STUDIES OF PRIMARY SCLEROSING CHOLANGITIS (STOPSC)

这个子项目是许多研究子项目中的一个 由NIH/NCRR资助的中心赠款提供的资源。子项目和 研究者（PI）可能从另一个NIH来源获得了主要资金， 因此可以在其他CRISP条目中表示。所列机构为 中心，不一定是研究者的机构。 本研究的目的是收集和分析PSC成人和儿童的科学数据，以更好地了解疾病的原因，疾病进展，治疗和结果。 收集这些数据有望帮助研究人员更多地了解PSC发展所涉及的因素，确定更有效的治疗方法，并改善结果。 在过去五年内被诊断为原发性硬化性胆管炎（PSC）或原发性硬化性胆管炎伴自身免疫性肝炎的成人有资格参加本研究。 还有其他情况可能会阻止您参加本研究。 您的研究医生或护士将向您解释这些情况。 目前尚不清楚研究将持续多长时间以及您将被要求参与多长时间。 如果您接受了肝移植，我们将要求您继续参加研究。 这提供了PSC患者在肝移植后的信息。 在本研究过程中发现的任何重要的新发现，可能与您继续参与的意愿有关，将提供给您。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The purpose of this study is to collect and analyze scientific data on adults and children with PSC to better understand the disease's cause, disease progression, treatments, and outcomes. Collecting these data is expected to help researchers learn more about the factors involved in the development of PSC, identify more effective treatments, and improve outcomes. Adults who have been diagnosed with primary sclerosing cholangitis (PSC) or primary sclerosing cholangitis with autoimmune hepatitis within the past five years are eligible for this study. There are other conditions that may prevent you from being eligible for this study. Your study doctor or nurse will explain these conditions to you. It is unknown at this time how long the study will continue and how long you will be asked to participate. If you receive a liver transplant, we will ask you to continue in the study. This provides information on how PSC patients do after liver transplant. Any significant new findings developed during the course of this research, which may relate to your willingness to continue participation, will be provided to you.