2012 ASN Update on Patient Centered Outcomes Research in Kidney Disease

2012 年 ASN 肾脏疾病以患者为中心的结果研究更新

• 批准号: 8458852
• 负责人: WOLFGANG CHRISTOPH WINKELMAYER
• 金额: $ 1万
• 依托单位: AMERICAN SOCIETY OF NEPHROLOGY, INC.
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-09-05 至 2013-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8458852
• 关键词: Ally; American; Applications Grants; Area; Award; Awareness; Basic Science; Behavioral Research; Bioinformatics; Biometry; Cardiovascular Diseases; Clinical; Clinical Research; Clinical Sciences; Collaborations; Communication; Communities; Community Health; Comorbidity; Data; Data Set; Decision Making; Disease Outcome; Education; Ensure; Epidemiologist; Epidemiology; Face; Faculty; Funding; Goals; Graduate Education; Grant; Health Professional; Health Services; Health Services Research; Individual; Investigation; Kidney; Kidney Diseases; Lead; Link; Medicare; Minority; Nephrology; Outcomes Research; Participant; Patient-Focused Outcomes; Patients; Pharmaceutical Preparations; Physicians; Population; Postdoctoral Fellow; Process; Provider; Public Health; Reporting; Research; Research Design; Research Institute; Research Personnel; Resources; Scientist; Series; Societies; Techniques; Therapeutic; Time; Translational Research; Travel; Underrepresented Minority; United States National Institutes of Health; Update; Woman; Work; career; clinical decision-making; comparative; comparative effectiveness; cost; cost effective; design; disability; effectiveness research; experience; graduate student; health care quality; improved; innovation; interest; lectures; meetings; member; patient oriented; patient population; policy implication; population health; preference; racial and ethnic; research study; socioeconomics; symposium

DESCRIPTION (provided by applicant): The annual meeting of the American Society of Nephrology (ASN), "Kidney Week," is the largest gathering in the world of clinical, translational and basic science investigators working in the field of nephrology. During the first two days of Kidney Week, the ASN sponsors a series of intensive symposia including an annual 2-day educational clinical research symposium for clinician investigators, graduate students, post- doctoral fellows, early- to mid-career academicians, practicing physicians and allied health care professionals. The subject area of this symposium is reviewed thoroughly by the ASN's Post-Graduate Education (PGE) Committee and reflects important and time-sensitive areas of clinical and translational investigation with important clinical and public health implications for the management of kidney diseases and their related comorbidities and complications. This year's symposium will be titled "Update on Patient-Centered Outcomes Research in Kidney Disease" and held during the upcoming ASN Kidney Week on 10/30-31, 2012, at the San Diego Convention Center, San Diego, CA. The symposium will feature lectures by 27 leaders in the field, most recognized as world class experts who will speak on diverse aspects of design and conduct of patient-centered studies. The topics covered will include sessions on the important aspect of "patient-centeredness," on strategies to incorporate the input and preferences of diverse groups of stakeholders into all aspects of the research process, and particular emphasis will be put on aspects of racial, ethnic, and socioeconomic disparities to be considered in such research. The course will also provide detailed information on existing datasets for Patient-Centered Outcomes Research with particular emphasis on Medicare Part D medication data that have just recently become available for research through the USRDS. Scientists currently using these datasets will discuss their hands-on experiences with these data resources. Day 2 will focus on important considerations about study design, a range of traditional to highly innovative analytical techniques, and the appropriate communication and reporting of findings from Patient-Centered Outcomes Research studies. The selected topics are fully consistent with the NIH roadmap as well as the objectives of the Agency for Healthcare Research and Quality (AHRQ) and the Patient-Centered Outcomes Research Institute (PCORI) to promote clinical and translational research with immediate impact on community health. At this conference, ASN members and other interested participants will have the chance to interact with world leaders in the field. The purpose of this grant application is to request funds for travl awards for junior faculty and early career investigators, postdoctoral fellows, and graduate students, so that they can attend this conference during the first 2 days of this year's Kidney Week. Individuals from minorities and women are well represented among both planning committee and invited faculty members, and there are plans to sponsor underrepresented minority applicants and women as well as individuals with disabilities for the travel grants and other activities. PUBLIC HEALTH RELEVANCE: The goal of this annual conference is to improve education and awareness of the kidney disease community about the importance of clinical research with immediate impact on improving kidney disease outcomes in the community. The focus of this year's conference is to update the clinician investigators about the design and conduct of "Patient Centered Outcomes Research," which is research that directly informs decisions that patients and providers face among on comparative strategies in real world practice settings of largely unrestricted populations of patients. In the past, conference participants have developed collaborative relationships with some of the faculty speakers, which greatly helps advance kidney disease research and the potential to develop therapeutic strategies that may serve to improve the health of the population.

描述（由申请人提供）：美国肾脏病学会（American Society of Nephrology，简称AAN）的年会“肾脏周”是世界上肾脏病领域临床、转化和基础科学研究者的最大聚会。在肾脏周的前两天，肾脏病研究所赞助了一系列密集的研讨会，包括每年为期2天的临床研究人员，研究生，博士后研究员，早期到中期职业院士，执业医生和专职医疗保健专业人员的教育临床研究研讨会。本次研讨会的主题领域由美国肾脏病学会研究生教育（PGE）委员会全面审查，反映了临床和转化研究的重要和时间敏感领域，对肾脏疾病及其相关合并症和并发症的管理具有重要的临床和公共卫生意义。今年的研讨会将题为“以患者为中心的肾脏疾病结局研究的最新进展”，并于2012年10月30日至31日在加利福尼亚州圣地亚哥的圣地亚哥会议中心举行。研讨会将由该领域的27位领导人进行讲座，其中大多数被公认为世界级专家，他们将就以患者为中心的研究的设计和实施的各个方面发表演讲。所涵盖的主题将包括关于“以病人为中心”的重要方面的会议，关于将不同利益相关者群体的投入和偏好纳入研究过程各个方面的战略，特别强调将在这种研究中考虑种族，民族和社会经济差异的方面。该课程还将提供有关以患者为中心的成果研究的现有数据集的详细信息，特别强调最近通过USRDS可用于研究的Medicare Part D药物数据。目前使用这些数据集的科学家将讨论他们使用这些数据资源的实践经验。第2天将重点关注研究设计的重要考虑因素，一系列传统的高度创新的分析技术，以及以患者为中心的结局研究结果的适当沟通和报告。 选定的主题与NIH路线图以及医疗保健研究和质量机构（AHRQ）和以患者为中心的成果研究所（PCRI）的目标完全一致，以促进临床和转化研究，对社区健康产生直接影响。在这次会议上，欧洲联盟成员和其他感兴趣的与会者将有机会与该领域的世界领导人进行互动。本补助金申请的目的是为初级教师和早期职业研究人员，博士后研究员和研究生申请旅行奖，以便他们能够在今年肾脏周的前2天参加本次会议。规划委员会和受邀教职员工中来自少数群体的个人和妇女的代表性很高，并计划为代表性不足的少数群体申请人和妇女以及残疾人提供旅费赠款和其他活动。 公共卫生相关性：本次年会的目标是提高肾脏病社区对临床研究重要性的教育和认识，并对改善社区肾脏病结局产生直接影响。今年会议的重点是更新临床研究人员关于“以患者为中心的结局研究”的设计和实施，这是一项研究，直接告知患者和提供者在真实的世界实践环境中面临的比较策略。在过去，与会者与一些教师发言人建立了合作关系，这极大地有助于推进肾脏疾病研究和开发可能有助于改善人口健康的治疗策略的潜力。