NIH OSTEOPOROSIS & RELATED BONE DISEASES RESOURCE CENTER

美国国立卫生研究院骨质疏松症

• 批准号: 6534464
• 负责人: Bess Dawson-Hughes
• 金额: $ 60万
• 依托单位: NATIONAL OSTEOPOROSIS FOUNDATION
• 依托单位国家: 美国
• 财政年份: 1998
• 资助国家: 美国
• 起止时间: 1998-09-30 至 2003-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6534464
• 关键词: Internet; adolescence (12-20); biomedical registry /referral center; bone disorder; cooperative study; data collection; disease /disorder prevention /control; disease /disorder proneness /risk; female; health care model; health education; human subject; information dissemination; model design /development; osteoporosis

DESCRIPTION: (Taken from the Application) In 1993, Congress issued a mandate to increase awareness and knowledge about osteoporosis and related bone diseases. In response, the leading national nonprofit organizations in the field, the National Osteoporosis Foundation (NOF), The Paget Foundation (PF), and the Osteogenesis Imperfecta Foundation (OIF), were selected to establish the first national resource center in the field. In 1997, with 28 million Americans diagnosed or at risk for osteoporosis, 1.5 million painful fractures, $14 billion in health care costs, and millions affected by Paget's disease, osteogenesis imperfecta, and other related bone diseases, Congress renewed the Center's mandate. NOF and its collaborating partners propose to broaden and expand the reach of the current NIH Osteoporosis and Related Bone Diseases National Resource Center. Aim 1 focuses on strengthening the Center's infrastructure and broadening its services. Under the guidance of an Advisory Council, specific tasks include expanding the acquisition of research information and inquiry services; promoting the Center to physician and public audiences through exhibits, public service announcements and other means; and widely disseminating information via Web sites and other electronic methods, a speaker's bureau, and print publications such as bibliographies, fact sheets, and an expanded newsletter, to medical professionals, managed care organizations, and underserved and at-risk populations, including youth, men, and Hispanic and Asian American women. Aim 2 focuses on developing partnerships to create and evaluate a model education program to enhance bone health and reduce future risk of osteoporosis among a key group---adolescent females. The program will be based on a Center-sponsored communications study of the delivery of health promotion messages to this audience. Aim 3 is intended to expand awareness and use of research data. Specific efforts include supporting the National Osteoporosis Data Group, collecting and disseminating definitive statistics on bone diseases and on conditions co-morbid with osteoporosis, and preparing summary reports.

描述：（摘自申请）1993年，国会发布了一项 提高对骨质疏松症及相关疾病的认识和知识 骨疾病 作为回应，美国领先的全国性非营利组织 该领域，国家骨质疏松症基金会（NOF），佩吉特基金会 (PF)和成骨不全基金会（OIF）被选中， 建立该领域第一个国家资源中心。 1997年，28 100万美国人被诊断或有患骨质疏松症的风险，150万人患有骨质疏松症， 骨折，140亿美元的医疗保健费用，以及数百万受 佩吉特病、成骨不全和其它相关的骨疾病， 国会延长了该中心的授权。 NOF及其合作伙伴 建议扩大和扩大目前NIH骨质疏松症的范围， 相关骨疾病国家资源中心。 目标1侧重于 加强该中心的基础设施和扩大其服务。 在咨询理事会的指导下，具体任务包括扩大 获取研究信息和查询服务;促进 中心医生和公众观众通过展览，公共服务 公告和其他手段;以及通过网络广泛传播信息 网站和其他电子方法、发言人办公室和印刷品 出版物，如参考书目、情况说明书和扩展的 通讯，医疗专业人员，管理式护理组织，以及 服务不足和高危人群，包括青年、男性和西班牙裔， 亚裔美国女性 目标2侧重于发展合作伙伴关系，以创建 并评估一个示范教育计划，以提高骨骼健康和减少 未来骨质疏松症的风险在一个关键群体-青春期女性。 的 该计划将基于中心赞助的通信研究， 向这些受众传递健康促进信息。 目标3旨在 扩大对研究数据的认识和使用。 具体努力包括 支持国家骨质疏松症数据组，收集和 传播有关骨骼疾病和病症的确切统计数据 合并骨质疏松症，并准备总结报告。