2012 ASN Update on Patient Centered Outcomes Research in Kidney Disease

描述(由申请者提供)：美国肾脏学会(ASN)的年度会议，“肾脏周”，是世界上在肾脏病领域工作的临床、翻译和基础科学研究人员的最大聚会。在肾周的头两天，ASN赞助了一系列密集的研讨会，包括为临床医生研究人员、研究生、博士后研究员、职业生涯早期和中期的院士、执业医生和专职医疗保健专业人员举办的为期两天的年度教育临床研究研讨会。本次研讨会的主题领域由ASN研究生教育委员会(PGE)彻底审查，反映了临床和翻译研究的重要和时间敏感的领域，对肾脏疾病及其相关的并发症和并发症的管理具有重要的临床和公共卫生影响。今年的研讨会将题为“以患者为中心的肾脏疾病结局研究的最新进展”，将于2012年10月30日至31日在加利福尼亚州圣地亚哥的圣地亚哥会议中心举行。研讨会将由该领域的27位领导人发表演讲，其中大多数人都是公认的世界级专家，他们将就以患者为中心的研究的设计和实施的不同方面发表演讲。所涵盖的主题将包括关于“以患者为中心”这一重要方面的会议，关于将不同利益相关者群体的投入和偏好纳入研究过程的所有方面的战略，并将特别强调在此类研究中要考虑的种族、民族和社会经济差异的方面。本课程还将提供关于以患者为中心的结果研究的现有数据集的详细信息，特别强调最近通过USRDS提供研究的Medicare Part D药物数据。目前正在使用这些数据集的科学家将讨论他们使用这些数据资源的实践经验。第二天将集中于关于研究设计的重要考虑，一系列传统的到高度创新的分析技术，以及对以患者为中心的结果研究结果的适当沟通和报告。选定的主题与NIH路线图以及医疗研究和质量机构(AHRQ)和以患者为中心的结果研究所(PCORI)的目标完全一致，以促进临床和转化性研究，并对社区健康产生直接影响。在这次会议上，ASN成员和其他感兴趣的参与者将有机会与该领域的世界领导人互动。这项资助申请的目的是为初级教师和早期职业研究人员、博士后研究员和研究生申请TRAVL奖励资金，以便他们能够在今年肾周的前两天参加这次会议。少数族裔和妇女在规划委员会和特邀教员中都有很好的代表性，并计划为代表不足的少数族裔申请者和妇女以及残疾个人提供旅费补助金和其他活动。 公共卫生相关性：这次年度会议的目标是提高肾脏疾病社区的教育和认识，使他们认识到临床研究对改善社区肾脏疾病结局的重要性。今年会议的重点是向临床医生研究人员介绍“以患者为中心的结果研究”的设计和实施的最新情况，这是一项研究，直接向患者和提供者在现实世界实践环境中基本上不受限制的患者群体中面临的比较策略决策提供信息。在过去，与会者与一些教员演讲者建立了合作关系，这极大地促进了肾脏疾病的研究，并有可能开发出可能有助于改善人群健康的治疗策略。

DESCRIPTION (provided by applicant): The annual meeting of the American Society of Nephrology (ASN), "Kidney Week," is the largest gathering in the world of clinical, translational and basic science investigators working in the field of nephrology. During the first two days of Kidney Week, the ASN sponsors a series of intensive symposia including an annual 2-day educational clinical research symposium for clinician investigators, graduate students, post- doctoral fellows, early- to mid-career academicians, practicing physicians and allied health care professionals. The subject area of this symposium is reviewed thoroughly by the ASN's Post-Graduate Education (PGE) Committee and reflects important and time-sensitive areas of clinical and translational investigation with important clinical and public health implications for the management of kidney diseases and their related comorbidities and complications. This year's symposium will be titled "Update on Patient-Centered Outcomes Research in Kidney Disease" and held during the upcoming ASN Kidney Week on 10/30-31, 2012, at the San Diego Convention Center, San Diego, CA. The symposium will feature lectures by 27 leaders in the field, most recognized as world class experts who will speak on diverse aspects of design and conduct of patient-centered studies. The topics covered will include sessions on the important aspect of "patient-centeredness," on strategies to incorporate the input and preferences of diverse groups of stakeholders into all aspects of the research process, and particular emphasis will be put on aspects of racial, ethnic, and socioeconomic disparities to be considered in such research. The course will also provide detailed information on existing datasets for Patient-Centered Outcomes Research with particular emphasis on Medicare Part D medication data that have just recently become available for research through the USRDS. Scientists currently using these datasets will discuss their hands-on experiences with these data resources. Day 2 will focus on important considerations about study design, a range of traditional to highly innovative analytical techniques, and the appropriate communication and reporting of findings from Patient-Centered Outcomes Research studies. The selected topics are fully consistent with the NIH roadmap as well as the objectives of the Agency for Healthcare Research and Quality (AHRQ) and the Patient-Centered Outcomes Research Institute (PCORI) to promote clinical and translational research with immediate impact on community health. At this conference, ASN members and other interested participants will have the chance to interact with world leaders in the field. The purpose of this grant application is to request funds for travl awards for junior faculty and early career investigators, postdoctoral fellows, and graduate students, so that they can attend this conference during the first 2 days of this year's Kidney Week. Individuals from minorities and women are well represented among both planning committee and invited faculty members, and there are plans to sponsor underrepresented minority applicants and women as well as individuals with disabilities for the travel grants and other activities. PUBLIC HEALTH RELEVANCE: The goal of this annual conference is to improve education and awareness of the kidney disease community about the importance of clinical research with immediate impact on improving kidney disease outcomes in the community. The focus of this year's conference is to update the clinician investigators about the design and conduct of "Patient Centered Outcomes Research," which is research that directly informs decisions that patients and providers face among on comparative strategies in real world practice settings of largely unrestricted populations of patients. In the past, conference participants have developed collaborative relationships with some of the faculty speakers, which greatly helps advance kidney disease research and the potential to develop therapeutic strategies that may serve to improve the health of the population.