FAMILY FUNCTION, STROKE RECOVRY, AND CAREGIVER OUTCOMES

家庭功能、中风恢复和护理人员的结果

• 批准号: 6529359
• 负责人: Patricia C Clark
• 金额: $ 15.2万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2000
• 资助国家: 美国
• 起止时间: 2000-09-30 至 2005-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6529359
• 关键词: behavior disorders; behavioral /social science research tag; caregivers; clinical research; clinical trials; data collection methodology /evaluation; depression; family structure /dynamics; fatigue; functional ability; gender difference; human subject; interview; longitudinal human study; memory disorders; mental health; outcomes research; patient care management; psychological stressor; quality of life; questionnaires; social support network; socioenvironment; stroke

Of the estimated four million stroke survivors in the United States, approximately 66% live with moderate to severe impairment. Family caregivers have a major role in stroke survivors' recovery including all aspects of rehabilitation; however, caregivers may experience negative psychological and physical outcomes including increased risk of mortality. The effects of factors such as family functioning and characteristics of the stroke survivor (e.g. memory and behavior problems) on caregiver outcomes and stroke survivors' physical recovery are not well understood. Because of the variable trajectory of the stroke recovery process, a prospective longitudinal design based on the strength-vulnerability model will be used to study outcomes in a sample of 170 caregiver-stroke survivor dyads during the first year post stroke. This innovative proposal is a complementary sub-study to a national clinical trial, "Extremity Constraint Induced Therapy Evaluation (EXCITE)" developed in response to RFA NR-4-00-003. The purposes of the sub-study are to: (1) determine relationships among family caregiver outcomes (depression, fatigue and overall health), family functioning, and stroke survivor physical function and memory/behavior problems over time, (2) determine predictors of caregiver outcomes approximately one year post-stroke, and (3) examine the interaction of family function and the EXCITE treatment group on stroke survivor functional recovery. Data will be collected at baseline (3-6 months post-stroke), and four and eight months later via in-person administration of questionnaires and a semi-structured interview. A cost-effective strategy will combine prospectively collected caregiver data with stroke survivor data collected for the EXCITE clinical trial. Identification of the most salient factors associated with caregiver depression, fatigue, and health status at different points in recovery is essential for future development and testing of interventions to improve outcomes of caregivers and stroke survivors.

美国估计有四百万中风幸存者 各州大约 66% 的人患有中度至重度损伤。家庭 护理人员在中风幸存者的康复中发挥着重要作用，包括所有 康复方面；然而，看护者可能会经历负面影响 心理和身体结果，包括死亡风险增加。这 家庭功能和中风特征等因素的影响 幸存者（例如记忆和行为问题）对护理人员结果和中风的影响 幸存者的身体恢复情况尚不清楚。因为变量 中风恢复过程的轨迹，前瞻性纵向设计 基于强度-脆弱性模型的将用于研究结果 170 名护理人员中风幸存者二人组在术后第一年的样本 中风。这项创新提案是国家一项研究的补充子研究 临床试验，“肢体约束诱导治疗评估（EXCITE）” 为响应 RFA NR-4-00-003 而开发。子研究的目的是： (1) 确定家庭照顾者结果之间的关系（抑郁、 疲劳和整体健康）、家庭功能和中风幸存者的身体状况 随着时间的推移，功能和记忆/行为问题，（2）确定预测因素 中风后大约一年的护理人员结果，以及 (3) 检查 家庭功能与 EXCITE 治疗组对中风的相互作用 幸存者功能恢复。将在基线（3-6 个月）收集数据 中风后），以及四个和八个月后通过亲自管理 问卷调查和半结构化访谈。具有成本效益的战略将 将前瞻性收集的护理人员数据与中风幸存者数据相结合 为 EXCITE 临床试验收集。识别最显着的 与护理人员抑郁、疲劳和健康状况相关的因素 恢复的不同点对于未来的开发和测试至关重要 改善护理人员和中风幸存者预后的干预措施。

项目成果

A comparison of working versus nonworking family caregivers of stroke survivors.

中风幸存者的工作家庭照顾者与非工作家庭照顾者的比较。

• DOI: 10.1097/01376517-200708000-00006
• 发表时间: 2007
• 期刊: The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses
• 作者: Ko,JeanY;Aycock,DawnM;Clark,PatriciaC
• 通讯作者: Clark,PatriciaC