CHILD DISABILITY AND THE FAMILY

儿童残疾与家庭

• 批准号: 6521186
• 负责人: Dennis P. Hogan
• 金额: $ 26.36万
• 依托单位: BROWN UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 1999
• 资助国家: 美国
• 起止时间: 1999-04-12 至 2004-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6521186
• 关键词: adolescence (12-20); child (0-11); child behavior disorders; child psychology; child with disability; clinical research; cooperative study; education; family structure /dynamics; human population study; human subject; low birth weight infant human; method development; mother child interaction; parent offspring interaction; population survey; quality of life; rehabilitation; siblings; socioeconomics

This is a proposal for an interdisciplinary team from Brown University, led by Dennis Hogan, to join NICHD's Family and Child Well-Being Research Network to strength studies of child disability and the family. This team would contribute its focus on disability among school-age children: The measurement of disability among children, differentials in its antecedents and in medical services and rehabilitation inputs, and disabled but who have a disabled sibling, and for the parents of a disabled child. W make baseline comparisons with children and parents from families without child disability. The individual research plan focuses on identifying children with disability and measuring disability in order to investigate (a) its effects on the health, education, family, security, family stability and structure, and social development and problem behavior of all children, distinguishing between children with disability, siblings of children with disability, and children in families without child disability; and (b) the demographic and economic consequences for parents. The cooperative research plan focuses on methodological innovations to improve the measurement of disability among children and its dynamics in families. This includes two elements: (a) the collection of pilot data on the functioning and disability of a cohort of 90 very low birth weight babies at ages 3 and 5, to more satisfactorily address issues of selectivity and controls in medical studies of child disability and to develop improved methodologies to measure child disability in population surveys, including those in use in the Network; and (b) the merging of two secondary data sets to obtain maternal and family life histories, and thus to clarify the dynamics of maternal antecedents of child disability and maternal responses to child disability.

这是一个由丹尼斯·霍根领导的布朗大学跨学科小组的提议，该小组将加入NICHD的家庭和儿童福利研究网络，以加强对儿童残疾和家庭的研究。该小组将重点关注学龄儿童的残疾问题：儿童残疾的衡量、残疾前因、医疗服务和康复投入方面的差异、残疾但有残疾兄弟姐妹的儿童以及残疾儿童的父母。我们与来自无残疾儿童家庭的儿童和父母进行基线比较。个别研究计划的重点是确定残疾儿童和衡量残疾，以便调查（a）残疾对所有儿童的健康、教育、家庭、安全、家庭稳定和结构以及社会发展和问题行为的影响，区分残疾儿童、残疾儿童的兄弟姐妹和无残疾儿童家庭中的儿童;以及（B）对父母的人口和经济后果。合作研究计划的重点是方法创新，以改进儿童残疾情况的衡量及其在家庭中的动态。这包括两个要素：（a）收集关于90名3岁和5岁出生体重极低婴儿的功能和残疾情况的试点数据，以更令人满意地解决儿童残疾医学研究中的选择性和控制问题，并制定更好的方法，在人口调查中，包括在网络中使用的方法中衡量儿童残疾情况;和（B）合并两个二级数据集，以获得母亲和家庭生活史，从而澄清母亲儿童残疾的前因和母亲对儿童残疾的反应的动态。