Patients' experience with eczema self-management tools and the use of digital twin technology for disease representation to better understand and enga

患者使用湿疹自我管理工具的经验以及使用数字孪生技术进行疾病表征，以更好地理解和参与

• 批准号: 2733380
• 金额: --
• 依托单位: University of Bristol
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2022
• 资助国家: 英国
• 起止时间: 2022 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-2733380
• 关键词: Patients; experience; eczema; self; management

Key Objectives - To understand how digital technology can support patients with eczema (self-management) and how representation can improve their understanding of the condition to be able to take control of it. Research question - Whether digital technology can support patients in self-managing eczema? Are there any gaps in the available digital tools that could be filled? (Understanding patient needs and potentially developing a new tool. Do patients understand their condition (eczema) and if not, would using tools to represent their condition help them better understand it and empower them to manage it? Do patients perceive eczema as a disability? If so, do they have support available from government bodies? If not, how can we inform policy makers to change their stance on what constitutes a disability? Precision medicine, such as supporting patients with a virtual representation tool (digital twin) to better engage with their condition and care. There is also a need for validated and regulated interactive digital tools for eczema self-management.

主要目标-了解数字技术如何支持湿疹患者（自我管理），以及代表如何提高他们对病情的理解，从而能够控制病情。研究问题-数字技术是否可以帮助患者自我管理湿疹？在可用的数字工具中是否存在可以填补的空白？(了解病人的需求，并可能开发一种新工具。患者是否了解他们的状况（湿疹），如果不了解，使用工具来代表他们的状况是否有助于他们更好地了解并赋予他们管理湿疹的权力？患者是否认为湿疹是一种残疾？如果有，他们是否能得到政府机构的支持？如果不是，我们如何通知决策者改变他们对什么是残疾的立场？精准医疗，例如为患者提供虚拟表示工具（数字孪生），以更好地了解他们的病情和护理。还需要验证和规范的交互式数字工具，用于湿疹自我管理。