STUDIES OF PRIMARY SCLEROSING CHOLANGITIS (STOPSC)

该子项目是利用该技术的众多研究子项目之一 资源由 NIH/NCRR 资助的中心拨款提供。子项目和 研究者 (PI) 可能已从 NIH 的另一个来源获得主要资金， 因此可以在其他 CRISP 条目中表示。列出的机构是 对于中心来说，它不一定是研究者的机构。 本研究的目的是收集和分析成人和儿童 PSC 的科学数据，以更好地了解疾病的病因、疾病进展、治疗和结果。 收集这些数据预计将帮助研究人员更多地了解 PSC 发展所涉及的因素，确定更有效的治疗方法并改善结果。 过去五年内被诊断患有原发性硬化性胆管炎（PSC）或原发性硬化性胆管炎合并自身免疫性肝炎的成年人有资格参加本研究。 还有其他条件可能会阻止您获得参加本研究的资格。 您的研究医生或护士将向您解释这些情况。 目前尚不清楚研究将持续多久以及您将被要求参与多久。 如果您接受肝移植，我们将要求您继续研究。 这提供了有关 PSC 患者肝移植后情况的信息。 在本研究过程中出现的任何重要的新发现（可能与您是否愿意继续参与相关）都将提供给您。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The purpose of this study is to collect and analyze scientific data on adults and children with PSC to better understand the disease's cause, disease progression, treatments, and outcomes. Collecting these data is expected to help researchers learn more about the factors involved in the development of PSC, identify more effective treatments, and improve outcomes. Adults who have been diagnosed with primary sclerosing cholangitis (PSC) or primary sclerosing cholangitis with autoimmune hepatitis within the past five years are eligible for this study. There are other conditions that may prevent you from being eligible for this study. Your study doctor or nurse will explain these conditions to you. It is unknown at this time how long the study will continue and how long you will be asked to participate. If you receive a liver transplant, we will ask you to continue in the study. This provides information on how PSC patients do after liver transplant. Any significant new findings developed during the course of this research, which may relate to your willingness to continue participation, will be provided to you.