Understanding palliative and end of life care access within a health ecosystem: An examination of the issues facing providers and service users

了解健康生态系统内的姑息治疗和临终关怀服务：检查提供者和服务使用者面临的问题

• 批准号: 2284186
• 金额: --
• 依托单位: University of Liverpool
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2019
• 资助国家: 英国
• 起止时间: 2019 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-2284186
• 关键词: Understanding; palliative; end; life; care

Good palliative care improves quality-of-life for patients at the end of life, supports dying with dignity, and alleviates some family caregiver burden Moreover, place of death is related to quality-of-life, and the comfortable death of a loved one improves the wellbeing of the bereaved Demand for palliative care will rise: an ageing population coupled with increasing prevalence of non-communicable diseases means annual deaths in England and Wales will increase by 27% by 20403. At the same time, the trend towards smaller and more fragmented families will lead to fewer familial caregivers changing the current place of death distribution pattern Yet, only a miniscule proportion of healthcare research focuses on palliative care and more than one thirdof health and wellbeing boards do not consider the needs of dying people when assessing the requirements of their local populations. It is perhaps unsurprising then that there is a struggle to meet the demands of adequate, let alone high-quality, palliative care, with 1 in 4 UK families unable to access the end of life care they need

良好的临终关怀提高了临终病人的生活质量，支持有尊严地死去，并减轻了一些家庭照顾者的负担。此外，死亡地点与生活质量有关，亲人的舒适死亡改善了失去亲人的人的福祉。对临终关怀的需求将会上升：人口老龄化加上非传染性疾病的流行意味着到20403，英格兰和威尔士的年死亡人数将增加27%。与此同时，家庭越来越小和越来越分散的趋势将导致更少的家庭照顾者改变目前的死亡地点分布模式，只有极小比例的医疗研究专注于姑息治疗，超过三分之一的健康和福祉委员会在评估当地人口的需求时没有考虑垂死人的需求。因此，在四分之一的英国家庭无法获得他们需要的临终关怀的情况下，难以满足足够的需求，更不用说高质量的姑息治疗了，这或许就不足为奇了