Eye Disease in Cuban-American and Puerto Rican Adults

描述(由申请者提供)：拉美裔是美国增长最快的少数群体。虽然美国非西班牙裔白人和非裔美国人的视力障碍和眼病的程度和原因存在基于人口的数据，但拉美裔美国人的数据仍然有限。此外，几乎所有的研究都集中在墨西哥裔美国人身上。尽管拉美裔拥有共同的语言，但拉美裔亚群在遗传学、社会人口统计学、文化适应、健康行为和获得医疗保健方面存在差异。 这笔规划赠款的目的是调查大规模、以人口为基础的流行病学调查的可行性，以确定佛罗里达州迈阿密-戴德县的古巴裔美国人和波多黎各的波多黎各人中40岁及以上社区居民中视力损害和眼病的特定原因流行率。这笔规划拨款的具体目的是： 1)从以古巴人为主的人口普查区域获取迈阿密200名居住在社区的拉美裔人的人口样本，研究对巴斯科姆·帕尔默眼科研究所的当面家庭访谈和眼科检查的回复率，并评估所收集数据的质量(例如眼底照片的可分级程度)； 2)在圣胡安登记100名波多黎各人的便利样本，以评估从波多黎各大学的面谈和眼科检查中收集的数据质量； 3)与社区领袖建立伙伴关系，最大限度地支持这项大规模研究；以及 4)制定大规模调查程序手册。收集数据的方式将类似于洛杉矶拉丁裔眼睛研究，这是由NEI资助的正在进行的墨西哥裔美国人视力障碍和眼病的基于人群的研究。家庭访谈将包括卫生服务使用、一般健康状况、眼科病史、医疗保险、烟酒使用、文化适应和社会经济地位。每个受试者还将接受全面的扩大眼科检查和临床访谈，评估与健康和视力相关的生活质量(例如，NEI-VFQ 25)和眼科服务使用情况。拒绝的受试者将被询问拒绝的理由(S)。

DESCRIPTION (provided by applicant): Hispanics represent the fastest-growing minority group in the United States. While population-based data exist on the magnitude and causes of visual impairment and ocular disease in non-Hispanic Whites and African-Americans in the U.S., data among Hispanics remain limited. Further, virtually all of this research has focused on Mexican-Americans. Although Hispanics share a common language, Hispanic subgroups vary with respect to genetics, sociodemographics, acculturation, health behaviors, and access to health care. The objective of this planning grant is to investigate the feasibility of a large-scale, population-based epidemiologic survey to determine the cause-specific prevalence rates of visual impairment and ocular disease among community-residing adults aged 40 years and older among Cuban-Americans in Miami-Dade County , Florida and Puerto Ricans in Puerto Rico. Specific aims of this planning grant are to: 1) obtain a population-based sample of 200 community-residing Hispanics in Miami from a predominantly Cuban census tract and study the response rates to an in-person household interview and an ophthalmologic examination at Bascom Palmer Eye Institute, and to assess the quality of data collected (e.g. gradability of fundus photographs); 2) enroll a convenience sample of 100 Puerto Ricans in San Juan to assess the quality of data collected from in-person interviews and ophthalmologic examinations at the University of Puerto Rico; 3) establish partnerships with community leaders to maximize support for the large-scale study; and 4) develop a Manual of Procedures for the large-scale survey. Data will be collected in a fashion similar to the Los Angeles Latino Eye Study, the ongoing population-based study of visual impairment and ocular disease among Mexican-Americans funded by the NEI. The household interview will include health service use, general health, ocular history, health insurance, tobacco and alcohol use, acculturation and socioeconomic status. Each subject will also undergo a complete dilated ophthalmologic examination and a clinic interview assessing health- and vision-related quality of life (e.g. NEI-VFQ 25) and eye service use. Subjects who refuse will be questioned as to reason(s) for refusal.