ROUTES OF ACCESS TO GENETIC SERVICES FOR RURAL KY WOMEN

肯塔基州农村妇女获得遗传服务的途径

• 批准号: 6536468
• 负责人: Susan Elizabeth KELLY
• 金额: $ 7.2万
• 依托单位: UNIVERSITY OF LOUISVILLE
• 依托单位国家: 美国
• 财政年份: 2000
• 资助国家: 美国
• 起止时间: 2000-05-01 至 2003-10-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6536468
• 关键词: assistive reproductive technique; behavioral /social science research tag; case history; clinical research; culture; female; genetic counseling; genetic screening; health behavior; health care policy; health care service availability; health care service utilization; health services research tag; human population study; human subject; interview; medical outreach /case finding; medically underserved population; rural area; socioeconomics

DESCRIPTION (adapted from investigator's abstract) The purpose of the proposed project is to deepen empirical understanding of reproductive genetic services in rural areas, through a comparative case study of genetic counseling, testing, and related services among rural and urban residents of Kentucky. The study explicitly seeks to describe and analyze regional variation in experiences and uses of reproductive genetic services as linked to intersections of place, culture, and policy ("routes of access"). The study will address the following specific, inter-related aims: 1. To achieve a clearer understanding of how prenatal screening and genetic testing services are provided and experienced across socio-geographic regions of a substantially rural state. 2. To identify "routes of access" (determined by intersections among place, policy and culture) to reproductive genetic services in Kentucky. 3. To identify whether and how these routes of access may be affected by the dynamics of state policy concerning health, genetic services and pregnancy termination. 4. To examine through in-depth interviews with parents who have experienced the birth of a child with a severe genetic condition issues of access to, and perspectives on, reproductive genetic services, particularly for rural residents.

描述（改编自研究者摘要） 该项目的目的是深化经验 了解农村地区的生殖遗传服务， 遗传咨询、检测和相关服务的比较案例研究 在肯塔基州的城乡居民中。该研究明确寻求 描述和分析生殖健康经验和使用方面的区域差异 与地点、文化和政策交叉点相关的遗传服务 （“进入路线”）。研究将涉及以下具体问题， 相互关联的目标： 1.为了更清楚地了解产前筛查和遗传 在不同的社会地理区域提供和体验测试服务 一个基本上是农村的国家。 2.为了确定“进入路线”（由地点之间的交叉点确定， 政策和文化），以生殖遗传服务在肯塔基州。 3.确定这些通道是否以及如何受到 国家健康、遗传服务和怀孕政策的动态 终止 4.通过与经历过严重遗传病孩子出生的父母进行深入访谈，研究获得生殖遗传服务的机会和观点问题，特别是对农村居民。