CORE--STATISYICAL DATA ENCLAVE

核心——统计数据飞地

• 批准号: 6665540
• 负责人: DOUGLAS C EWBANK
• 金额: $ 21.7万
• 依托单位: UNIVERSITY OF PENNSYLVANIA
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-09-30 至 2003-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6665540
• 关键词: aging; behavioral /social science research tag; biomedical facility; human data; human population study; information systems; longitudinal human study; statistical service /center; statistics /biometry

DESCRIPTION: (adapted from the application): The value of many data sets important to the study of aging can be enhanced by combining individual respondent reports with data from various administrative sources. Among the surveys that provide this option are the National Long-term Care Survey (NLTCS), the Longitundial Surveys of Aging I and II (LSOA), the Health and Retirement Study (HRS), and the Asset and Health Dynamics Study (AHEAD). Administrative linkages are now possible with the Medicare Billings File (NLTCS, AHEAD, and LSOA-II), the Medicaid Billing File (NLTCS), and the Social Security Administration's Earnings and Benefits File (HRS and AHEAD), and Disability Claim data (AHEAD). Because the NLTCS, LSOA I and II, HRS, and AHEAD are all panel studies, cumulative respondent reports are also eventually merged with information abstracted from death certificates, usually with a linkage to the National Death Index (NDI). The value-added by these linkages comes at the expense of an increased risk of identifying individual respondents, potentially violating their privacy and confidentiality. To minimize these risks, the investigators who collect and distribute the survey data and the agencies that maintain administrative records have imposed access restrictions on the user community. These data use policies are in flux. Procedures governing access to the linked Social Security-HRS files are place, and similar access restrictions are expected for merged AHEAD-Social Security data as well. HCFA procedures governing access to files merging individual survey data from HRS/AHEAD with Medicare Claims files are under review. The LSOA and the NLTCS have established their own procedures for distribution of data to the research community. The overall goal of Core E is to encourage and guide the use of the richly detailed merged data sets now available while providing PARC with the expertise needed to accommodate forthcoming or changing access guidelines and new data files. The specific goals of this core are to: (1) develop in-house technical expertise to satisfy current and future restrictions on access to data files that include confidential information; (2) facilitate access of PARC associates to protected data files currently available; (3) educate PARC associates as to their obligations to comply with the terms of their access agreements; (4) monitor compliance of PARC associates with the terms of access to various files; and (5) maintain and expand in-house system expertise while simultaneously protecting restricted access files for multiple studies.

描述：（改编自应用程序）：许多数据集的价值 通过将个体结合起来，可以增强对衰老研究的重要作用 受访者报告中包含来自各种行政来源的数据。其中 提供此选项的调查是国家长期护理调查 (NLTCS)、老龄化纵向调查 I 和 II (LSOA)、健康和 退休研究 (HRS) 和资产与健康动态研究 (AHEAD)。 Administrative linkages are now possible with the Medicare Billings File （NLTCS、AHEAD 和 LSOA-II）、医疗补助账单文件 (NLTCS) 和社会 安全管理部门的收入和福利文件（HRS 和 AHEAD），以及 伤残索赔数据（提前）。因为 NLTCS、LSOA I 和 II、HRS 和 所有小组研究都在前面，累积受访者报告也最终 与从死亡证明中提取的信息合并，通常带有 与国家死亡指数（NDI）的联系。这些联系带来的附加值 其代价是增加识别个人身份的风险 受访者，可能侵犯他们的隐私和机密。到 收集和分发调查问卷的调查人员将这些风险降至最低 数据和维护行政记录的机构已强制访问 对用户社区的限制。 这些数据使用政策不断变化。管理访问链接的程序 已放置社会保障-HRS 文件，并且有类似的访问限制 预计合并的 AHEAD-社会保障数据也是如此。 HCFA程序 管理对文件的访问，将 HRS/AHEAD 的个人调查数据与 医疗保险索赔文件正在审查中。 LSOA 和 NLTCS 已 建立了自己的研究数据分发程序 社区。 Core E的总体目标是鼓励和引导丰富的资源的使用 详细的合并数据集现在可用，同时为 PARC 提供 适应即将出台或不断变化的准入指南所需的专业知识，以及 新的数据文件。该核心的具体目标是：（1）内部开发 满足当前和未来获取限制的技术专长 包含机密信息的数据文件； (2) 方便访问 PARC 关联到当前可用的受保护数据文件； (3) 教育帕洛阿尔托研究中心 员工遵守其访问条款的义务 协议； (4) 监督 PARC 员工遵守以下条款的情况 访问各种文件； (5) 维护和扩展内部系统 专业知识，同时保护多个受限访问文件 研究。