ESTABLISH THE NATIONAL EPIDEMIOLYSIS BULLOSA REGISTRY

建立国家大流行病缓解登记处

• 批准号: 2548962
• 负责人: VIRGINIA P SYBERT
• 金额: --
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 1992
• 资助国家: 美国
• 起止时间: 1992-07-01 至 1997-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/2548962
• 关键词: ESTABLISH; NATIONAL; EPIDEMIOLYSIS; BULLOSA; REGISTRY

The purpose of this contract is to continue a clinical site to be operated under the National Epidermolysis Bullosa Registry which is aimed at searching for the basic defect, improving methods of diagnosis, and developing effective methods in treatment and prevention of the disease. The clinical site-will be responsible for direct contact with E.B. patients and for their enrollment in the Registry. This will include standardized history, physical examination, general laboratory examination, and those specialized studies required for E.B. diagnosis. Determination of the studies required for the diagnosis of E.B. and its subgroups is the responsibility of the Contractor.

本合同的目的是继续运营临床中心 根据国家大疱性表皮松解症登记处，其目的是 寻找根本缺陷，改进诊断方法， 开发治疗和预防该疾病的有效方法。 临床中心将负责与 E.B. 直接联系。患者 以及在登记处登记。 这将包括标准化 病史、体格检查、一般实验室检查等 E.B. 所需的专业研究诊断。 测定 诊断 E.B. 所需的研究它的子群是 承包商的责任。

项目成果

Is cyproheptadine effective in the treatment of subjects with epidermolysis bullosa simplex-Dowling-Meara?

赛庚啶对治疗单纯性大疱性表皮松解症-道林-米拉患者有效吗？

• DOI: 10.1001/archderm.133.2.251
• 发表时间: 1997
• 期刊: Archives of dermatology
• 作者: Neufeld-Kaiser,W;Sybert,VP
• 通讯作者: Sybert,VP