The development of a Core Outcome Set for evaluating the impact of Relationships and Sex Education with children with intellectual disability

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From September 2020, Relationships and Sex Education (RSE) will be compulsory in schools in Englandfor all pupils including those with intellectual disability (ID). Pupils with ID are twice as likely toexperience unintended pregnancies and sexual abuse compared to the general population. Yet little isknown on how to deliver RSE for ID, what its aims and objectives should be, or what effective RSEactually means. There is thus an urgent need to identify the important outcomes of RSE for ID. I proposeto do so by developing a 'Core Outcome Set' (COS); I will engage key stakeholders and identify what theythink RSE for ID should be achieving and therefore what should be measured after its delivery. I willundertake: 1) a systematic search of the literature looking for any outcome measures currently used withRSE for ID 2) workshops with key stakeholders (pupils with ID, parents, teachers, school staff,policymakers and expert researchers) to gather potential outcomes that are meaningful for each group;3) an online survey and if needed a final workshop, to reach consensus on the COS content acrossstakeholders; 4) exploration of whether the identified COS is usable with pupils with ID in a busy schoolenvironment. My PhD will contribute a significant first step in the successful implementation, evaluationand sustainability of RSE for education settings. Pupils with ID for the first time will be involved in thedevelopment of COS making sure their needs and opinions are incorporated in the RSE.