Ethno-Cultural Barriers to Health Literacy/Disease Management in AAs

AA 中健康素养/疾病管理的民族文化障碍

• 批准号: 8829201
• 负责人: Ida J Spruill
• 金额: $ 37.62万
• 依托单位: MEDICAL UNIVERSITY OF SOUTH CAROLINA
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-04-01 至 2016-01-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8829201
• 关键词: Address; Adherence; Affect; African American; Area; Behavioral; Belief; Chronic Disease; Cognitive; Communication; Communities; Competence; Complex; Development; Device or Instrument Development; Diabetes Mellitus; Disease Management; Economics; Face; Family; Focus Groups; Future; Generations; Goals; Happiness; Health; Health Services; Health Services Accessibility; Health behavior; Health system; Healthcare; Healthcare Systems; Heterogeneity; Information Services; Instruction; Intervention; Interview; Knowledge; Lead; Life; Life Style; Link; Measures; Medical; Methodology; Methods; Modeling; Motivation; Non-Insulin-Dependent Diabetes Mellitus; Outcome; Patients; Perception; Persons; Phase; Plant Roots; Population; Property; Provider; Psychometrics; Public Health; Reading; Regimen; Research; Research Design; Research Personnel; Science; Self Efficacy; Self Management; Silicon Dioxide; Source; South Carolina; Structure; Surveys; System; Target Populations; Testing; Underserved Population; Variant; Vulnerable Populations; Work; Writing; base; cancer type; design; diabetes management; ethnic minority population; experience; health literacy; illness perceptions; improved; innovation; instrument; literacy; population survey; preference; skills; social; social norm; tool

DESCRIPTION (provided by applicant): Research suggests that regimen adherence for self-management of diabetes is a serious problem and reason for poor adherence may be rooted in low literacy, culture, and lifestyle. More research is needed in this area, as health literacy (HL) not only measures a person's ability to read and comprehend, but also the ability to act on medical instructions and information. This is particularly true for the African American community which suffers disparate impact from chronic illness. The substantive aim of this descriptive, mixed method study is to explore the effects of beliefs and culture on health literacy and ultimately the management of diabetes in AAs from four regions in South Carolina. Our methodological aim is to develop a reliable, valid and generalizable survey tool with items that represents cultural beliefs, values, experiences and preferences for health information. This study is innovative in that it acknowledges the heterogeneity of the AA community and will apply theoretically grounded models to guide the substantive and methodological aims. We will use focus groups and cognitive interviews in year one and instrument pre-testing and population survey implementation in years two and three. Findings from this study will guide the selection of messages and strategies that will be subsequently tested within targeted populations to improve health outcomes. This study can advance the science as it relates to promoting health literacy and disease management among vulnerable populations.

描述（由申请人提供）：研究表明，糖尿病自我管理的方案依从性是一个严重的问题，依从性差的原因可能源于文化程度低，文化和生活方式。在这一领域需要更多的研究，因为健康素养（HL） 不仅衡量一个人的阅读和理解能力，而且还衡量根据医疗指示和信息采取行动的能力。这对于遭受慢性病不同影响的非裔美国人社区来说尤其如此。这项描述性的混合方法研究的实质目的是探讨信仰和文化对健康素养的影响 并最终管理来自南卡罗来纳州四个地区的AA中的糖尿病。我们的方法目标是开发一个可靠、有效和可推广的调查工具，其项目代表了文化信仰、价值观、经验和对健康信息的偏好。本研究的创新之处在于它承认AA社区的异质性，并将应用理论基础模型来指导实质性和方法论目标。我们将在第一年使用焦点小组和认知访谈，并在第二年和第三年进行仪器预测试和人口调查。这项研究的结果将指导信息和战略的选择，这些信息和战略随后将在目标人群中进行测试，以改善健康结果。这项研究可以促进科学，因为它涉及促进弱势群体的健康素养和疾病管理。