California Monitoring Early Childhood Autism (CA-MECA)

加州儿童早期自闭症监测 (CA-MECA)

• 批准号: 7167887
• 负责人: JUDITH K. GRETHER
• 金额: $ 12.5万
• 依托单位: IMPACT ASSESSMENT, INC.
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-09-01 至 2007-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7167887
• 关键词: autism; behavioral /social science research tag; clinical research; cooperative study; data collection methodology /evaluation; early diagnosis; human data; infant human (0-1 year); medical records; mental disorder diagnosis; mental health epidemiology; preschool child (1-5)

DESCRIPTION (provided by applicant): In response to CDC-RFA-DD06-001 (Developing Methodologies to Determine the Prevalence of Autism Spectrum Disorders in Early Childhood...Populations), we propose a California Monitoring of Early Childhood Autism (CA-MECA) project under the leadership of the California Department of Health Services (DHS) and in partnership with Kaiser Permanente of Northern California (KPNC)and multiple health and education providers in Santa Clara County, California, a large, multi-cultural community with almost 100,000 children <4 years of age. The goal of this 12-month project is to develop a plan for a multi-source population-based Autism Spectrum Disorders (ASD) surveillance system for children <4 years of age and increase public awareness and participation in ASD early recognition efforts. With the help of local Regional Centers for the Developmentally Disabled, the local public health department, special education department, medical providers, day care providers, and parent support groups, CA-MECA will 1) identify sources and data linkages for ascertainment of children <4 years of age with ASD or who are considered "at risk" of ASD; 2) determine the best methods needed for prevalence estimates; 3) assess the feasibility of establishing this system, completeness of ascertainment, validity of Dx, and determine the necessary resources needed for full implementation; and 4) assess current early screening efforts, diagnostic practices and referral patterns and develop strategies to enhance ASD screening and diagnosis services and ASD awareness in the county. Data from the CA-MECA project may be valuable in a variety of capacities including tracking changes in ASD occurrence over time, identifying ASD risk factors, planning and delivery of ASD related services, identifying underserved subgroups in the population, and improving early screening and diagnostic practices.

描述（由申请人提供）：响应CDC-RFA-DD 06 -001（开发方法来确定幼儿自闭症谱系障碍的患病率...人口），我们提出了一个加州儿童早期自闭症监测（CA-MECA）项目，该项目由加州卫生服务部（DHS）领导，并与北方加州的Kaiser Permanente（KPNC）以及加州圣克拉拉县的多个健康和教育提供者合作。圣克拉拉县是一个拥有近10万名4岁以下儿童的大型多元文化社区。这个为期12个月的项目的目标是为4岁以下儿童制定一个基于多来源人群的自闭症谱系障碍（ASD）监测系统计划，并提高公众对ASD早期识别工作的认识和参与。在当地发育障碍区域中心、当地公共卫生部门、特殊教育部门、医疗服务提供者、日托服务提供者和家长支持团体的帮助下，CA-MECA将1）确定来源和数据链接，以确定4岁以下ASD儿童或被认为有ASD“风险”的儿童; 2）确定估计患病率所需的最佳方法; 3）评估建立该系统的可行性，确定的完整性，Dx的有效性，并确定全面实施所需的必要资源;和4）评估目前的早期筛查工作，诊断实践和转诊模式，并制定战略，以加强ASD筛查和诊断服务以及该县的ASD意识。 来自CA-MECA项目的数据可能在各种能力方面都很有价值，包括跟踪 ASD随时间的发生，识别ASD风险因素，计划和提供ASD相关服务， 查明人口中得不到充分服务的亚群体，改进早期筛查和诊断做法。