Informal Caregiver Training in Cancer Symptom Management

癌症症状管理的非正式护理人员培训

• 批准号: 7071383
• 负责人: Cristina Cu Hendrix
• 金额: $ 19.46万
• 依托单位: DUKE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-03-01 至 2009-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7071383
• 关键词: cancer rehabilitation /care; caregivers; clinical research; coping; early /brief intervention /therapy; emergency health services; human subject; patient care management; patient oriented research; psychological aspect of cancer; quality of life; self care; training

DESCRIPTION (provided by applicant): Symptom management is identified as an essential component of effective home caregiving by informal caregivers of older cancer patients. However, most caregivers do not feel confident that they have the knowledge and skills needed in cancer symptom management. Inability to assist patients in alleviating their cancer symptoms adversely affects the psychological well-being of caregivers. Because of the reciprocal relationship in a caregiver-patient dyad, caregiver decline is likely to lead to patient decline as well. The specific aims of this experimental, prospective study are to examine the effects of experiential symptom management training on self-efficacy and psychological well-being of informal cancer caregivers, and on symptom distress and intensity and emergency care use for cancer-related symptoms of their patients. The individualized training will be at the bedside of older cancer patients during their hospitalization. The setting will be the oncology wards at Duke Medical Center. The sample will consist of 120 dyads equally assigned in the treatment and attention control groups. Subjects in the treatment group will receive individualized experiential training on interventions for cancer symptoms, while subjects in the attention control group will receive information on caregiver local community resources and healthy lifestyle habits. Patient data will be collected prior to hospital discharge, and at 1, 2, and 4 weeks after discharge. In addition, data on emergency care use for cancer-related symptoms will be collected at 1, 2, and 4 weeks after hospital discharge. Caregiver data will be collected before and after the training, and at 1, 2, and 4 weeks after discharge. Descriptive statistics and multivariate analysis including mixed models will be used for data analysis. This study is the first step in determining the effects of experiential training offered in an acute care setting on the dyad. The study results will be used to design a larger randomized clinical trial to evaluate the cost-effectiveness of this intervention. The long term goal is to refine and expand the experiential approach and offer it in acute care settings to teach caregivers of older patients suffering from other chronic illnesses. In so doing, nurses are offered an effective means to prepare informal caregivers for home caregiving, enabling older, chronically-ill patients to remain as long as possible within the comfort of their homes.

描述（由申请人提供）：症状管理被确定为老年癌症患者的非正式护理人员有效家庭护理的重要组成部分。然而，大多数护理人员并不相信他们拥有癌症症状管理所需的知识和技能。无法帮助患者缓解癌症症状会对护理人员的心理健康产生不利影响。由于照顾者-病人二元关系中的相互关系，照顾者的下降也可能导致病人的下降。本实验性前瞻性研究的具体目的是研究体验式症状管理培训对非正式癌症护理人员的自我效能和心理健康的影响，以及对患者癌症相关症状的症状困扰和强度以及紧急护理的影响。个性化的培训将在老年癌症患者住院期间的床边进行。设置将是肿瘤病房在杜克医疗中心。样本将由120个二联体组成，平均分配到给药组和注意力对照组。治疗组受试者将接受癌症症状干预措施的个性化体验式培训，而注意力控制组受试者将接受护理人员当地社区资源和健康生活习惯的信息。将在出院前以及出院后1、2和4周收集患者数据。此外，将在出院后第1、2和4周收集癌症相关症状的急诊治疗数据。将在培训前后以及出院后1、2和4周收集护理人员数据。将使用描述性统计和多变量分析（包括混合模型）进行数据分析。本研究是确定在急性护理环境中提供的体验式培训对二分体的影响的第一步。研究结果将用于设计一个更大的随机临床试验，以评估这种干预措施的成本效益。长期目标是完善和扩大经验方法，并在急性护理环境中提供，以教导患有其他慢性疾病的老年患者的护理人员。这样做，护士提供了一个有效的手段，准备非正式照顾者的家庭，使老年人，慢性病患者留在尽可能长的舒适的家园。