STUDIES OF PRIMARY SCLEROSING CHOLANGITIS (STOPSC)

这个子项目是许多研究子项目中利用 资源由NIH/NCRR资助的中心拨款提供。子项目和 调查员(PI)可能从NIH的另一个来源获得了主要资金， 并因此可以在其他清晰的条目中表示。列出的机构是 该中心不一定是调查人员的机构。 这项研究的目的是收集和分析患有PSC的成人和儿童的科学数据，以更好地了解疾病的病因、疾病进展、治疗和结果。收集这些数据有望帮助研究人员更多地了解PSC发展过程中涉及的因素，确定更有效的治疗方法，并改善结果。 在过去五年内被诊断为原发性硬化性胆管炎(PSC)或原发性硬化性胆管炎伴自身免疫性肝炎的成年人有资格参加这项研究。还有其他条件可能会阻止您有资格参加这项研究。你的实习医生或护士会向你解释这些情况。 目前尚不清楚这项研究将持续多久，您将被要求参与多久。如果您接受了肝脏移植，我们会要求您继续研究。这提供了有关PSC患者在肝移植后的情况的信息。 在本研究过程中形成的任何重要新发现，可能与您继续参与的意愿有关，都将提供给您。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The purpose of this study is to collect and analyze scientific data on adults and children with PSC to better understand the disease's cause, disease progression, treatments, and outcomes. Collecting these data is expected to help researchers learn more about the factors involved in the development of PSC, identify more effective treatments, and improve outcomes. Adults who have been diagnosed with primary sclerosing cholangitis (PSC) or primary sclerosing cholangitis with autoimmune hepatitis within the past five years are eligible for this study. There are other conditions that may prevent you from being eligible for this study. Your study doctor or nurse will explain these conditions to you. It is unknown at this time how long the study will continue and how long you will be asked to participate. If you receive a liver transplant, we will ask you to continue in the study. This provides information on how PSC patients do after liver transplant. Any significant new findings developed during the course of this research, which may relate to your willingness to continue participation, will be provided to you.