发展，一名哮喘护士将提供这个项目。因此，我们将制定一份手册，以有效地培训哮喘护士。在那之后，我们将测试这个新项目的可行性，最多有10名青少年和他们的父母来评估它将如何在英国国民健康服务体系中实施；以及青少年、家长和护理人员对这个新项目的看法。我们的研究结果将为更大规模的干预铺平道路，这可能会鼓励青少年定期服用哮喘药物，帮助他们有效地控制哮喘，并提高他们的生活质量。