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中文摘要
翻译
我们的目标是在用于评估儿童和青年残疾的技术方面取得重大进展。 识别残疾和评估个人进步的测量和实践要求 儿科年龄组和护理环境给当前的固定项目调查工具带来了严重的两难境地。我们 我开发了一个名为pedi-cat的计算机化的自适应应用程序原型,它可以产生类似的 评分级别、精确度和对变化的响应速度,与之相比,受访者负担显著减少 儿童残疾评定量表(PEDI)的完整版本。 第二阶段的工作将通过扩大每个人衡量的适当年龄范围来改善儿科项目库 比例。基于常模的儿科功能量表(行动能力、自我照顾和社会功能)的条目校准将 通过收集新童虫的一般人口数据来开发。评分算法和评分报告将 是为一个全面运行的儿科CAT系统而创建的。将根据可靠性对完整的儿科计算机辅助测试进行评估, 跨分数级别的有效性和精确度,以创建一个可操作的残疾评估系统 这将改善临床研究和实践中的测量。 具体目标是: 1.在行动、自我照顾和社交功能方面扩大原有的儿科项目库,纳入功能性任务 适合14岁以下儿童;通过内容专家反馈、认知评估新项目 在家长和临床医生焦点小组中进行测试,以及一项小型现场研究(N=100)。 2.通过收集以下资料,为经修订的功能项目库制定最终项目校准和标准概况 来自两个具有全国代表性的6个月至14岁儿童照顾者的大样本的回复 年:1)电话调查样本(N=840);和2)网络调查样本(N=1400)。估算 数据收集方法(互联网与电话)与差异项目的关联程度 功能正常。 3.创建一个全面运作的儿科计算机辅助测试系统,提供基于标准的评分和解释性报告,可以 在多个平台(例如,台式机、手持设备)上管理;展示准确性、精确度、 并通过实际数据模拟研究减轻儿科医生的应诉负担。 4.在已知儿童的临床样本中确认儿科CAT的有效性和应答者接受程度 残疾状况不同:接受康复服务(N=50)与不接受康复服务(N=50)。 一个实用可行的儿科计算机辅助教学系统将极大地提高用于决策的信息。 残疾状况、服务资格、计划需求、康复干预的结果和临床 研究。这一新的残疾评估将用一个更实用和更准确的系统来填补一个关键的空白, 编程为可在台式和手持设备上完全运行。
英文摘要
Our objective is to achieve a major advance in the technology used to assess disability in children and youth. Measurement and practical requirements for identifying disability and evaluating individual progress across pediatric age groups and care settings present a serious dilemma to current fixed-item survey instruments. We have developed a prototype computerized, adaptive application called PEDI-CAT that produces comparable scoring levels, precision, and responsiveness to change at significant reductions in respondent burden compared to full-length version of Pediatric Evaluation of Disability Inventory (PEDI) scales. Phase II work will improve the PEDI item pool by broadening the appropriate age range measured by each scale. Norm-based item calibrations for the PEDI functional scales (mobility, self-care, and social functioning) will be developed by collecting general population data for the new PEDI. Scoring algorithms and score reports will be created for a fully operational PEDI-CAT system. The full PEDI-CAT will be evaluated in terms of reliability, validity, and precision across score levels to create an operational system for the assessment of disability in children and youth that will improve measurement in clinical research and practice. Specific aims are to: 1. Expand the original PEDI item pool in mobility, self-care and social functioning to incorporate functional tasks appropriate for children to 14 years of age; evaluate new items through content expert feedback, cognitive testing in parent and clinician focus groups, and a small field study (N=100). 2. Develop final item calibrations and normative profiles for the revised functioning item pools by collecting responses from two large, nationally-representative samples of caretakers for children age 6 months to 14 years: 1) a telephone-based survey sample (N=840); and 2) a web-based survey sample (N=1400). Estimate the extent to which data collection method (internet vs. telephone) is associated with differential item functioning. 3. Create a fully operational PEDI-CAT system with norm-based scoring and interpretive reports that can be administered on multiple platforms (e.g., desktop, hand-held devices); demonstrate the accuracy, precision, and reductions in respondent burden of the PEDI-CAT through real data simulation studies. 4. Confirm the validity and respondent acceptance of the PEDI-CAT in a clinical sample of children known to differ in disability status: receiving rehabilitation services (N=50) vs. not (N=50). A practical and feasible PEDI-CAT will greatly improve the information used in making decisions about disability status, service eligibility, program needs, outcomes of rehabilitation interventions and in clinical research. This new disability assessment will fill a critical void with a system that is more practical and precise, programmed to be fully operational on both desktop and hand-held devices.
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Measuring Multimorbidity with Individualized Disease-specific QOL Impact Scales
Vision-QOL-CAT: A Functional Health CAT for those with Visual Disorders
  • 批准号:
    8057033
  • 项目类别:
  • 资助金额:
    $9.86万
  • 财政年份:
    2011
  • 负责人:
    JOHN E WARE
  • 依托单位:
Development of a Functional Health CAT for Managing Obesity
  • 批准号:
    7272258
  • 项目类别:
  • 资助金额:
    $12.52万
  • 财政年份:
    2007
  • 负责人:
    JOHN E WARE
  • 依托单位:
Functional Health CAT in Chronic Kidney Disease
  • 批准号:
    7053957
  • 项目类别:
  • 资助金额:
    $68.6万
  • 财政年份:
    2006
  • 负责人:
    JOHN E WARE
  • 依托单位:
海外基金