Living well with multiple Long-Term Conditions: Interrogating young people's experiences of integrated care

背景：在综合护理模式中经历多种长期疾病（LTCs）的年轻人的声音很少被听到，即使他们听到了，满意度也不一致。（NHS数字2018）。在研究中，不仅有多个ltc的年轻人如何体验综合护理系统，而且他们如何能够（或不能够）发展出强烈的连贯感，仍然存在重大差距。目的：本研究计划旨在回答以下研究问题：患有多种长期疾病的年轻人：面对多种诊断，是什么帮助他们发展连贯感？如何通过个人能力建设和服务重塑来发展这些维度？方法：本研究将涉及多个LTCs的年轻成年人作为研究方法设计的咨询小组。研究方法将是定性的，将涉及两项研究，通过3-4个GP实践。第一项研究将是对25名18-24岁的年轻人进行深入研究，他们生活在一个以上的LTC中。使用半结构化的面对面访谈技术来确定关键主题，以回应研究问题。第二项研究将从由全科医生确定的管理其ltc的每个实践中招募10名年轻人，并采用参与式方法分组，交叉检查新出现的主题，特别侧重于发展我们对帮助发展他们的连贯性感的理解。

Background:The voices of young people experiencing multiple long term conditions (LTCs) within integrated care models are rarely heard and when they are, satisfaction is reported as patchy. (NHS Digital 2018). There remains a significant gap in research concerning not only how young people with multiple LTCs experience integrated care systems, but how they are able (or not) to develop a strong Sense of Coherence.Aim:The research proposal aims to answer these research questions:Young people living with multiple long term conditions: What helps them to develop a Sense of Coherence in the face of several diagnoses and how could these dimensions be developed through individual capacity building and service remodelling?Method:This research will involve young adults with multiple LTCs as an advisory panel in the design of the research methodology. The research methodology will be qualitative and will involve two studies working through 3-4 GP practices. The first study will be an in-depth study of 25 young people aged 18-24 years living with more than one LTC. Using semi structured face-to-face interview techniques to identify key themes in response to the research questions. The second study will recruit 10 young people from each practice identified by GPs as managing their LTCs and, in groups using participatory methods, cross check emerging themes with a particular focus on developing our understanding of what has helped to develop their Sense of Coherence.