Patients' experience with eczema self-management tools and the use of digital twin technology for disease representation to better understand and enga

关键目标-了解数字技术如何支持湿疹患者（自我管理），以及再现如何提高他们对病情的理解，以便能够控制病情。研究问题-数字技术是否可以支持湿疹患者自我管理？现有的数字化工具中是否存在可以填补的空白？（了解患者需求并可能开发新工具。患者是否了解他们的病情（湿疹），如果不了解，使用工具来表示他们的病情是否有助于他们更好地了解病情并使他们能够管理病情？患者是否认为湿疹是一种残疾？如果是，它们是否得到政府机构的支持？如果没有，我们如何告知决策者改变他们对残疾构成的立场？精准医疗，例如使用虚拟表示工具（数字孪生）支持患者，以更好地了解他们的病情和护理。还需要用于湿疹自我管理的经验证和监管的交互式数字化工具。

Key Objectives - To understand how digital technology can support patients with eczema (self-management) and how representation can improve their understanding of the condition to be able to take control of it. Research question - Whether digital technology can support patients in self-managing eczema? Are there any gaps in the available digital tools that could be filled? (Understanding patient needs and potentially developing a new tool. Do patients understand their condition (eczema) and if not, would using tools to represent their condition help them better understand it and empower them to manage it? Do patients perceive eczema as a disability? If so, do they have support available from government bodies? If not, how can we inform policy makers to change their stance on what constitutes a disability? Precision medicine, such as supporting patients with a virtual representation tool (digital twin) to better engage with their condition and care. There is also a need for validated and regulated interactive digital tools for eczema self-management.