Pediatric Dermatology Research Alliance (PeDRA) Annual Conference
Pediatric Dermatology Research Alliance (PeDRA) Annual Conference
批准号:
8986128
负责人:
Anna Lee Bruckner
金额:
$3.0万
依托单位国家:
美国
项目类别:
财政年份:
2015
资助国家:
美国
项目状态:
已结题
起止时间:
2015-09-01 至 2017-08-31
关键词:
AddressApplications GrantsAreaBasic ScienceBlood VesselsCase StudyChildChild CareChildhoodClinicalClinical ResearchClinical Research ProtocolsClinical TrialsClinical Trials DesignConsensusConsensus DevelopmentCutaneousDermatologicDermatologistDermatologyDiseaseEducational process of instructingExpert OpinionFDA approvedFosteringGeneticGenomicsGoalsGroup MeetingsGuidelinesHealthHereditary DiseaseInflammatoryInheritedInstructionKnowledgeLesionLifeMalignant NeoplasmsMeasuresMethodsModelingMulticenter StudiesNatural HistoryNeonatalOutcomeOutputPatient advocacyPatientsPerformancePharmaceutical PreparationsPhysiciansPremature InfantProcessResearchResearch DesignResearch InfrastructureResearch MethodologyResearch PersonnelResearch PriorityScientistSkinStagingStrategic PlanningSupport GroupsSystemic TherapyTechniquesTechnologyTherapeuticTherapeutic InterventionTimeTranslational ResearchTranslationsTreatment ProtocolsUpdateVisionVitiligoWorkadvocacy organizationsbaseclinical carecohortcomparative effectivenessdata managementdesigndrug developmenteffective interventionimprovedinnovationknowledge baselecturesmalformationmeetingsnovelorganizational structurepatient advocacy grouppostersprematurepreventpublic health relevancerepositoryresponseskillsskin disordersymposiumtherapy outcometumorworking group
中文摘要
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英文摘要
DESCRIPTION (provided by applicant): Pediatric dermatologists care for children with a broad range of rare and common disorders, such as severe inflammatory skin diseases that require systemic therapy, disfiguring vascular birthmarks, and genetic skin disorders and cutaneous tumors that can be life-endangering. There is a paucity of FDA-approved therapies for these severe conditions and a great need for standardized treatment protocols and methods to measure response. The Pediatric Dermatology Research Alliance (PeDRA) was established to address this therapeutic shortfall. PeDRA's vision is to create and sustain collaborative research networks that conduct well- designed, high-quality multicenter studies to better understand, prevent, treat and cure dermatologic diseases in children. The PeDRA Annual Conference is central to achieving these goals and includes didactic lectures, interactive discussions led by experts in research methodology, panel and poster sessions, and disease-focused small-group meetings. The specific aims are: 1) To provide new and established PeDRA investigators with an essential knowledge base and infrastructure to conduct high-quality multicenter research in pediatric skin disorders; 2) To identify and prioritize the clinica needs and therapeutic opportunities in five specific areas of pediatric dermatology: inflammatory skin diseases, birthmarks, genetic skin disorders, premature and term neonatal skin, and cutaneous malignancies and precursor lesions; and 3) To enhance opportunities for translational research initiatives and innovative therapeutic approaches by facilitating idea-sharing and dialogue between basic scientists, physician investigators, and clinicians.
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会议论文
Study of the Safety, Tolerability, and Efficacy of an iPS Cell-based Therapy for Recessive Dystrophic Epidermolysis Bullosa Delivered with a Spray on Skin Device
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