Cultural Development of an Adolescent Mental Health Quality of Life Instrument

青少年心理健康生活质量工具的文化发展

• 批准号: 8307345
• 负责人: Ligia M. Chavez
• 金额: $ 16.49万
• 依托单位: UNIVERSITY OF PUERTO RICO MED SCIENCES
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-09-18 至 2014-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8307345
• 关键词: Adolescent; Adolescent Development; Anxiety; Asthma; Attention deficit hyperactivity disorder; Behavioral Sciences; Caring; Categories; Child; Chronic; Chronic Disease; Clinical; Clinical Research; Clinical effectiveness; Conduct Disorder; Consensus; Data; Development; Diabetes Mellitus; Diagnostic; Disease; Evaluation; Evidence based practice; Exhibits; Faculty; Focus Groups; Friends; Funding; Gender; Generalized Anxiety Disorder; Generic Drugs; Goals; Health; Health Professional; Health Status; Healthcare; Home environment; Individual; Intervention; Interview; Knowledge; Latino; Life; Major Depressive Disorder; Malignant Neoplasms; Measurement; Measures; Mental Depression; Mental Health; Mental Health Services; Mental disorders; Mexican Americans; Modeling; Outcome; Outcome Measure; Patient Care; Patients; Persons; Population; Process; Property; Provider; Psychometrics; Puerto Rican; Puerto Rico; Quality of life; Quality-of-Life Assessment; Recruitment Activity; Research; Risk Factors; Sampling; Schools; Services; Structure; Symptoms; Testing; Time; Treatment Effectiveness; Treatment Protocols; Work; Youth; career; design; disability; experience; health related quality of life; improved; instrument; physical conditioning; racial and ethnic disparities; theories; treatment program

DESCRIPTION (provided by applicant): Improving health related quality of life (HRQOL) is a major goal in the treatment of all chronic illnesses. In addition, there is growing consensus that assessment of quality of life is crucial to provide a complete picture of children's physical and mental health status. To our knowledge there are no HRQOL instruments specifically developed for adolescents with mental health problems. Therefore, the central goal of the proposed application is to develop, test, and validate an adolescent HRQOL instrument for mental health [AQOL-MH) in Spanish and English. This will provide a culturally valid outcome measure that will contribute to reduce mental health care disparities. This instrument will help mental health professionals focus on particular HRQOL domains during the diagnostic process; thereby assisting both patients and providers set, define and evaluate adequate treatment goals. This proposal presents a unique opportunity for a young faculty with extensive experience in behavioral sciences research, to advance her career and obtain independent funding. The ultimate objective of this proposal is to develop ah RO1 application to administer the AQOL-MH to representative clinical samples in order to target its usefulness in evaluating clinical effectiveness in treatment programs and interventions. The specific aims of this proposal are the following: Aim 1: To develop themes that respond to the construct of quality of life as perceived by adolescents who are receiving services for mental health problems in Puerto Rican and Mexican American, as well as Anglo populations. The development will be achieved using a grounded theory approach with the use of focus groups and in-depth interviews of clinical samples of Latino and US non-Latino youth who are recruited to have one of four prevalent mental disorders; ADHD, Conduct Disorder, Generalized Anxiety, and Depression. Aim 2: To test the psychometric properties of the measure developed in Aim 1 using clinical and nonclinical samples of youth from Puerto Rico and the US. Psychometric analyses will include assessments of internal structure, tests for differential item functioning across Latino and non-Latino as well as gender groups, and preliminary tests of construct validity. Aim 3: Test the usefulness of the short-form AQOL-MH for tracking change during the course of service use in evidence based practice among youth with ADHD and Depression disorders in Puerto Rico. To achieve this aim we will recruit 60 youth who begin to receive treatment and we will obtain a baseline and two repeated assessments of HRQOL at six month intervals.

描述（由申请人提供）：改善健康相关的生活质量（HRQOL）是治疗所有慢性疾病的主要目标。此外，人们日益一致认为，生活质量评估对于全面了解儿童的身心健康状况至关重要。据我们所知，目前还没有专门为有心理健康问题的青少年开发的HRQOL工具。因此，拟议的应用程序的中心目标是开发，测试和验证青少年HRQOL工具的心理健康（AQOL-MH）在西班牙语和英语。这将提供一个文化上有效的结果措施，将有助于减少精神卫生保健的差距。该工具将帮助精神卫生专业人员在诊断过程中专注于特定的HRQOL领域，从而帮助患者和提供者设定，定义和评估适当的治疗目标。该提案为在行为科学研究方面具有丰富经验的年轻教师提供了一个独特的机会，以促进她的职业生涯并获得独立的资金。本提案的最终目标是开发RO 1应用程序，以将AQOL-MH用于代表性临床样本，从而确定其在评估治疗方案和干预措施的临床有效性方面的有用性。该提案的具体目标如下： 目标1：开发的主题，以应对生活质量的建设所感知的青少年接受服务的心理健康问题，在波多黎各和墨西哥裔美国人，以及盎格鲁人口。发展将使用扎根理论的方法，使用焦点小组和拉丁裔和美国非拉丁裔青年的临床样本的深入访谈来实现，这些青年被招募为四种流行的精神疾病之一; ADHD，行为障碍，广泛性焦虑和抑郁症。 目标二：使用来自波多黎各和美国的青年临床和非临床样本，测试目标1中开发的测量的心理测量学特性。心理测量分析将包括内部结构的评估，跨拉丁美洲和非拉丁美洲以及性别群体的差异项目功能测试，以及结构效度的初步测试。 目标三：在波多黎各的ADHD和抑郁症青少年中，测试简表AQOL-MH在循证实践中跟踪服务使用过程中变化的有用性。为了实现这一目标，我们将招募60名青年谁开始接受治疗，我们将获得基线和两个重复评估HRQOL在六个月的时间间隔。

项目成果

Applying generalizability theory methods to assess continuity and change on the Adolescent Quality of Life-Mental Health Scale (AQOL-MHS).

应用概括性理论方法评估青少年生活质量心理健康量表（AQOL-MHS）的连续性和变化。

• DOI: 10.1007/s11136-016-1344-0
• 发表时间: 2016
• 期刊: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
• 作者: Chavez,LigiaM;Garcia,Pedro;Ortiz,Nyrma;Shrout,PatrickE
• 通讯作者: Shrout,PatrickE

Measurement properties of the Adolescent Quality of Life Mental Health Scale (AQOL-MHS).

• DOI: 10.1007/s11136-013-0579-2
• 发表时间: 2014-05
• 期刊: QUALITY OF LIFE RESEARCH
• 影响因子: 3.5
• 作者: Chavez, Ligia M.;Ramirez, Rafael;Garcia, Pedro;Canino, Glorisa;Mir, Karen;Ortiz, Nyrma;Morales, Leo S.
• 通讯作者: Morales, Leo S.