Living well with multiple Long-Term Conditions: Interrogating young people's experiences of integrated care

多种长期疾病的良好生活：询问年轻人的综合护理经历

• 批准号: 2274900
• 金额: --
• 依托单位: University of Brighton
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2019
• 资助国家: 英国
• 起止时间: 2019 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-2274900
• 关键词: Living; well; multiple; Long; Term

Background:The voices of young people experiencing multiple long term conditions (LTCs) within integrated care models are rarely heard and when they are, satisfaction is reported as patchy. (NHS Digital 2018). There remains a significant gap in research concerning not only how young people with multiple LTCs experience integrated care systems, but how they are able (or not) to develop a strong Sense of Coherence.Aim:The research proposal aims to answer these research questions:Young people living with multiple long term conditions: What helps them to develop a Sense of Coherence in the face of several diagnoses and how could these dimensions be developed through individual capacity building and service remodelling?Method:This research will involve young adults with multiple LTCs as an advisory panel in the design of the research methodology. The research methodology will be qualitative and will involve two studies working through 3-4 GP practices. The first study will be an in-depth study of 25 young people aged 18-24 years living with more than one LTC. Using semi structured face-to-face interview techniques to identify key themes in response to the research questions. The second study will recruit 10 young people from each practice identified by GPs as managing their LTCs and, in groups using participatory methods, cross check emerging themes with a particular focus on developing our understanding of what has helped to develop their Sense of Coherence.

背景：在综合护理模式中，经历多种长期疾病（LTC）的年轻人的声音很少被听到，当他们听到时，满意度被报告为参差不齐。(NHS数字2018）。有仍然是一个显着的研究差距，不仅涉及如何与多个LTCs的年轻人的经验，综合护理系统，但他们如何能够（或不）发展一个强大的连贯性感。目的：研究提案旨在回答这些研究问题：年轻人生活与多种长期条件：什么帮助他们在面对几种诊断时发展一致性意识，以及如何通过个人能力建设发展这些方面和服务改造方法：本研究将涉及多个LTC的年轻人作为研究方法设计的顾问小组。研究方法将是定性的，将涉及两项研究，通过3-4 GP的做法。第一项研究将对25名年龄在18-24岁之间的年轻人进行深入研究，他们生活在一个以上的LTC中。使用半结构化面对面访谈技术来确定研究问题的关键主题。第二项研究将从全科医生确定的管理其LTC的每个实践中招募10名年轻人，并采用参与式方法分组，交叉检查新出现的主题，特别侧重于发展我们对有助于发展其一致性感的理解。