Context for Filipino CB Cleft Prevention Interventions

描述（由申请人提供）：本提案的目的是在菲律宾规划以社区为基础的（CB）干预措施之前获得背景数据，旨在告知人们有关原因并预防口面裂。在菲律宾，每500个活产婴儿中就有1个患有唇腭裂或腭裂。这里有一个高流行率的裂缝和治疗是有限的或不可用。人类学报告将亚洲人对疾病原因的信仰描述为超自然的。如果菲律宾人持有这种信念，那么与他们对原因和预防的理解不一致的干预措施可能不会被接受。因此，一个民族志研究是必要的，以描述态度和信念的原因，预防和治疗的裂缝。使用解释性模型框架，定性方法将被用来描述目前的信念的原因，预防和治疗orofacial裂，并愿意参加预防试验orofacial裂菲律宾人和卫生保健工作者。深入访谈将与唇腭裂患者或唇腭裂儿童、非唇腭裂患者或唇腭裂儿童以及菲律宾卫生工作者进行。访谈将按大类进行编码。将为大类下分组的数据分配更具体的描述性子代码。将根据各组内和三组间的主题或概念对数据进行分析。

DESCRIPTION (provided by applicant): The purpose of this proposal is to obtain contextual data prior to planning for community-based (CB) interventions in the Philippines aimed at informing people about causes and preventing orofacial clefting. In the Philippines, 1/500 live born children will have a cleft lip with or without a cleft palate. Here there is a high prevalence of clefting and treatment is limited or unavailable. Anthropological reports describe Asian beliefs about the cause of illness as supernatural. If Filipinos hold this belief then interventions inconsistent with their understanding of cause and prevention may not be accepted. Therefore, an ethnographic study is warranted to describe attitudes and beliefs regarding the cause, prevention and treatment of clefting. Using an explanatory models framework, qualitative methods will be used to describe current beliefs about the causes, prevention and treatment of orofacial clefting, and willingness to participate in prevention trials of orofacial clefts among Filipinos and health care workers. In-depth interviews will be conducted with people who have a cleft or child with cleft, people who neither have cleft or children with cleft, and Filipino health workers. Interviews will be coded for broad categories. More specific descriptive sub-codes will be assigned to the data grouped under the broad categories. Data will be analyzed for regularities in terms of themes or concepts within each group and across the three groups.