North American Fetal Therapy Network Biannual Scientific Meetings

北美胎儿治疗网络每两年一次的科学会议

基本信息

  • 批准号:
    8043647
  • 负责人:
  • 金额:
    $ 0.6万
  • 依托单位:
  • 依托单位国家:
    美国
  • 项目类别:
  • 财政年份:
    2009
  • 资助国家:
    美国
  • 起止时间:
    2009-04-06 至 2012-02-29
  • 项目状态:
    已结题

项目摘要

DESCRIPTION (provided by applicant): Support is requested to underwrite the cost of the North American Fetal Therapy Network (NAFTNet) biannual meetings for the next five years. The network was created to address issues pertaining to fetal therapy that arose from the NIH workshop held on August 16-17, 2004, "Fetal Treatment: Needs Assessment and Future Directions", which was supported by the National Institutes of Child Health and Human Development (NICHD), the Office of Rare Diseases and the National Heart, Lung, and Blood Institute. It was recommended that a cooperative group of investigators and clinicians be formed to help set a national agenda for research, clinical progress and ethical issues in the field. Further, it was recognized that the development of such a group would be a challenge due to the innovative and entrepreneurial nature of fetal therapy. Participants at the workshop from the Children's Hospital of Philadelphia, University of North Carolina, Vanderbilt University Medical Center and University of San Francisco moved forward during the following year to develop the organizational structure of NAFTNet with the primary mission to create a collaborative clinical research network to study the natural history of fetal disease and develop therapeutic prenatal interventions to improve outcomes. In October of 2005 representatives of 18 major North American fetal therapy units were invited to a meeting in Dallas, TX where the concept, organizational plan and mission of NAFTNet were presented to the group. Twenty centers have now joined agreeing to (1) a peer-review and mentoring process of submission of research protocols (2) participation and support of NAFTNet approved protocols and (3) institutional financial support. The peer-review process is coordinated in the scientific meetings with a free exchange and dissemination of ideas amongst individuals from the participating centers who are authorities in the areas of fetal diagnosis and treatment and ad hoc members representing the specialties of medical ethics and biostatistics. NAFTNet is a 501c3 organization that seeks to achieve appropriate representation of women and racial/ethnic minorities and persons with disabilities. In the past three years 14 research proposals have been submitted, 10 have gained NAFTNet support and are underway, 2 are financially supported by industry and federal funds, 1 is presently under consideration as a collaboration research effort with the EUROFETUS group, a fetal therapy research project funded by the European Commission. PUBLIC HEALTH RELEVANCE: Support is being requested for the biannual North American Fetal Therapy Network (NAFTNet) meetings for the next five years. NAFTNet is a "not for profit" collaborative research organization whose members are recognized authorities in the field of fetal therapy from major clinical research units in the United States and Canada. NAFTNet's primary mission is to provide a cooperative clinical research network to study the natural history of fetal disease and to develop therapeutic prenatal interventions to improve outcomes.
描述(由申请人提供):要求提供支持,以承担未来五年北美胎儿治疗网络(NAFTNet)一年两次会议的费用。该网络的建立是为了解决与胎儿治疗有关的问题,这些问题来自于2004年8月16日至17日举行的NIH研讨会,“胎儿治疗:需求评估和未来方向”,该研讨会得到了美国国立儿童健康和人类发展研究所(NICHD),罕见疾病办公室和国家心脏,肺和血液研究所的支持。建议成立一个由调查人员和临床医生组成的合作小组,以帮助制定该领域研究、临床进展和伦理问题的国家议程。此外,人们认识到,由于胎儿治疗的创新和创业性质,发展这样一个小组将是一个挑战。来自费城儿童医院、北卡罗来纳州大学、范德比尔特大学医学中心和旧金山大学弗朗西斯科的与会者在第二年继续发展NAFTNet的组织结构,其主要使命是建立一个合作临床研究网络,研究胎儿疾病的自然史,并制定产前治疗干预措施以改善结局。2005年10月,18个主要的北美胎儿治疗单位的代表应邀参加了在德克萨斯州达拉斯举行的一次会议,会上向与会者介绍了NAFTNet的概念、组织计划和使命。目前已有20个中心加入,同意(1)提交研究方案的同行评审和指导过程(2)参与和支持NAFTNet批准的方案以及(3)机构财政支持。同行评审过程在科学会议中进行协调,参与中心的胎儿诊断和治疗领域的权威人士和代表医学伦理学和生物统计学专业的临时成员可以自由交流和传播想法。NAFTNet是一个501c3组织,旨在实现妇女、少数民族和残疾人的适当代表性。在过去三年中,已提交了14项研究提案,其中10项已获得NAFTNet的支持并正在进行中,2项得到了行业和联邦基金的财政支持,1项目前正在考虑与EUROFETUS集团合作进行研究,EUROFETUS集团是欧洲委员会资助的胎儿治疗研究项目。 公共卫生相关性:正在请求为今后五年每半年举行一次的北美胎儿治疗网络(NAFTNet)会议提供支持。NAFTNet是一个“非营利”合作研究组织,其成员是美国和加拿大主要临床研究单位在胎儿治疗领域的公认权威。NAFTNet的主要使命是提供一个合作临床研究网络,以研究胎儿疾病的自然史,并制定产前治疗干预措施,以改善结果。

项目成果

期刊论文数量(0)
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科研奖励数量(0)
会议论文数量(0)
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Anthony Johnson其他文献

Anthony Johnson的其他文献

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{{ truncateString('Anthony Johnson', 18)}}的其他基金

Gastroschisis Outcomes of Delivery (GOOD) Study
腹裂分娩结果 (GOOD) 研究
  • 批准号:
    10392502
  • 财政年份:
    2021
  • 资助金额:
    $ 0.6万
  • 项目类别:
Gastroschisis Outcomes of Delivery (GOOD) Study
腹裂分娩结果 (GOOD) 研究
  • 批准号:
    10611305
  • 财政年份:
    2021
  • 资助金额:
    $ 0.6万
  • 项目类别:
Gastroschisis Outcomes of Delivery (GOOD) Study
腹裂分娩结果 (GOOD) 研究
  • 批准号:
    10176123
  • 财政年份:
    2021
  • 资助金额:
    $ 0.6万
  • 项目类别:
North American Fetal Therapy Network Biannual Scientific Meetings
北美胎儿治疗网络每两年一次的科学会议
  • 批准号:
    7674330
  • 财政年份:
    2009
  • 资助金额:
    $ 0.6万
  • 项目类别:
North American Fetal Therapy Network Biannual Scientific Meetings
北美胎儿治疗网络每两年一次的科学会议
  • 批准号:
    8220998
  • 财政年份:
    2009
  • 资助金额:
    $ 0.6万
  • 项目类别:
NORTH AMERICAN FETAL THERAPY NETWORK BIANNUAL SCIENTIFIC MEETINGS
北美胎儿治疗网络两年一次的科学会议
  • 批准号:
    9222783
  • 财政年份:
    2009
  • 资助金额:
    $ 0.6万
  • 项目类别:
North American Fetal Therapy Network Biannual Scientific Meetings
北美胎儿治疗网络每两年一次的科学会议
  • 批准号:
    8456947
  • 财政年份:
    2009
  • 资助金额:
    $ 0.6万
  • 项目类别:
NORTH AMERICAN FETAL THERAPY NETWORK BIANNUAL SCIENTIFIC MEETINGS
北美胎儿治疗网络两年一次的科学会议
  • 批准号:
    9035304
  • 财政年份:
    2009
  • 资助金额:
    $ 0.6万
  • 项目类别:
North American Fetal Therapy Network Biannual Scientific Meetings
北美胎儿治疗网络每两年一次的科学会议
  • 批准号:
    7800324
  • 财政年份:
    2009
  • 资助金额:
    $ 0.6万
  • 项目类别:
NORTH AMERICAN FETAL THERAPY NETWORK BIANNUAL SCIENTIFIC MEETINGS
北美胎儿治疗网络两年一次的科学会议
  • 批准号:
    8806568
  • 财政年份:
    2009
  • 资助金额:
    $ 0.6万
  • 项目类别:

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