Resource Core

资源核心

• 批准号: 9979770
• 负责人: Janna L Friedly
• 金额: $ 14.74万
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-09-21 至 2022-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9979770
• 关键词: Administrator; Award; Back Pain; Carpal Tunnel Syndrome; Child Support; Clinical; Clinical Data; Clinical Research; Clinical and Translational Science Awards; Communities; Computerized Medical Record; Consult; Data; Data Analyses; Data Reporting; Data Set; Databases; Development; Diagnosis; Ensure; Epidemiology; Feasibility Studies; Fred Hutchinson Cancer Research Center; Funding; Funding Opportunities; Goals; Grant; Healthcare; Image; Infrastructure; Institutes; Intake; Investigation; Knowledge; Leadership; Link; Longitudinal cohort; Methodology; Methods; Mission; Musculoskeletal; Musculoskeletal Diseases; National Institute of Arthritis and Musculoskeletal and Skin Diseases; Newsletter; Online Systems; Outcome; Outcomes Research; Patient Outcomes Assessments; Patients; Pilot Projects; Policy Maker; Publications; Publishing; Reporting; Research; Research Activity; Research Personnel; Resources; Safety; Scientist; Services; Spinal Injections; Spinal Stenosis; Steroids; Surveys; United States Centers for Medicare and Medicaid Services; Universities; Vertebral column; Visit; Washington; Work; base; clinical biomarkers; clinical care; clinical center; cohort; comparative effectiveness; computerized data processing; cost outcomes; deep learning; design; discogenic pain; experience; image processing; imaging biomarker; improved; innovation; interest; learning strategy; member; novel; outreach; pain outcome; patient engagement; programs; psychosocial; research study; service engagement; skills; success; symposium; translational health science; treatment trial; web site; webinar

The overarching goal of the Resource Core is to make high quality data and expertise accessible to a broad community of investigators interested in musculoskeletal research. To that end, we have two main aims: 1) to provide access to data, research services and analytics essential to promoting interdisciplinary musculoskeletal research, and 2) to strategically apply and disseminate the spine imaging and clinical data processing products and analytics developed by the Methodologic core to facilitate the research of the NIAMS community. Services available through the Resource Core include access to a direct-to-patient survey center for the capture of patient reported data, consulting services for stakeholder and patient engagement to support the development and conduct of research, and consulting services to support data analysis study conduct. In addition, the resource center supports access to a number of existing robust, ready to use research databases as well as Marketscan Claims data and Centers for Medicare and Medicaid services data (CMS). These datasets provide a wide variety of robust data relevant to the NIAMS mission of musculoskeletal research including imaging data, clinical data, and patient reported outcomes. Further, the Resource Core will liaise with the Institute of Translational Health Sciences, a partnership between the University of Washington, Fred Hutchinson Cancer Research Center, and Seattle Children's supported through the Clinical and Translational Science Award (CTSA) program to ensure this resource is made known and available to potential partners. To optimize the knowledge of and access to the resources available, the Resource Core leads will collaborate with the Methodologic Core to ensure products resulting from research efforts are properly disseminated through channels that reach our core stakeholders including researchers, clinicians, healthcare administrators, and policy-makers. The Resource Core leadership, in partnership with the Administrative Core, will also develop and an Enrichment Program that includes a CCCR website for our members containing information about our investigators, on-going projects, funding opportunities (including pilot and feasibility funding), description of the research community and links to useful resources, monthly newsletters published on our website summarizing CCCR activities and highlighting the work of investigators, quarterly webinars as well as a yearly half-day symposium (Visiting Scientist Program) organized by the Methodologic Core.

资源核心的总体目标是让广泛的人能够获取高质量的数据和专业知识。 对肌肉骨骼研究感兴趣的研究人员社区。为此，我们有两个主要目标：1） 提供对促进跨学科发展至关重要的数据、研究服务和分析的访问 肌肉骨骼研究，2) 战略性地应用和传播脊柱成像和临床数据 Methodologic 核心开发的处理产品和分析，以促进 NIAMS 的研究 社区。通过资源核心提供的服务包括访问直接面向患者的调查中心 用于获取患者报告的数据、为利益相关者提供咨询服务以及患者参与以支持 研究的发展和开展，以及支持数据分析研究开展的咨询服务。在 此外，资源中心支持访问一些现有的、强大的、随时可用的研究数据库 以及 Marketscan 索赔数据和医疗保险和医疗补助服务中心 (CMS)。这些 数据集提供与 NIAMS 肌肉骨骼研究使命相关的各种可靠数据 包括影像数据、临床数据和患者报告的结果。此外，资源核心将与 转化健康科学研究所，华盛顿大学弗雷德分校的合作伙伴 哈钦森癌症研究中心和西雅图儿童医院通过临床和转化提供支持 科学奖 (CTSA) 计划旨在确保潜在合作伙伴了解并使用此资源。到 优化可用资源的知识和访问，资源核心领导将与 方法核心，以确保研究工作产生的产品能够通过以下途径得到适当传播： 接触我们核心利益相关者的渠道，包括研究人员、临床医生、医疗保健管理人员和 政策制定者。资源核心领导层与行政核心合作，还将开发 以及一个丰富计划，其中包括为我们的会员提供的 CCCR 网站，其中包含有关我们的信息 研究人员、正在进行的项目、资助机会（包括试点和可行性资助）、项目描述 研究社区和有用资源的链接，我们网站上发布的每月通讯总结 CCCR 活动并突出研究人员的工作、季度网络研讨会以及每年半天的活动 由方法学核心组织的研讨会（访问科学家计划）。