The development of a Core Outcome Set for evaluating the impact of Relationships and Sex Education with children with intellectual disability

从2020年9月起，关系和性教育（RSE）将成为英格兰所有学生的必修课，包括智障学生。与普通人群相比，ID学生经历意外怀孕和性虐待的可能性是普通人群的两倍。然而，人们对如何为ID提供RSE知之甚少，其目的和目标应该是什么，或者有效的RSE实际上意味着什么。因此，迫切需要确定RSE for ID的重要成果。我建议通过制定“核心成果集”（COS）来实现这一目标;我将与关键利益相关者合作，确定他们认为RSE for ID应该实现的目标，以及交付后应该衡量的目标。我将承诺：1）对文献进行系统检索，寻找目前与RSE一起使用的任何结果指标，用于ID 2）与关键利益相关者的研讨会（3）进行在线调查，如有必要，还举办最后一次研讨会，以便各利益攸关方就儿童行为标准的内容达成共识; 4）探索在忙碌的学校环境中，所识别的COS是否可用于具有ID的学生。我的博士学位将有助于在成功实施，评估和可持续性的RSE教育环境的重要的第一步。首次患有智障的学生将参与COS的开发，确保他们的需求和意见被纳入RSE。

From September 2020, Relationships and Sex Education (RSE) will be compulsory in schools in Englandfor all pupils including those with intellectual disability (ID). Pupils with ID are twice as likely toexperience unintended pregnancies and sexual abuse compared to the general population. Yet little isknown on how to deliver RSE for ID, what its aims and objectives should be, or what effective RSEactually means. There is thus an urgent need to identify the important outcomes of RSE for ID. I proposeto do so by developing a 'Core Outcome Set' (COS); I will engage key stakeholders and identify what theythink RSE for ID should be achieving and therefore what should be measured after its delivery. I willundertake: 1) a systematic search of the literature looking for any outcome measures currently used withRSE for ID 2) workshops with key stakeholders (pupils with ID, parents, teachers, school staff,policymakers and expert researchers) to gather potential outcomes that are meaningful for each group;3) an online survey and if needed a final workshop, to reach consensus on the COS content acrossstakeholders; 4) exploration of whether the identified COS is usable with pupils with ID in a busy schoolenvironment. My PhD will contribute a significant first step in the successful implementation, evaluationand sustainability of RSE for education settings. Pupils with ID for the first time will be involved in thedevelopment of COS making sure their needs and opinions are incorporated in the RSE.