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A Problem-Solving Intervention for Family Caregivers in Palliative Oncology

姑息肿瘤学家庭护理人员的问题解决干预措施

基本信息

批准号：
8956643
负责人：
Karla Washington
金额：
$ 21.73万
依托单位：
UNIVERSITY OF MISSOURI-COLUMBIA
依托单位国家：
美国
项目类别：
财政年份：
2015
资助国家：
美国
起止时间：
2015-07-01 至 2017-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8956643
关键词：
Address Ambulatory Care Facilities American Anxiety Boxing Cancer Family Cancer Patient Caregivers Caring Clinic Clinical Trials Complex Continuity of Patient Care Coupled Data Decision Making Development Disease Distress Emotional Ensure Environment Family Family Caregiver Family member Fatigue Feedback Feeling Friends Future Goals Growth Health Professional Health system Home environment Hospitals Individual Inpatients Intervention Interview Left Life Literature Malignant Neoplasms Mediating Mental Depression Methods National Cancer Institute Nurses Online Systems Outcome Measure Outpatients Palliative Care Participant Patient Care Patients Philosophy Pilot Projects Population Preparation Problem Solving Protocols documentation Provider Psychologist Quality of life Randomized Randomized Clinical Trials Recruitment Activity Relative (related person)Reporting Research Research Personnel Schedule Self Care Services Social Workers Staging Structure Survivors Symptoms Translating Trauma Videoconferences Videoconferencing base cancer care caregiving clinical practice coping cost experience frontier group intervention hospice environment improved meetings neglect oncology outcome forecast palliative problem solving therapy psychologic psychological distress psychosocial public health relevance rapid growth response social stressor success therapy design therapy outcome tool treatment as usual

项目摘要

DESCRIPTION (provided by applicant): Palliative oncology providers are ideally situated to improve the cancer journey for the millions of family members and friends who are vital to the care of seriously ill patients. In recent decades, the primary setting for cancer care has shifted from the hospital inpatient unit to the outpatient clinic, leaving family caregivers responsible fo providing the majority of patient care in the home, often with little support or preparation. The numerous stressors associated with family caregiving often give rise to caregiver anxiety, depression, fatigue, neglect of self-care and, for particularly strained caregivers, psychological symptoms that mirror those experienced by trauma survivors. In congruence with the National Cancer Institute's commitment to supporting families of individuals with cancer across the full disease trajectory, we seek to examine the feasibility of a technologically-mediated problem-solving intervention designed to improve the quality of life and decrease the psychological distress of family caregivers of cancer patients receiving outpatient palliative care. Specifically we aim to 1) examine the feasibility of the intervention relative to recruitment, randomization, retention, and fidelity to core intervention components; 2) investigate the impact of the intervention on family caregiver anxiety, depression, and quality of life; and 3) explore the benefits and challenges associated with the intervention from the perspective of participants. To accomplish these aims, we will recruit and randomly assign 82 family caregivers of cancer patients receiving outpatient palliative care into two groups (usual care and intervention) and collect quantitative and qualitative data, which will be analyzed to inform a future large- scale randomized clinical trial of the problem-solving intervention.

描述（由申请人提供）：姑息性肿瘤学提供者的理想位置，以改善癌症之旅的数百万家庭成员和朋友谁是至关重要的照顾重病患者。近几十年来，癌症护理的主要环境已从医院住院部转移到门诊部，使家庭护理人员负责在家中提供大部分患者护理，通常几乎没有支持或准备。与家庭团聚有关的许多压力源往往会引起照顾者的焦虑、抑郁、疲劳、忽视自我照顾，特别是紧张的照顾者，会出现创伤幸存者所经历的心理症状。与美国国家癌症研究所的承诺，以支持家庭的个人与癌症在整个疾病的轨迹，我们试图研究的可行性，技术为媒介的解决问题的干预措施，旨在提高生活质量，减少心理困扰的家庭照顾者的癌症患者接受门诊姑息治疗。具体来说，我们的目标是1）检查干预相对于招募，随机化，保留和忠诚的核心干预组件的可行性; 2）调查干预对家庭照顾者焦虑，抑郁和生活质量的影响;和3）从参与者的角度探索与干预相关的好处和挑战。为了实现这些目标，我们将招募并随机分配82名接受门诊姑息治疗的癌症患者的家庭照顾者分为两组（常规护理和干预），并收集定量和定性数据，这些数据将被分析，以告知未来的大规模随机临床试验的问题解决干预。