Eye Disease in Cuban-American and Puerto Rican Adults

描述（由申请人提供）：西班牙裔代表了美国增长最快的少数群体。虽然存在关于美国非西班牙裔白人和非洲裔美国人视力障碍和眼病的程度和原因的基于人口的数据，西班牙裔美国人的数据仍然有限。此外，几乎所有这些研究都集中在墨西哥裔美国人身上。虽然西班牙裔有着共同的语言，但西班牙裔亚组在遗传学、社会人口统计学、文化适应、健康行为和获得医疗保健方面各不相同。 这项规划补助金的目的是调查大规模、以人口为基础的流行病学调查的可行性，以确定佛罗里达迈阿密-戴德县古巴裔美国人和波多黎各波多黎各人中年龄在40岁及以上的社区居住成年人视力障碍和眼病的病因流行率。这项规划补助金的具体目标是： 1)从一个以古巴人为主的人口普查区获得迈阿密社区居住的200名拉美裔人的人口样本，并研究在巴斯科姆帕尔默眼科研究所进行的面对面家庭访谈和眼科检查的应答率，并评估所收集数据的质量（例如眼底照片的分级性）; 2)在圣胡安招募100名波多黎各人的便利样本，以评估从波多黎各大学的面对面访谈和眼科检查中收集的数据的质量; 3)与社区领袖建立伙伴关系，以最大限度地支持大规模研究;以及 4)为大规模调查编制一份《程序手册》。数据的收集方式类似于洛杉矶拉丁美洲人眼科研究，该研究是由NEI资助的墨西哥裔美国人中正在进行的基于人群的视力障碍和眼病研究。家庭访谈将包括卫生服务使用，一般健康，眼病史，健康保险，烟草和酒精的使用，文化适应和社会经济地位。每例受试者还将接受完整的散瞳眼科检查和临床访谈，评估健康和视力相关的生活质量（例如NEI-VFQ 25）和眼科服务使用情况。拒绝的受试者将被询问拒绝的原因。

DESCRIPTION (provided by applicant): Hispanics represent the fastest-growing minority group in the United States. While population-based data exist on the magnitude and causes of visual impairment and ocular disease in non-Hispanic Whites and African-Americans in the U.S., data among Hispanics remain limited. Further, virtually all of this research has focused on Mexican-Americans. Although Hispanics share a common language, Hispanic subgroups vary with respect to genetics, sociodemographics, acculturation, health behaviors, and access to health care. The objective of this planning grant is to investigate the feasibility of a large-scale, population-based epidemiologic survey to determine the cause-specific prevalence rates of visual impairment and ocular disease among community-residing adults aged 40 years and older among Cuban-Americans in Miami-Dade County , Florida and Puerto Ricans in Puerto Rico. Specific aims of this planning grant are to: 1) obtain a population-based sample of 200 community-residing Hispanics in Miami from a predominantly Cuban census tract and study the response rates to an in-person household interview and an ophthalmologic examination at Bascom Palmer Eye Institute, and to assess the quality of data collected (e.g. gradability of fundus photographs); 2) enroll a convenience sample of 100 Puerto Ricans in San Juan to assess the quality of data collected from in-person interviews and ophthalmologic examinations at the University of Puerto Rico; 3) establish partnerships with community leaders to maximize support for the large-scale study; and 4) develop a Manual of Procedures for the large-scale survey. Data will be collected in a fashion similar to the Los Angeles Latino Eye Study, the ongoing population-based study of visual impairment and ocular disease among Mexican-Americans funded by the NEI. The household interview will include health service use, general health, ocular history, health insurance, tobacco and alcohol use, acculturation and socioeconomic status. Each subject will also undergo a complete dilated ophthalmologic examination and a clinic interview assessing health- and vision-related quality of life (e.g. NEI-VFQ 25) and eye service use. Subjects who refuse will be questioned as to reason(s) for refusal.