An interdisciplinary exploration of digital health technology for sufferers of Type 1 Diabetes

本研究项目将探索和阐明数字健康技术与1型糖尿病患者生活体验之间的关系。数字移动医疗技术（如恒定血糖监测仪（CGM）和胰岛素泵）的普及彻底改变了1型糖尿病患者的护理条件，以更好地调节血糖水平和潜在降低糖化血红蛋白水平的形式，在很大程度上改善了健康结果，延长了寿命，延缓了由该疾病引起的合并症的发展。在临床结果之外，需要进行更深入的社会学调查，以了解通过皮下传感器、算法和接口增强、调解和定义存在状态的技术的可能性，以及新近出现的残疾人/受损自我的主体性。遵循女权主义科学与技术研究、数字文化研究和残疾研究的传统，我将在一项对1型糖尿病患者的人种志观察研究中应用批判的社会理论和技术哲学，这些患者既是残疾人，又是依赖于算法解释和基于界面的身体状况表示的用户。我的研究主要集中在三个支柱上：作为技术混合体的受损/残疾自我，作为了解、解释和表达存在的亲密状态的手段的界面和算法，以及作为残疾/受损技术中介存在的导航规范世界的复杂性。身体症状是可简化的、量化的和形式化的，成为大数据时代医疗保健政治经济数据流的一部分。这个项目代表了我对技术数据和自我之间的交叉点的研究兴趣，以及我照顾1型糖尿病儿童的个人经历，对他来说，算法技术和身体增强正在塑造他对自己的状况和身体自我的早期感知和理解。该研究由1+3 ESRC DTP学生资助，从2020年10月开始，并获得ESRC DTP社会科学研究硕士学位。该博士研究项目将在华威大学跨学科研究中心进行，由Nerea Calvillo博士和Michael Dieter博士监督。在我之前的学术经历中，我获得了伍尔弗汉普顿大学广播与新闻学学士学位，以及华威大学数字文化硕士学位。

This research project will explore and elucidate the relationship between digital health technologies and the lived experience of sufferers of Type 1 Diabetes. The proliferation of digital mobile health technologies such as Constant Glucose Monitors (CGM) and Insulin Pumps has revolutionised care conditions for Type 1 Diabetes patients, leading to largely improved health outcomes in the form of better regulated blood glucose levels and potential reduction in Hba1C levels, prolonging life and deferring the development of comorbidities arising from the condition. Outside of clinical outcomes, deeper sociological investigation is required to understand the eventualities of technologies that augment, mediate and define states of being through subdermal sensors, algorithms and interfaces, and the newly emerging subjectivities of the disabled/impaired self.Following the traditions of Feminist Science and Technology Studies, Digital Cultural Studies and Disability Studies, I will apply critical social theory and philosophies of technology within an ethnographic observational study of Type 1 Diabetes Patients as both a person living with disability, and a user that relies on algorithmic interpretation and interface-based representations of the conditions of their body.Predominantly, my research focuses on the three pillars: The impaired/disabled self as technological hybrid, the interface and algorithm as a means to know, interpret and express intimate states of being, and the complexities of navigating the normative world as a disabled/impaired technologically mediated being. Physical symptoms are reducible, quantified and formalised, becoming part of the dataflow within the political economy of healthcare in the age of big data. The project represents a convergence of my research interest in the intersections between technology data and the self, and my personal experiences caring for a child with Type 1 Diabetes, for whom algorithmic technologies and bodily augmentations are shaping his early perception and understanding of his condition and physical self. The research is funded via a 1+3 ESRC DTP studentship commencing in October 2020 with an ESRC DTP Masters in Social Science Research. The PhD research project will be undertaken within the Centre for Interdisciplinary Studies at the University of Warwick, supervised by Dr Nerea Calvillo, and Dr Michael Dieter. In my previous academic experience, I have achieved a BA in Broadcasting and Journalism from the University of Wolverhampton, and an MA in Digital Culture from the University of Warwick.